Posted in 2019, chronic illness, God, Health, My Journey, My Life, Prayers, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Hello and Welcome to My World. It’s been a week since I been home from 8-day stay. God is good. I was a worry for a while. Where should I start? Come to find out the accident put me in crisis. Not sure if I mention the ride to my check up on my hip. Let’s just say that ride was hell. My body was so on fire. Let’s just say I was glad I had arrived at the doc office but not really because I had to get an x-ray and I was already hurting. It took prob 10 mins to sign in and sit and wait to be called. I saw a person dress half-naked and I was like hope she doesn’t have sickle cell. We don’t like cold. A lot goes through my mind when I’m hurting while trying not to think of my pain. I got called to let’s just say I was not happy about getting back up and walking again. Finally made it to the back and let’s just say things weren’t going good. Got on the scale and went in a room and did that good stuff. Waited quietly for nurse practitioner and we’ll let’s just say it went to hell. She walks in and was like I have never seen you like this before. Oh, and I didn’t look good. I tried to hide how I was feeling but when you in pain it was hell. So she was like can u get on the table. Let’s just say had said a prayer before got up. And it went straight to hell. I didn’t want to be touch and it turned to move and tears fell. She was like yep never seen you like this going direct admit you. Let’s just say it didn’t go that way because the hospital was full. I was in the hallway in er part for 2 hrs before got meds and let’s just say it was supposed to be iv meds and got the pill. You guess it, it didn’t work. You would think a big hospital with 9 floors would have room. But nope. Anywho our waiting 6hrs in the hall to be admitted. Finally got put on the 5floor and settle in. Guess who hadn’t eaten all day till got in room at 5 or 6? Me. I had some great nurses and doctors. Seem always do when I’m in that hospital. It’s like every few years. I stayed on 5 floors, think maybe 2days. Things started going bad and oxygen was dropping and seem my lungs weren’t looking good. I ended up with acute chest, which can kill us. After I heard that was wrong. Started to panic but just prayed and became calm and call parents to let them know what’s going on. They couldn’t be with me since dad was in the hospital. Hey, I’m grown and actually like been alone. Long as I can call them and hear there voice everything going be ok. I got a move to.9floor pcu. That’s how serious things went and quick. The doctor had asked me have I ever had acute chest and I said yes once. She was like did you have cheat pain. I said no. That was alarm and she did an x-ray and come find out she was right. I had good nurses on 9 floors. They stayed on top of pain, before getting a move to the floor. Meds had got up to iv meds. Actually when sickle cell doctor find out what board said and let the doctor know. Guess she talk to them and things got to change and quick. Been on 9floor and receiving bags and bags of antibodies. Sighs. So wasn’t happy about that. Let me be real, it had been months since had pain meds. I like to go months without my pain meds if I don’t need it. Guess body wasn’t used to it and I didn’t feel like myself. I don’t know-how made it from bed to chair get comfortable. Why do they have beds that move in the hospital? Like you have been suck in. I know what into door few times going to. bathroom. Sucks when you getting fluids as well. It’s like hey let’s go to the bathroom, even after you just went. I hate sleeping with oxygen in the nose, and when came to checking and it was low they knew why. Got to the point when I did get out bed go the bathroom I wouldn’t put it back on. Let’s move on from the depressing part. Believe I was on 9 floors 3 almost 4 days. I was glad to be leaving the floor. That means I’m out of danger. Oh almost forgot to mention hip results, everything came back ok and not damage. Just bruise. Omg, I was so happy. Few days that pain was gone, just other stuff had worry about. I moved to the 4 floors once leaving 9 one. A couple of days there and I was a free woman. Lol. On the second day when met doc n, not his partner. My room was full n had student doctors. Let’s just say I’m good on all them looking at me and the room was full. He asks was it ok and said no and he sent them out. Thank God. It’s a plus when the doctor listens to you on everything from how you feel and what you take for pain. They were surprised to find out what I had been doing for pain. I may have a serious illness, but I don’t want to be defined by it. On my good days, I don’t think of having sickle cell. You probably thinking to say what. We like being treated like we’re normal like everyone else who’s not living with chronic illness. Oh, yea almost forgot I did end up getting 1 unit of blood, let me just say I really didn’t want it because of what happened last time. Guess went good, I did scratch but that because of meds. I didn’t get blood till I was in my low 5’s and was getting headache and feeling very weak and tired. My mom had talk sense into me when it came to getting the blood. The way she did it was the only way I was going agree. What would we do without our parents? Well whew, that was a lot to type and sorry it took so long on update. My dad is doing much better, not passing out when he cough anymore. He still coughing but they have him on some meds to help with passing out. He has started his meds for his cancer as well. Well, thank you for being patient and sticking with me on this journey. God Bless until next time.

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Posted in 2019, Children, God, poem, Poetry, Pray, prayer, Prayers

Prayers

Let’s bow our heads and pray

for our children.

So much hell going on around the world.

They aren’t safe anymore.

Let’s pray for there safety.

Let’s pray for there well being.

Prayers

for mine and yours.

Let’s lift them up

and giving back to God

I’m praying for you and you

and yours and yours.

Pray blessings on them.

Prayers for children all over the world.

Let’s bow our heads and pray

For the young and old

For rich and poor.

Cover them in prayer

Amen

4/3/19

~PJ~

Posted in 2019, Children, Christian, Christianity, God, Jesus, Prayers, Spiritual Word Of The Day, The Word Of God/Bible, Word to the Wise (Spiritual Word Of The Day)

Word to the Wise (Spiritual Word Of Day)

Let’s keep our children covered in prayer/the blood of Jesus every day. The devil is using sickness, disease and the spirit of infirmity as another death tactic to try and destroy this generation and those to come.
#The #Blood #Still #Works

Isaiah 54:17….NO Weapon formed against our children shall prosper…

Good afternoon, God is good all the time. With so much killing going on around the world. This message spoke to my heart and I had a share. Pray speaks to someone heart/soul. God Bless

Posted in 2019, Christian, Christianity, God, Prayers, Praying, Spiritual Word Of The Day, Word to the Wise (Spiritual Word Of The Day)

Word to the Wise(Spiritual Word OF Day)

It’s hard to fall when you on your knees.

So true you can’t fall when you already down praying out to God.

Good Morning a few weeks ago I saw these message on church sign and just knew had to share. What a powerful message. Pray it to speak to someone heart/soul. God is truly good all the time. God Bless

Posted in 2017, AWARENESS, God, Health, My Journey, My Life, Prayers, Sickle Cell Anemia, Thankful

Day 2-3, Living With Sickle Cell

I’m still in the hospital and in a lot of pain. At one point I truly thought, I was getting better, but that’s negative. I haven’t got much rest to be honest.  I started working on the post yesterday, but my body wasn’t having it. Some days I just felt defeated. I haven’t gone 7 months with no hospital stay in a long time. It’s being awhile since I gotten sick. Honestly, we know our body better than anyone. With all the rain we have been getting, I’m not surprised on the way I been feeling! I’m still trying fight the sleep. You know as a child we hated to go school. I pray who all were affected by Tropical Storm Cindy, made it out with no harm.  My count seems to be playing with me big time. Drop all the way 7.3 and following day it comes up to 7.6. I’m feeling much better than I was, which I’m very thankful for. We a lovely visit from my Lil Lady, she had been texting me saying she misses me. That visit I truly needed to brighten my day.  Thank you all for the prayers , it truly means a lot to me. God is truly good all the time. No matter the situation, good or bad. Going end post here since I’m hurting . God Bless

Posted in 2017, God, Health, My Journey, My Life, Prayers, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

thumbnailSCD

Today isn’t a good day, I have been hurting since Tuesday.  I haven’t seen inside hospital e.r since the beginning of the year. Some days are better than the others.  I may be going to the hospital later today, but let me tell you, that’s the last thing I want to do be honest. But the meds aren’t working, I haven’t had pain meds that hospital give it a long time.  I have been taking nerve meds to relax, but it’s not working. So I know what  I need to do… It’s the idea of ignorant doctor knowing more about my illness that’s turns me off on going to be treated. I truly believe some doctors are out to kill a lot of us with this illness.. Oh, your blood count looks fine, so we not going to do anything. The last time I went. My retic was high, did the idiot check my counts nope just retic. Did he give me any meds that I was suppose to get. Nope, he gave me something I never had before and it made me feel worse. Did he give a damn, nope.   They truly believe giving us fluids should help without proper care. I just hope when I do go to the hospital I don’t have to deal with idiot doctor.  My whole body is betraying me in the worse way. sighs…Do keep me in your prayers, I’ll be cutting these post short, because hurting too bad to focus properly. I pray all is well with each and every one of you. God is truly good all the time,

no matter what we go through. He got us.

Posted in 2017, Cancer, Faith, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Update 


Hello World,
It’s bn few days, bn taking things and life slow. As I mention in last post. We find out my dad has cancer. All I know is it serious and I’m not sure just how. I believe and know God has the last say so. I had check up today and counts have drop from 8.8 to 7.5. Doc believe need unit, but I’m not trying have that right now. I bn dealing with headaches and pain lately. I knew it was something but just figure it was the weather. Last time i went er, they did nothing and I was running fever and coughing and whatnot, but since everything looks fine to them sent me home. Smh. I hate when people don’t so they job and think just cause counts fine nothing wrong. Well obvious they was wrong and probably my stressing didn’t help. The kids went back to school yesterday. So that a plus, we can rest and do more when they away learning.. lol.. omg 2 was and some days with them off. I.must say thankful I’m not parent. I know my blogging hasn’t bn consistent in awhile. But more then ever I need be writing clear my head. I need get back in school and finish my degree. My plan for the summer if I live see it.i hope you all rights well and enjoyed the New Year. I read comments and even some post, but bare with me. GOD Bless

Posted in 2016, Death, family, Friends, God, Life Lessons, prayer, Prayers, Praying, Thoughts, Thoughts!!!!

Heartbroken

Hello World,
Hope everyone of you doing good. Today I receive bad news. I’m not good on grieving.  The world is crazy place. I don’t watch the news anymore because tired of all the heartache. When will we wake the hell up and start loving?  With all the hate going on. We are failing our country. We are showing the new/next generation just how to hate. My emotions are everywhere. Yes, we all die, but to die such a gruesome way is just despicable. When will we stop letting hate drive us to sin and take someone life. I pray ya’ll are well and your love one’s know  just how much you love them. Please please hug them and say you love them. Pick up phone, call, text. From my heart to yall. I love each and everyone of you all. God Bless

Posted in 2016, Christianity, God, prayer, Prayers, Praying, Spiritual Word Of The Day, Word to the WIse, Word to the Wise (Spiritual Word Of The Day)

Word to the Wise (Spiritual Word Of The Day)

I don’t care how far you may go from the presence of God. Prayer will walk you down and arrest you to bring you back to Him. 

Good Evening,  its bn awhile since I blog.  With everything I bn going thru,  needed a break. But have bn reading post. I pray message speak to someone soul and heart.. God Bless

Ok I’m confused where is tag and other button I can’t think of right now..