Posted in AWARENESS, chronic illness, God, Health, Heart, June 19, knowledge, life, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness

World Sickle Cell Awareness Day

Today is Sickle Cell Awareness Day. I know I have mentioned it so many times on my blog and the different things I go through with dealing with this disease. Lately, all I see on Facebook is how they are getting treated. Some of yall may have never heard of the disease. Well, today is the day I explain what it is. If you want to know more keep following me on my journey and google as well. I never thought people would care about what I go through.

Whats sickle cell anemia.
It’s an awful hereditary blood disease. You can be fine one minute and the next you not. Years ago we didn’t see the age of thirty. Wow what a mighty God we serve, some may not see that age today and some are seen age all the way up to there 80s. When in crisis is turns your blood into crescent making it unbelievable to move because of oxygen not reaching that area. Normal blood cells look like doughnuts. Let’s be real for a second this is a dangerous disease it affects all your organs. Since its heredity disease. It can affect all your kids are just one or two. My parent had five of us, only two of us was diagnosed with this disease and the rest trait. They didn’t start testing babies to till the late 80s. For some many years, I was told and so many around us that sickle cell was a black disease, I believe it to join sickle cell groups on facebook. Wow, the many faces behind this evil disease showed me the truth. Since 2008 they have recognized sickle cell as a global public health priority in order to raise awareness to sickle cell. With that been said its still not much awareness. So many people still don’t know what sickle cell is. I hope by joining my journey it opens someone eyes and hearts up.

Advertisements
Posted in 2019, Love, Love Journey, love thought, My Journey, My Love Journey, My Love Journey Thought, Relatonships, worth

My Love Journey Thoughts

When looking for love and dating. How do yall feel about them calling you sweetie, baby, sexy, etc? I’m not fond of it, just be honest. You don’t know me so don’t come at me with sweet talk. I feel like we have let them pass because we think its cute are whatever reason may be. Sweet talking doesn’t work on me. What happens to talk to the opposite sex with respect? If you correct them they want to call you a female dog. Why should I lose my worth because they have lost their dang mind on the correct way speak to me with some sense. Am I wrong for thinking like that. Fellas how do yall feel about woman calling yall sexy, handsome, etc?

Posted in 2019, Love Journey, My Journey, My Life, My Love Journey Thought, online dating, Relatonships

My Love Journey Thoughts

I never saw myself giving online dating a chance. And let me just tell you it’s not all that is cracked up to be. Some of the profiles are a joke and make you wonder why you even here. I have to take many breaks. If you have done online dating what did you look for are should I say did you know what you were looking for.? I ask that because you can say what you looking for and still the crazy ones won’t come at you sideways. I do know what I want, I don’t believe I find him online. But who knows God may place him in my path.

~TO BE CONTINUE~

Posted in 2019, AWARENESS, chronic illness, Health, Heart, Mini Update, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Hello, and Welcome back to my world. What a day I had. What I hate about doctor offices is to wait. I did mention had an appointment both days. Let’s just say Monday was a waste of time and gas. They went prepared for my arrival and didn’t want to see me because they didn’t have paperwork from the hospital, which I didn’t understand. You knew about for over two weeks. Always away from that. I arrive on time for both appointments. They did apologize but still, I was not happy. You are my primary doctor so it wouldn’t kill you to finally see me in person. Nope, I see my other doctors more then I see primary. Haven’t even met her yet. Yea something wrong with that pic big time. My sickle cell doctor was the most important for me to see. I had called in the week before explaining to them what had happened when I was in the hospital. I wanted blood work and wanted my results. She set everything up for me. Soon as the appointment was over went next door to the hospital to get labs drawn from my port. So back to my appointment, hadn’t been seen since Feb. She was like you good. I know I haven’t mentioned here before. I have changed my diet. I went keto and it has helped me a lot. Kept me out of the hospital. Lost over 60lbs. When on chemo meds for my sickle cell I had gained weight and couldn’t lose it. Then the new meds for sickle cell. It was making my head and back hurt. And I couldn’t deal so I stopped it. I had to first help myself and I have done just that. I honestly did my research for about 4/5 months before I went for it. I don’t have a gallbladder. Anywho back to my appointment.she check my heart and says sounds good. She asks me about meds she wanted me to start last time for my kidney. Told her I hadn’t started it yet. Since my body is doing overtime then a person without sickle cell. So she changes the mg since I’m smaller and started it last night. Never happy about trying a new medicine. So next visit we will see how everything looking. I’m putting it in God’s hand that everything is good and I won’t have to take it forever. I was glad I didn’t have a long wait for a tech come do my port. She was a nice woman and we talk while she did it. I always like to get to know whoever is dealing with me. I hate for my port get infected. I finally got my result around 5 and no new antibodies praise God. White counts were good. Retic little high but it’s be expected since my counts 7.6. It’s the best but it for sure not the worse. Praise God. Also, find out my bones in my back are deteriorating. It explains a lot when I’m going into crisis. Just a few days ago, I couldn’t move because I was hurting so bad. I read other sickle cell patients having the same problem. But so wasn’t expecting I had it. With so many people dying from my illness. I want to share my illness with y’all. Until next time pray everyone doing good. Stay Bless

Posted in 2019, Faith, God, Love, Love Journey, love thought, My Journey, My Love Journey, My Love Journey Thought, Relatonships

My Love Journey Thoughts

Does love truly find us in odd situations? Do we find it or go looking for it? Do we wait? I was always told We first got to help ourselves. Is that true when looking for love? Or does that mean we should discover who we are, or get ourselves out into the dating world? Can we truly find love online? I decided to give it a try. I don’t have high hopes for it. It’s good and bad in every situation when dealing with dating. How do you know when to go for it or step away. I’m putting my FAITH in GOD. He’s going to lead me. I also wonder if love could be really for me.

~TO BE CONTINUE~

Getting my toes wet and seen what it’s all about. Join me on my Journey, do share some of your experience are thoughts with me. Until next time. God Bless

Posted in 2019, Heart, Love, Love Journey, My Journey, My Love Journey, poem, Poetry

To be healed

I had to wait for my heart to heal.
I had to forgive myself
I had to learn to love me again
I never realize the hell you took me
Through
I couldn’t look at myself in the mirror.
I hated everything you took me through
I had to wait for my heart to heal
Boy you broke me
You destroy everything I was.
I had to learn to love me again
I had to have chat with myself
Teach myself you are worthy
I had to show myself
Who I was
That I was worthy
To be love
Boy
You showed me how strong I could be
Once reality kicked in.
I saw me returning to the strong woman
I once was.
I just had to wait
I had to learn to forgive myself
I just had to wait
To my heart heal
And I felt my worth
It was amazing
Feeling
To know my worth
To be loved
The way I loved you.
It’s an amazing feeling
To be healed

4.27.19

~PJ~Day 27. Feels good to express myself more and more after not writing for almost 2yrs. Do enjoy God Bless

Posted in 2011, God, Heart, Love, My Journey, poem, Poetry, Spiritual

My Song

I lay in bed with purpose

Beating in my heart.

I knew then and there

The love of my life

Was in the room with me

Holding me in his arms

You knew I would need you

Before you created me

My struggles or nothing

I’m giving them to you

I’m standing here with my arms

Lifted to you

God Almighty

I need you now

I can look back over

The years and see when

You carry me when I gave up

And died

You breathe life back in me

That’s when I realize I had a purpose

12/1/11

PoeticJourney

Day 23. If you wondering about the title, you’ll see the title more then once. Its actual song titles that spoke to me, and I use them to write my heart. Do enjoy and God Bless 🙂

It’s a repost, that means a lot to me to this day. No matter what you going through. You have a purpose. Do enjoy.

Posted in 2019, chronic illness, fight, Health, My Journey, My Life, poem, Poetry, Sickle Cell Anemia

Join My Fight

Trying to make you mine
Want you on my team
I need justices
Are you going to help me
I’m trying to live my life
But nobody seems to want
Help me
We need justices
The systems not for us
All I’m doing is, trying to live my life
So my question
Are you going to help me
Too many dying at home
Cause we not been treated right
When we come in
I need you on my team
I want to live.
You my choice
Please don’t let me down
I want to live
I heard you the one
That fight for us
I want to live
Can you be on my team

4.19.19

~PJ~
Day 22. It’s been a while since I did update on some of the stuff we, meaning other sickle cell patients go thru. It breaks my heart, read some of the treatment others get. Since changing my diet, my treatment has changed. It has got better, but at times I worry if I get the proper care I need when I go into E.R. anywho another story for a separate post. Just in case you wondering this poem goes with my life.

Posted in 2017, emotions, Heart, Love, Love Journey, My Journey, My Love Journey, past, poem, Poetry, Relatonships

The Past

I don’t want a reason to feel…
I’m tired of going back and forth
About you.
With my heart.
I just don’t want to think about you at all
I want you to stay in my past.
Why why
Am I still thinking about you in my present?
I don’t want to think about you.
I don’t want to feel anything
When you come to mind.
I want you to stay in my past
Where all my mistakes live

12.8.17

~PJ~
Day 20. A blast from the past when came across the poem. Was just telling my friend its good see where I was back then. Seem come a long way. Do enjoy.

Posted in 2014, AWARENESS, chronic illness, fight, Health, My Journey, My Life, poem, Poetry, Sickle Cell Anemia, Sickle Cell Awareness

My Life

How can I speak…

when I’m only one

person…

You seem to look…

at me crazy…

Cause of the pain.

and you don’t understand…

Yes,

I’m one in a million…

So many of us or losing.

the fight…

So thankful for the one.

who fought with me.

You may not hear me…

But I know many hear me.

and join me to fight for ours.

rights.

Do you hear me?

I hate to yell but hell.

my pain is that intense…

NO act.

over here.

We want Justices…

done…

We are tired of been

mistreated.

some die in pain…

because of the abuse from

the ones…

who supposed to help us.

Do that make you all happy?

see so many dying?

~PJ~

Technical I’m not finished with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think. The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for a cure for us.

Day 19. Something I wanted to repost again. I can’t believe I didn’t add a date it was written. Do enjoy and God Bless