Living With Sickle Cell Anemia

Hey World,

And welcome to my world. I took a break from writing about my disease because I felt like I was talking about it too much. But honestly its truly not enough information about what I and many others go through on daily basis. September is Sickle Cell Awareness month. With so many dying left and right and it seems like every day makes me wonder what is going on. Why isn’t there much information about what we go through and why does it seem like the doctor and nurses have stopped giving a damn about us? It’s time to better educated new and younger doctors/nurses about sickle cell and stop making it a black disease because that’s not the case. And time spread awareness on sickle cell trait. I got to stop being quiet and start opening my mouth and let the world know what’s going on. I have debated for a few weeks now on coming back and doing what I started. Some may not like my content and that’s fine. On days when pain is so bad, I pray that God calls me home cause it be just that painful and nothing love ones do doctor and nurses help. I recently had E.R visit after going months without having an issue. Sorry, I take that back, I fought it home a few months again. I haven’t been admitted since May before my bday. God is truly good all the time. I’m not sharing my story for pity, I’m sharing my story to spread awareness. The more I stay quiet the less is getting done for the sickle cell community. I do plan on doing an update post on how my experience went with hospital visit and doc appointment. I pray all is well with each and everyone of you all. God Bless

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4 Comments

  1. You are truly an inspiration, PJ, with all you’ve endured. I’ve known you now for 7 years or so, and you still continue to keep your faith and remain strong. Sometimes, I don’t know how you do it. But you’re a great mentor to others who are struggling with some kind of health issue that knocks them off their feet at times. Sending much love and big hugs, Lauren ❤

    Liked by 1 person

      1. I know your words will help those in need, and I’m doing better. But I’m still in the process of diagnosing something, having a procedure on Oct. 11 that will hopefully bring answers. xo

        Liked by 1 person

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