Tag: sickle cell

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, fight, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Thoughts!!!!

Living With Sickle Cell…

Posted on by poeticjourney

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Am I really living? Came to conclusion Im not. I have stop doing the things I love. I have stop moving to my frustration to be better. I realize its time get out my comfort zone! Enough is enough. If we dont live now , we wont
be able live later 

Just wanted share some thoughts that bn on my mind lately. Stop letting stuff hold you down. Release anchor from your life and live.

Dis my month shine: Sickle CELL AWARENESS MONTH.  . I have bn in out hospital for about a month.. .Till next time do stay bless;)

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.

Posted in 2014, Death, Health, Journey, My Journey, poem, Poetic, Poetry, Sickle Cell Anemia

Warriors

Posted on by poeticjourney

So many fighting diseases behind
Close doors…
Breaks my heart to hear
So many losing the battle…
You see our smile,
But not know our pain..
Fighting to live..
Holding back tears
So many warriors dying
From sickle cell, lupus, ms, cancer
And so many other diseases…
I never consider myself a warrior
Warriors coming out the closet
And letting the world know
I’m not a shame, my disease isn’t me..
Warriors are the ones,
Who keep moving when the
World has turn there back on us…
Warriors
Keep marching to our heavenly
Father call you home..

4/10/14
PJ

Dedicated to so many falling warriors. Quit judging when you don’t know the whole story! God Bless.. Feel as if I can add more..

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDToday isn’t a good day. I’m so not enjoying the weather. Taking one day at a time, is easy said then done, when your body is screaming pain every which way. The E.R did call and check up on me yesterday, asking if I was feeling better then then day before, I told them no. I’m trying hold out to Tuesday, since I see my blood doctor. I don’t know if I can do that right now. My labs may have came back good, but my body is telling me another story, I don’t know what more to say.  I was glad I didn’t have a long wait Friday, only thing I didn’t like is the medicine they gave me. Seems my headaches are getting worse, migraine medicine not working anymore and I don’t want to up my doses to 100. Me and hospital seem to be at Whits in st the time been. My whole left back is either sore. I can’t lay on it, or touch it. I have pain shooting up. And my left arm is doing the most. Sighs… IMA love it when I have a day or even a week with of no pain. I’m on break to Wednesday, so thankful for that Blessing….

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia…

Posted on by poeticjourney

thumbnailSCDHey Everyone, And welcome to my world, basically a update from my two checkups. Not good updates, but hey I’m still alive, so I can’t complain. Right now Im waiting on phone call, on my blood work, lets just say I wasn’t happy about gettting stuck by a person who didnt know what they was doing. Bad enough my doctor was on vocation and I had lady who didnt know what she was talking about, so ummm she didnt order all the blood work I need’d. So I got a feeling when I do get a call, Its not going to be a good one. Makes you wonder why give me a appointment when the person I need to see when they on vocation? I don’t believe she like my attitude much, if you come in talking like you know everything I had while I was in hospital.. You already on my bad side. Sighs…

 

Primary doctor update didn’t go so well either, I had to wait awhile just to be seen… Add’d more poison to the list, for me to take. Since everything I eat, makes me feel uneasy, now I have ear infection on top of that. Im debating on taking more meds. My headaches have gotten worser, and trying to go to school with them is no joke. I dont want my meds up, because I would sleep all day,and I do enough sleeping as it is due to my health. So I believe I didn’t forget anything, if so I share in another post when I have another doctor appointment next month.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

Will be short post, haven’t bn feeling my best for three weeks now! Trying to stay on top of my studies, and praying not to get sick. I truly hate this time of the year, not good for my body. Actually made doctor appointment today for my headaches, they have got worse making it hard to focus. I’m in crisis as of now, but blood count is holding its own. Honestly if I tend to be in pain I may have to do some hospital time. Its taking a lot out if me to do the post, so ill end it here and pray all is well! God Bless:)

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