Posted in 2017, AWARENESS, Cancer, fight, God, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness, Update

Chemo Meds? (hydroxyurea)

Hello World,

604290265As I mention a few post back about meds they have me on and I would stop taking once again. Every since I  stop taking, I done had less and fewer headaches.  You would think they would have come out with meds just for us sickle cell patients instead of pushing the chemo meds unto us. I done tried these meds like three different times. I am damn if I stay taking it and not feeling my best. I have read the good and bad with the meds. But all I see is the bad, to be honest. This med can cover up the fact you be in crisis by making your levels look good when you not. It can make you lose your hair and also cause you to have cancer. And much more side effects. Oh yeah to top if off you not suppose to touch the meds without gloves, but they want us to take it?  Ding Ding Ding, where the good at people? I don’t see it are either I just don’t care for the good. Some of the so call doctors only want to pump us with meds just to get us out of there faces. Last year I had some problems with E.R doctors. They didn’t want to do they damn job and could have cost me my life. I was seen in E.R over 10 times in one period of a month. My retic was high as I don’t know what came down to it when I was in full blown crisis, my counts were low as heck. I don’t know how I walk in that hospital but I knew for a fact I wasn’t walking out of it the same day. I was so thankful to have good E.R doctor that day. And I was on and off that meds at the time. How am I suppose focus if my head feels like it wants to explode into next week? How do you make time with your family count when all you feel is downright awful? So many questions and not enough answers. I have two doctors that’s, not in my area, but I hate to have travel long way when I’m hurting. Sitting too long in a car is so painful. You don’t have to have a sickle cell to understand where I’m coming from with that.  I have been on Folic Acid since I was young and to be honest, I rarely take that med every day than to take chemo meds that give me more problems than it should. What do you do when you done gave it chance after chance, you throw in the towel with the meds and move on and live your life as best as you can. I’m either nausea all day are drained and just want to sleep. Why not correct a med just for us that may do more good than bad? It’s bad enough we having a fight with our body on the inside, but it would be nice to know someone was out there creating something to help us along this journey to live instead of giving up the fight as so many of us have. It is even nice if someone was creating a cure for it as well. Yes, I know only God can do that, just hurts to read so many losing the fight. Until next time God Bless 🙂

Posted in 2017, AWARENESS, Cancer, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

Good Morning World,

 

I pray all is well with each and everyone of you. It seem I always find my way back later then I would like to blog and check in with each and everyone of you all. We already in month Feb, be over soon. I love that its a short month to be honest.  I really don’t have much to say.  I just bn taking one day at a time and process of still looking for primary care doctor, everytime I think I have one they don’t take me for whatever reason. Since the last I posted my dad have started his treatment. Which is up and down days and he truly believe its helping. Such good news to hear from a love one. God is truly good all the time.  He needs 2 units of blood since last visit for treatment a few days ago. He goes twice a month and come home with it and let it run its course. He such a strong man, but trust even the strongest have they moments. Good be prayed up. I have had two er visit and lets just say the first one went good. The second one not so good. I already hate the hospital that’s closer to me because half the doctor don’t do they job. Just cause they see a black person come in with sickle cell they think the worse. And half do they job, but I plan on doing complaint to take care of that situation. Enough is enough and I do mean enough.  Sad say its not just black disease and till some go back to school and learn how the handle the disease a lot more of us are going to die. Im tired waking up every day and hearing how we lose another warrior. It piss me off. I know we all die but to see they tried get help and to be treated like animals just make my skin crawls.  I believe going to end post here before I work myself up over stupidity. I pray all is well with each and everyone of you all.  Hope to check in real soon to catch up on comments and blog post. Thank you all for staying with me and for the one’s that just join and I know I havent bn posting much.

Posted in 2017, Cancer, Faith, Update

Update

​With everything going on in my world…. I have thought about writing for the  past few weeks but just didn’t have it in me.  But I’m finally making myself, but pushing myself to do better. With today society, you need a place to escape to. My dad will start treatment in few weeks. I’m nervous and thankful.Deep down I know he going fight dis cancer. He got a port about week ago. Its weird having my dad ask about different things, about port. A few weeks ago we had a scare. He went to get registered for surgery day before. But EKG showed us his heart was off beating fast,so he had spent few days in prison. They got him on new meds for his heart. His truly a strong man. I been dealing with my illness best I can. I have no primary doc at the moment. Looking for a new one. Ionly had two er visit so far dis year. The hospital close to my parents I hate. They feel if your counts good they won’t do anything for you. I have lost faith in the medical field. You suppose help us and not judge us. Then when we die in your care are lack of. You don’t give a damn. I had got really sick back in October. I w as going back and forth to er. Retic was high, but counts OK. Oh you making new blood cells. Which was damn lie. Last time I had went, they did t recheck counts. Few days later. I w as in full blown crisis and couldnt walk, so thankful I had a good doc working and on my team. Now a days I try and tough it out, and yes I knoe that’s not good. Anyways away from that. A new year and January is almost out. Wow.  I hope each and everyone of you is well.. I will have another update soon. So much say and do. I need get with it. I’m trying go back school and finish my last year. Anything that keep me thinking and not stress about what’s going on around me. When will stop habiting and judging and just love? So much hate going on around us. I believe I’ll end my post here. I pray everyone is well. God Bless.

Posted in 2017, Bless, Cancer, circumstance, Journey, Pray, Update

New Year  (2017)

Good Morning World,
I pray all is well and that we all made it in the New Year. God is truly good all the time.. I may not be feeling my best, but thankful see another day/year. It’s raining where I’m at. Love rain long as I’m not in it and that it don’t interfere with my sickle cell. I hoping to make 2017 better year than the last. Only God knows what we can handle and what we can’t. Idk after receiving some bad news my body is preparing me for big crisis. You don’t expect your love one received bad news that they have cancer. You think they unstoppable. My dad  (man of God) as yell know I’m PK. Was sick for few months, after Christmas he finally went doc to receive some news we wasn’t expecting. .ulcer or cancer and his labs was lower then mine for the first time in my life.. he needed to be in hospital receive blood.. my God we could’ve lost him.his counts was 4, and he was still thinking about going work.. me and my brothers and mom talk him into going hospital. Tests was done, he got blood soon as he hit floor. So thankful for people who give blood save so many people lives. He came home yesterday. I had wait till he made it home find out what’s going on. Worrying doesn’t do well with sickle cell person.. colon cancer we don’t know how serious till tuesday. I heard it spread more before leaving hospital.. I want scream, cry but hell that’s not going make it go away. I’ll have finish post another time. I pray yell r doing good. Remember tell your love ones you love them. You never know. GOD Bless 

Posted in 2016, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

Good Evening,

 

wp-1458744164813.jpgI pray all is well with each and every one of you. I hope y’all having a good Holiday. I know I been away a lot. Every time I think I’ll return, something comes up with my health. I have bn having crisis in my hands for a month now. I’m right-handed and that’s the hand that been giving me trouble lately. I did have a good Thanksgiving. I know awhile back I had mention a death in the family and soon after we lost someone else. Its heartbreaking when you lose you child by another person hands. I wont go into detail about it.  Ended October I was admitted, I was really sick. COunts had dropped tremendously . I haven’t bn that bad in over a year. I couldn’t walk and lets just say not talk either. I did a lot of crying and screaming. I was in hospital for over a week and few days. I can’t tell you when the last time my sickle-cell had me down that long. Im pretty sure if I read thru my blog It would let me know.  I had to have two units of blood, I was running fevers but no infection so they say. Im just so thankful I got the blood. It had bn awhile since I had blood. Im thankful for that. God is truly good all the time.  Im hoping to be back soon if not before year out. Making 2017 my year . I miss blogging and writing as well.  Thank God for voice..   I hope to fill y’all in with more update soon. Right now Im in process of looking for new place.  So we all know how that can be. I hope to catch up on blogs . I have read each and everyone of your comments, just haven’t had the time to accept and comment back.  I love the holiday to be able to spend with my family. Thanksgiving and Christmas. Christmas I love the movie I get to see since end of October.  I spent the whole week of thanksgiving with my love. She is growing up so fast. where does the time goes. Im hoping to return to my love journey post very soon. I so miss them but have bn saving my thoughts to share with you all. Im hoping be able to try to get something publish in the new year, only God knows.  Until next time I pray all is well with each and everyone of you all.  Merry Christmas and Happy Holidays. Please do be safe and remember to let your love one know you love them every chance you get. Never know when its your last time on Earth. I don’t know it seem like every time someone look around someone losing someone. So I had mention it. God Bless

Posted in 2016, Health, My Life, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

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Hello World,

I wanted to update you all on my condition. I’m feeling better then when I came in. I’m not fully pain free, just thankful I can move a little bit more and on my own. My counts or 7.2 and retic is 10. Ill be getting labs early in morning and will let you all know what’s what. I have a good doc and wonderful nurses taking care of me. Hopefully tomorrow I can make post longer. Ty for kind words and prayers, truly means a lot. God Bless

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, fight, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Thoughts!!!!

Living With Sickle Cell…

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Am I really living? Came to conclusion Im not. I have stop doing the things I love. I have stop moving to my frustration to be better. I realize its time get out my comfort zone! Enough is enough. If we dont live now , we wont
be able live later 

Just wanted share some thoughts that bn on my mind lately. Stop letting stuff hold you down. Release anchor from your life and live.

Dis my month shine: Sickle CELL AWARENESS MONTH.  . I have bn in out hospital for about a month.. .Till next time do stay bless;)

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.