Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors I’m glad it’s finally finna be some warm weather we’re I’m at. I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing. I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines, I see that as a every day thing, not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors, seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday. Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday, hope all is well with each and everyone of you all. God Bless
Tag: doctor
Update
Hello Everyone,
I hope everyone is well. I know its been awhile since I posted. I bn enjoying life and few hospital stays. But other then that all is well. Got heartbreaking news today, we lost a love one on my mother side right before the holidays. Always heartbreaking lose a love one, even more heartbreaking when its right before holidays. God doesn’t make any mistakes, that much I know. I have decided to leave in a few months, I need get away. Part of me feel like I’m running away from certain things in my life, but part of me doesn’t. I need change in my life. I will come home and visit as much as possible. God work in mysterious ways. Im getting the opportunity to get my work publish, so Im excited about that. SO in the new year, I’ll be busy typing up old and new work and trying get everything that need be copyrighted. I’ll try get back into blogging as much as possible. I have bn reading post and trying to like and comment. I have check up tomorrow with my sickle cell doctor. So I’m hoping for good news, since I haven’t been feeling my best lately. I pray everyone have a good Christmas and New Year. I shall post more or another post soon. God Bless:)
Update
Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless
Day 3, Living With Sickle Cell Anemia
Hey peeps, welcome to my world! It has being hella hectic for me since weather hasn’t bn good to me. I was just in hospital last week and got out Sunday, and hello back th’s following week. I’m so ready for Spring! I’m in process of meeting with pain management doctor soon. I see my sickle cell doctor dis week. Haven’t seen him in months, was need to get my crisis under wraps. I’m at the point I need drop my primary doctor a.s.a p. Dont want to stress about it while recovering. I’m Praying I don’t have see inside hospital unless it’s for blood work or surgery. Pray all is well with each and everyone of you all. I got Bless with some good doctors and nurses. Remember I said doctor, I go to the other hospital that my doctor not connected with..Thank GOD. I’ll end post here so I can get some rest. But before I do, count is up, oxygen strong, so it blood pressure, pulse. GOD is truly good. Lil pain not as bad as it was:)
Day 4, Living With Sickle Cell Anemia
Not sure how to start my post. I have been sick since Christmas Eve. Didn’t want go E.R are miss bn my family for the holidays. I finally decided to go to E.R Saturday after Christmas, long as my count was good, they didn’t keep me. I thought I was getting better and ended up worse then Christmas. Two more hospital visits before I was bless with doctor who knew what to do when it comes to my illness. Tuesday morning, I was brought back to E.R, but what a wait cause hospital was book. I know I cried so much that the pain got worse every time. 6 hours waiting to be seen. once I got in back, it went smoothly. Had a good doctor and nurse. I couldn’t walk the first few days. I can walk a lil now but legs still bothering me. I got two units first day here, didn’t work as soon as I got it. Brought my count up to 9, has drop to the 7’s now. Praying it doesn’t drop anymore. I’m still here cause of pain n count dropping. Hoping go home tomorrow but only time will tell. I’ll end it for now and share more at another time. Pray everyone had a good Christmas and New Year. GOD Bless
My Life
How can I speak…
when I’m only one
person…
You seem to look…
at me crazy…
Cause of the pain..
and you don’t understand…
Yes,
I’m one in a million…
So many of us or losing..
the fight…
So thankful for the one..
who fought with me..
You may not hear me…
But I know many hear me..
and join me to fight for our..
rights..
Do you hear me?
I hate to yell but hell..
my pain is that intense…
NO act..
over here..
We want Justices…
done…
We tired of been
mistreated..
some die in pain…
because of the abuse from
the one’s…
who supposed to help us..
Do that make you all happy?
see so many dying?
Technical I’m not finish with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month, since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think. The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for cure for us.
Living With Sickle Cell Anemia
Hey, welcome to my world! A very short post. I have been under weather lately. Blood count is good n praying doesn’t drop anymore. Had a follow up doctor appointment today. Over weekend got so bad couldn’t walk r stand. My ankles had swollen up. If it’s not one thing it’s another. My arms and hand hurts, which make it hard to type. I do read when I get the chance, hoping to have update with more information. Please do keep me in your prayers. God is good all the time:) I pray all is well with you, you and YOU:)
Updated
Hello and Welcome to my world. I got out of hospital the day before the 4th. Blood count had drop 6.5, but I wanted to be home. I’m off my steroids. I had stop taking them before I was cleared. But got the lovely news while in hospital. Had good nurses and my doctor wanted to be on his P’s and Q’s. Surprise me cause I was ready to get rid of him. I’m doing better then I was…Headaches are giving me hell. But I’m pushing on each and everyday. At the moment me and bro staying at parents house, we currently having plumbing problems. I’m missing my peace and quietness. I had update doctor appointment, since been out of hospital. It went good, blood count went up tremendously:) I just wanted fill you in what’s been going on since I been quiet. As of right now I’m not feeling my best and don’t know what’s going on. I’m trying to see how long I can stay out of hospital. Please do keep me in your prayers. Many Blessing:)
Living With Sickle Cell Anemia
It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER! I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.
Day 4-6, Living With Sickle Cell Anemia
Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids! Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so! Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

