Hey and Welcome to my world. It’s been a while since I did one of these posts and let me tell you. Yes, I have been in hospital. I had started working on the update just last night. I started hurting Friday afternoon but had stuff to do like washing and folding and grocery shopping. Your probably thinking health before all that. Maybe so, but I’m hard-headed and tired of going back to the ER every other week. Anywho I took a shower and meds and laid down for the night. Next day pain was still there but not as bad as the night before. It had moved to my back and leg but by night the pain had a return and was getting worse. So another shower and meds and laid it down for the night and watch some television to help relax and put me sleep. Throughout the night I notice I was getting pain around my ribs and would rub them and go back to sleep. Come morning I thought the pain was gone till I got up to go the restroom. It was more intense and rubbing wasn’t working. Another shower and meds with breakfast of course and a phone call to my mom to let her know. She was like maybe it’s gas since had lettuce in my taco last night. I tried drinking sprite and burp a few times. I gave it a few hours and pain was still there to the ER and I wasn’t happy about that. The set up is different since COVID 19. I take it they have different precautions in each of y’all areas. Two nurses in front of the entrance. I told them what was going on and she told me which window and where to go and wait till the name is called. Took almost an hour just get in the back to be in triage, but had to wait to get pull in back for a room. Had a nurse hadn’t had before and she didn’t want to really listen to me about my port. If it wasn’t for another nurse in the room. I don’t want to even think about it. My counts are good for now. My retic at 10.5, which isn’t good. It’s a sign letting me know I’m in crisis. I had a good nurse practitioner that I did have before. I’m thankful for her and how quickly she moves to get me comfortable and admitted. It’s going be a long night, they have me on meds by mouth. The IV dose was 1mg and that’s not what i take. Since the COVID crisis seems they have to be careful with IV meds on the floor but not ER. We shall see how this goes. Until tomorrow I pray all is well with each and every one of you all. Stay safe and inside. Blessings
Hello and Welcome to My World. It’s been a week since I been home from 8-day stay. God is good. I was a worry for a while. Where should I start? Come to find out the accident put me in crisis. Not sure if I mention the ride to my check up on my hip. Let’s just say that ride was hell. My body was so on fire. Let’s just say I was glad I had arrived at the doc office but not really because I had to get an x-ray and I was already hurting. It took prob 10 mins to sign in and sit and wait to be called. I saw a person dress half-naked and I was like hope she doesn’t have sickle cell. We don’t like cold. A lot goes through my mind when I’m hurting while trying not to think of my pain. I got called to let’s just say I was not happy about getting back up and walking again. Finally made it to the back and let’s just say things weren’t going good. Got on the scale and went in a room and did that good stuff. Waited quietly for nurse practitioner and we’ll let’s just say it went to hell. She walks in and was like I have never seen you like this before. Oh, and I didn’t look good. I tried to hide how I was feeling but when you in pain it was hell. So she was like can u get on the table. Let’s just say had said a prayer before got up. And it went straight to hell. I didn’t want to be touch and it turned to move and tears fell. She was like yep never seen you like this going direct admit you. Let’s just say it didn’t go that way because the hospital was full. I was in the hallway in er part for 2 hrs before got meds and let’s just say it was supposed to be iv meds and got the pill. You guess it, it didn’t work. You would think a big hospital with 9 floors would have room. But nope. Anywho our waiting 6hrs in the hall to be admitted. Finally got put on the 5floor and settle in. Guess who hadn’t eaten all day till got in room at 5 or 6? Me. I had some great nurses and doctors. Seem always do when I’m in that hospital. It’s like every few years. I stayed on 5 floors, think maybe 2days. Things started going bad and oxygen was dropping and seem my lungs weren’t looking good. I ended up with acute chest, which can kill us. After I heard that was wrong. Started to panic but just prayed and became calm and call parents to let them know what’s going on. They couldn’t be with me since dad was in the hospital. Hey, I’m grown and actually like been alone. Long as I can call them and hear there voice everything going be ok. I got a move to.9floor pcu. That’s how serious things went and quick. The doctor had asked me have I ever had acute chest and I said yes once. She was like did you have cheat pain. I said no. That was alarm and she did an x-ray and come find out she was right. I had good nurses on 9 floors. They stayed on top of pain, before getting a move to the floor. Meds had got up to iv meds. Actually when sickle cell doctor find out what board said and let the doctor know. Guess she talk to them and things got to change and quick. Been on 9floor and receiving bags and bags of antibodies. Sighs. So wasn’t happy about that. Let me be real, it had been months since had pain meds. I like to go months without my pain meds if I don’t need it. Guess body wasn’t used to it and I didn’t feel like myself. I don’t know-how made it from bed to chair get comfortable. Why do they have beds that move in the hospital? Like you have been suck in. I know what into door few times going to. bathroom. Sucks when you getting fluids as well. It’s like hey let’s go to the bathroom, even after you just went. I hate sleeping with oxygen in the nose, and when came to checking and it was low they knew why. Got to the point when I did get out bed go the bathroom I wouldn’t put it back on. Let’s move on from the depressing part. Believe I was on 9 floors 3 almost 4 days. I was glad to be leaving the floor. That means I’m out of danger. Oh almost forgot to mention hip results, everything came back ok and not damage. Just bruise. Omg, I was so happy. Few days that pain was gone, just other stuff had worry about. I moved to the 4 floors once leaving 9 one. A couple of days there and I was a free woman. Lol. On the second day when met doc n, not his partner. My room was full n had student doctors. Let’s just say I’m good on all them looking at me and the room was full. He asks was it ok and said no and he sent them out. Thank God. It’s a plus when the doctor listens to you on everything from how you feel and what you take for pain. They were surprised to find out what I had been doing for pain. I may have a serious illness, but I don’t want to be defined by it. On my good days, I don’t think of having sickle cell. You probably thinking to say what. We like being treated like we’re normal like everyone else who’s not living with chronic illness. Oh, yea almost forgot I did end up getting 1 unit of blood, let me just say I really didn’t want it because of what happened last time. Guess went good, I did scratch but that because of meds. I didn’t get blood till I was in my low 5’s and was getting headache and feeling very weak and tired. My mom had talk sense into me when it came to getting the blood. The way she did it was the only way I was going agree. What would we do without our parents? Well whew, that was a lot to type and sorry it took so long on update. My dad is doing much better, not passing out when he cough anymore. He still coughing but they have him on some meds to help with passing out. He has started his meds for his cancer as well. Well, thank you for being patient and sticking with me on this journey. God Bless until next time.
Welcome to My World. I made it a year without admissions. When you know your body, you know your limit. I tried so many times to push myself so I could make it to the little lady party the following day on 18. It was strange getting admitted when the dr. on the floor told me and not the E.R doctor or nurse. I wasn’t crazy about having to deal with E.R doctor, to be honest, we don’t have a good past. He did give me the wrong meds before. Thankful it wasn’t my time to leave here. After coming in and talking to me. Idk what kind of meds he was trying to give me. It’s something they give preg woman. Didn’t touch my pain but was trying to put me sleep. Different Things we go thru when dealing with people in the medical field makes you wonder how they got a degree. I didn’t have my usual nurses I usually deal with so having one got in E.R wasn’t umm pleasant. Getting on the floor was a different story. I was glad to be on first-floor just not crazy about the room I was in. I didn’t like how the doctor did my meds because the pain wasn’t been touch and had to practice my breathing to get thru the night and the next day till the doctor came to see me. When they see your counts still dropping they want to move and so right by you. Didn’t have the doctor I was used to having when all they have do is look at my file. Makes you wonder why they make stuff harder? My counts were 7.4 when I arrive, retic was 9 and hematocrit was low as 20.3 and the next day it was even lower in 17 and I was 6 in my counts. So who was looking at blood transfusion that they haven’t had in over a year or more? Believe or more. I got cross and type but had to wait till my blood was found since I have antibodies. Took it a few days which was a surprise. What was a bigger surprise I was itching the whole time during the first unit? We had space the other unit out. The same thing happens to that and they stopped it. I never had that happen before. So they wanted to clean up the mistake and I’m still waiting to hear what happen. I have 3 doctor appointments coming up. So I’ll find out if anything happens are not. If you wondering if I got medicine to prevent itching and answer is yes. Always have to get it, so I won’t have a reaction. Just this time around it didn’t work. I even got steroid meds for the second unit and still the same reaction. I wasn’t crazy about steroids but hey whatever helps. One does of steroids can’t make me gain weight. Lol. The one unit brought my count up to 7.3 and it drops till 7 the next day. I didn’t want to be there for my birthday, so was glad to get a discharge. I hate that haven’t been as active in the blogging world but still taking it easy. I did t know my counts was that low when I went in. You think it’s a small thing and it can be a major thing. Does make me slow it down some and take care of myself. It’s hard to do that and grieve at the same time. It’s hard to deal with sickle cell and remember not to get to happy are excited or whatever. It’s possible it can kick a crisis in. So thankful for all the kind comments and prayers. God sends the right people in your life. You never know who you need and why, but it’s truly a blessing to have. Pray all is well with each and every one of you all. I plan on doing a post with doctor visits. I know one doctor I’m meeting for the first time. Hope it goes well. Hate new doctors and starting over. Sighs. Do anyone else feel that way? Ok, maybe not hate it dislike. Who knows I may just hate change. Lol until next time stay bless.
So many dying around us.
Young and old.
Will it ever be a cure.
So many deaths.
I’m tired of reading we lost
Somebody family is hurting
When will our care get better?
She/he fighting for their life.
Needs a cure
And doctors/nurses who care.
Were tired of getting judge
Just cause you don’t know our pain
And understand our disease
When will y’all do right by us
So many dying
I’m tired of reading we lost
This fight is getting difficult.
Seems nobody cares
So many dying
Young and old
We fighting to live
each and every day.
All we want is just to live
Hey and welcome to my world. As of lately, I haven’t been feeling good. I couldn’t use my right hand to do much of anything. Feeling a little better today. I had to make E.R trip Sunday because I was hurting so bad and right hand is and was swollen. I had to debate with myself if I wanted to go. The crisis started late Saturday night, I knew I didn’t want to go that night and be stuck with a lozy doctor with no bedside manners. I know I shared some of my experience with you all in the past. I was worry I would have the same problem as Sunday rolled around. I finally made up my mind go before it got worse. The wait was prob over an hour it was a busy day. Got triage out the way. I did t like the doctor who name was on my band. He was the same doctor that gave me med I’m an allergy to and can kill me. The doctor never wants to listen to the patient. I got a woman doctor who I had when been admitted on the floor. She now works in E.R. Before go into more information on my experience. I have bn going cold turkey without my pain meds. Haven’t had it since June but did have E.R visit last month. So I made sure let her know that. She wanted to just give me fluids and oxygen see if that helps. Red flag, if I could handle my pain at home I wouldn’t be made E.R visit. So I was in pain for over an hour before got med. Thankful counts were looking oh do good, but at the same time I know just because of counts show good report doesn’t mean anything. She was like what should we do. She caught me off guard with that question. I have never got asked that question from a doctor at that hospital. I was like is she pulling my finger she can’t be serious. She was like we going to give you some meds so you can think about it. She even asks what I take. I’m like yea this got me a joke. But she was serious. I decided to go home because I could go to my sickle cell doctor and pick up my prescription. She gave me a look because she knew I was in pain still. And sometimes I do end up returning back to E.R. she gave me three bags of fluids before she discharged me. Sometimes you have been strong when you don’t want to be. Don’t get me wrong I was getting frustrated because of my pain. I wanted to cry and scream but I know to do all that would make it worse. I did have some good nurses that night. And woman got my port on the first try, when I went last month, they had a hard time. I had request a nurse who never miss doing my port. When you hurting, you don’t want to hurt even more. I did pick up on the doctor I don’t like voice and was glad I didn’t have a deal with him. God is good all the time. I did get a chance to see my favorite doctor who got me last time. I wasn’t on his side and he was like she is good. He always let me know what’s up with nurses and doctors. I can talk to him like a friend. Both hospital visits were not so bad. I have started taking my Endari meds again, so I’m taking that’s helping with my counts. My retic was high. I usually get sick and have been admitted in October. Still not 100 percent. I have post and blog when I’m feeling ok to pick up. My hand is still swollen, it’s going all the way up to my shoulder blade, to be honest. I pray all is well with each and every one of you all who read my post. And thank you for the prayers, I can never have enough. God Bless.
And welcome to my world. I took a break from writing about my disease because I felt like I was talking about it too much. But honestly its truly not enough information about what I and many others go through on daily basis. September is Sickle Cell Awareness month. With so many dying left and right and it seems like every day makes me wonder what is going on. Why isn’t there much information about what we go through and why does it seem like the doctor and nurses have stopped giving a damn about us? It’s time to better educated new and younger doctors/nurses about sickle cell and stop making it a black disease because that’s not the case. And time spread awareness on sickle cell trait. I got to stop being quiet and start opening my mouth and let the world know what’s going on. I have debated for a few weeks now on coming back and doing what I started. Some may not like my content and that’s fine. On days when pain is so bad, I pray that God calls me home cause it be just that painful and nothing love ones do doctor and nurses help. I recently had E.R visit after going months without having an issue. Sorry, I take that back, I fought it home a few months again. I haven’t been admitted since May before my bday. God is truly good all the time. I’m not sharing my story for pity, I’m sharing my story to spread awareness. The more I stay quiet the less is getting done for the sickle cell community. I do plan on doing an update post on how my experience went with hospital visit and doc appointment. I pray all is well with each and everyone of you all. God Bless
And welcome to Poets Afterthought, as you all know especially the ones been with me a long time my name was a poetic journey, it’s still my journey. I have sickle cell and been dealing with it all my life. But im truly tired of how we get treated when we go to the Emergency room. Some doctors shouldn’t have a license to treat patients, same goes with nurses. I done had my fair share. I usually keep quiet and don’t say what truly go thru with when I go. I’m just sick and tired of us dying because they believe oh she\he look good. Oh, they count fine, send them home. Basically so we can die and never be seen again. I could go on with the mistreatment we receive. I rather suffer at home than put up with bullshit doctors and nurses. I know by doing that I’m only hurting myself. I was watching video yesterday and it broke my heart, we have lost another warrior. We are not getting proper treatment. Point blank, we basically get screwed. Some times I have waited over 6 plus hours in the waiting room just to be seen. Plenty time for us get worse and die. I done waited a long time as well in the room after been call to back, so I could be seen by a doctor. Hell, half the time they run around chatting and joking with one another. I think it’s ridiculous for me to have been half dead are near death for them to do they damn job. I’m sick and tired of the mistreatment. If only they knew what we feel they would have more compassion. Just find out we lost another person. Some of these doctors and nurses still think it’s black disease but it’s not. I had to get blood work recently and had to get port access. One tech who they love call to try and stick me, knows I’m a hard person. Well, she just told me in my file it says to access my port. I’m wondering why these idiots not trying to do their job correctly, but rather put me thru more bullshit than my body can take. It’s sad when you have to pray that you’ll have a compassion doctor to actually do what need be done. How are we going fight when it seems the ones who suppose help us is letting us die.
Good Morning World,
Wanted to do update for y’all. I’m still here, hoping go home today. My counts was still 7 and retic 12. I’m hoping things start looking up today so I can blow dis joint.. lol lately we been getting rain so we have been under tornado watch and flash flood warning as well. As of today my retic is 16 now. Its bee awhile since my retic have been dis high. I was hoping go home today. Ty for the prayers and comments, truly means a lot to me. I have a great doc and nurses. As the doc said to me today. His here to serve me… his truly dedicated to his patients. My right hand is starting get better. It was swelling up, made it hard for me to move fingers. Well I’m going to crash out. Pray all is well each and everyone of you all.
Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia. I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain. It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works, it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)
As you can see by the title I’m in hospital, been here every since Christmas Night. So glad I had the chance to spend Christmas Eve and Christmas Morning with my love one’s. I was trying to make it to the end of the month. I was hoping it would pass. I had to have transfusion today. Blood count had got low, I knew something was wrong since I been having headaches . Its a sign that your blood count can be low or I’m getting ready to go in a crisis. I do hope everyone of you all had a Lovely Christmas. Well better then mine:) I have some great nurses and doctors. So thankful for that to be honest. Last time I was sometime last month, and doctor wasn’t doing right by me. So I left the hospital, and lets just say I was in a lot of pain. I’m hoping to do right by myself dis time around. I’m hoping to go home tomorrow if everything come back looking normal. I’m still in some pain right now. Hoping the blood did some good for me. I try not to get blood, because one day when I’ll need it , it may not help me . Sighs. Well I had warm Christmas, seem the cold front is coming in. Guess its a good thing I’m in hospital now, to prevent all that. But its just cold in the evening time, so it shouldn’t be 2 bad. I’m going to wrap this post up, because I’m getting tired and restless. I haven’t been sleeping much for whatever reason. I always got some stuff on my mind. I know I have check up on the 4 to see how the meds is doing. I hope good news, but I really haven’t been on them since I been in hospital. Only meds they giving me is my pain meds and not my every day meds. I must say it truly means something when you have a great group of people taking care of you. I even have some nurses coming visit me since they always say I’m a good patient. Makes me feel good when they think that about me. I feel like I be getting on there nerves at times. But I have met some that have became friends.