Tag: My Journey

Posted in AWARENESS, Death, fight, Health, hear me, My Life, poem, Poetry, Sickle Cell Anemia, Sickle Cell Awareness, Thankful

My Life

Posted on by poeticjourney

How can I speak…

when I’m only one

person…

You seem to look…

at me crazy…

Cause of the pain..

and you don’t understand…

Yes,

I’m one in a million…

So many of us or losing..

the fight…

So thankful for the one..

who fought with me..

You may not hear me…

But I know many hear me..

and join me to fight for our..

rights..

Do you hear me?

I hate to yell but hell..

my pain is that intense…

NO act..

over here..

We want Justices…

done…

We tired of been

mistreated..

some die in pain…

because of the abuse from

the one’s…

who supposed to help us..

Do that make you all happy?

see so many dying?

Technical I’m not finish with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month, since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think.  The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for cure for us.

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

image

I have some good news to share, where should I start. Yesterday I got okay come home or stay another night cause of xray of my arm. Must say blood test came back false, no steroids.  I’m so excited! God is truly good:) maybe later on u have to have another xray to make sure I don’t need surgery. I must admit hip surgery is more for me then shoulder!  It won’t be long post. I did enjoy seen my lil lady,  not happy on
cold weather.  I’m praying I don’t have set back. Hope all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Hey and welcome to my world. I must say I’m not home yet, which I had got my hopes up on going home. I’m praying for tomorrow.  Still in some  pain, but not as bad as when I got admitted. So thankful for all the comments and prayers, truly touch my heart:) blood count came back up on its own, and guess what dropping slowly but surely. I have to be put back on steroids,  and nope not happy about it. If I don’t take them it could do more harm then anything,  but honestly I believe it make me sick at same time. I hope I can get some rest in a few.  I believe I shall wrap it up and try get comfortable.  I  have had some good nurses dis time around,  which is a plus. I hope all is well with each and everyone of you all.  God Bless

Posted in AWARENESS, Children, Health, Heartbreaking Story, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hey Welcome to my World!  I Had to make a trip to hospital. Monday I came and got fluids and meds,  find out I was dehydrated.  I take it Tuesday must got the best out of me. Rain isn’t good for me. I woke up Wednesday morning in pain from head to toe. You can only imagine how I was feeling at the time. I hate coming to E.R you always got to wait forever and a day. Doesn’t matter how early you come in. I had bad experience Monday when I came in. The guy half did his job, and four people that got here after I did. I’m wondering wdh going on.

My count is dropping slowly.I’m still in pain, but not as bad as it was when I came in Wednesday. Be a lovely thing if I had no pain whatsoever.  What dis cruel world coming to. 8 year ole find dead in ditch with nothing on. So many people trying come to terms with such heartbreaking news.  Praying for the family. Well believe I cut it short, pain and sleep. I pray all is well with you all. God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.

Posted in 2014, heart, Love, Love Journey, My Journey, poem, Poetic, Poetry, Woman

Broken..

Posted on by poeticjourney

You broke me….

even when I felt..

like loving you ..

was a waste…

of time.

I’m a broken woman..

on a mission..

to erase you…

out my heart…

I’m running away…

from my feelings…

When I should be ..

putting them in a box…

and digging a hole…

to place them in…

You broke me…

You destroyed me…

I’m tired of been ..

punish for loving..

a fool…

If anyone every said..

love was easy…

It’s a lie…

I’m a broken …

woman..

Whose heart been..

tumbling over….

I just want to erase…

the memories of..

Me and You…

 

7/31/14

~PJ~

 

Do enjoy and let me know what you all think, its dedicated to my love journey. God Bless 🙂

Posted in 2014, Health, My Journey, Pray, Sickle Cell Anemia, Update

Updated

Posted on by poeticjourney

Hello and Welcome to my world. I got out of hospital the day before the 4th. Blood count had drop 6.5, but I wanted to be home. I’m off my steroids. I had stop taking them before I was cleared. But got the lovely news while in hospital. Had good nurses and my doctor wanted to be on his P’s and Q’s. Surprise me cause I was ready to get rid of him. I’m doing better then I was…Headaches are giving me hell. But I’m pushing on each and everyday. At the moment me and bro staying at parents house, we currently having plumbing problems. I’m missing my peace and quietness. I had update doctor appointment, since been out of hospital. It went good, blood count went up tremendously:) I just wanted fill you in what’s been going on since I been quiet. As of right now I’m not feeling my best and don’t know what’s going on. I’m trying to see how long I can stay out of hospital. Please do keep me in your prayers. Many Blessing:)

Posted in 2013, God, Love Journey, My Journey, poem, Poetry

My heart has been unlock

Posted on by poeticjourney

You amaze me, in more  ways then one, i was broken and the way you showed me compassion i haven’t seen in long time. I tried so many times to not have feelings, your smart mouth pull me and won me over…
You was gentlemen, you made me smile and help me to heal and move on. I love the fact you have a relationship with God, such a beautiful thing for a loving soul. Don’t get it twisted we will have our moments and trash talk one another. But long as you know my heart and how im feeling
I can chill with keeping it to myself. I usually just let it pass me, but i believe you are one of a kind and hate to miss my opportunity,
To such a loving soul. When God made you he truly design you to do wonders. I believe im digging you more then i want to admit.

8/29/13
PJ

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Will be dedicated to love journey,and hoping to come up with title once I get some sleep. Its truly dedicated to new chapter in my life. Enjoy and do let me know what you think. On that note, God Bless and Night

Finally got a title of the poem with help of my bestie! Shout out to her. 8/31/13

Posted in 2012, Love, Love Journey, My Journey, poem, Poetry

You showed me

Posted on by poeticjourney

You showed me love
The same way you showed me heartache.
You showed me trust
The same way you showed me how heart less you can be
You showed me all of you
You destroyed me
I was willing to give you all of me
You showed me that you wasnt worthy
But most of all you showed me I could love

12/15/12
PJ

Actually wrote it last month while going though somethings and dealing with health and studies. Truly dedicated to my love journey and perfect for the new year! Do enjoy and God Bless 😉

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Recovering/Information On Disease

Posted on by poeticjourney

I seem to be stuck with cold ever since I got out the hospital and can’t get rid of it for some odd reason. I never had this problem before getting over cold. The New year is almost here and have two new doctors to see coming up in a few weeks. One is for my headaches I was getting all the time. I don’t get them as much right now, which is a good thing. But after doing more searching about my disease and learning about why I could be having headaches everyday. I learn something that  I didn’t know that it could be cause of a tumor. Since I’m the only one in my house hold with my illness, its good for me to study on it and learn as much as possible. You do know with seen the different doctors I do have, they never mention anything about me having tumors. I don’t know if that a good thing or bad thing, part of me make me think they don’t believe it could be that serious for me and then other is they probably know I can’t handle no more awful news. Also the other doctor appointment is about why I have so many antibodies in my body. Since its hard to find my blood type, I like to say thank you to each and every one of you whose been praying for me and still praying for me and who donates blood or know someone who does. Last time it didn’t take long to find my blood type. I was so happy! I was just in the hospital that long because of a slow ignorant doctor. Seem like he don’t know how to talk to a lot of people’s, and think people s have to take his lip and attitude. Thats a negative! Hey my mouth is working process.  I had a good  Christmas, wasn’t down in my body or stuck in hospital, did have a doctor appointment before Christmas. It went sorta good and sorta not. Yay for getting took off one medicine and boo for getting put on a new one that suppose to be better for my headaches. If you don’t take medication on every day basic, you or truly bless, and don’t ever take it for granted.  If some had read up on my disease because I havent made it back to do all that good stuff. That post should be up sometimes this week. Different ones with my disease can take the medicine to help them have less crisis, but to be honest I never really needed it before I got put on it when I was younger and it didn’t;t agree with me. I almost died in 06, so that’s when I got introduce hydroxyurea.  I usually take Folic Acid, that been working for me every sense well shoo forever. Seem like I’m everywhere with my post today. I’m pretty sure more to come this week, hate to bore all of yall in one post. 🙂

 

 

I do love all my followers, you have truly been a BLESSING to me on my JOURNEY, can’t wait to see how 2012 goes for us. Many Blessings to each and every one of you, like to welcome all my new followers, and say glad to have you on my JOURNEY, can’t wait to get to know each and every one of you as the year goes out and as the new year comes in. God truly knows what he doing when he seen certain peoples in your life that you never expect to make a mark on you.