Tag: journey

Posted in 2017, fight, Journey, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

Good Morning,

Hey World, it’s been awhile since I posted.  I have been resting and spending time with family as well as clearing my head with different things going on. August wasn’t a good month for me. I had to make er visit and let’s just say it wasn’t good whatsoever. Had doc appointment following week. Er, visit what can I say, it was hell. They wouldn’t access my port, are oxygen is given me fluids. I got stuck like 6 times just so they could get my labs. I got a pain shot and let’s just say it didn’t work. Finally, after waiting and being in pain they wanted to access my port and give me fluids.  Retic was high but counts was somewhat OK and not truly explaining why i was in the pain I was in.What the hell. I rather suffer then step foot in er.  The following week my counts wasn’t good. If they had did they job right the first time. I decided to tough it out because I’m never prepared when i have doctor appointments.I didn’t think my post on rant and frustration got much attention. But wow Twitter and here has been going off and on. I guess my words are reaching people. September is sickle cell awareness month, I have been debating on sharing. Frustration knows how to get you. I got tired of reading are hearing another sickle cell warrior has died. I even got to the point I didn’t want get close to anyone else. Yes, I know we all have die.  Coming to term to enjoy life, and not worry about death. I pray all is well with each and everyone of you all. God Bless

Posted in 2017, AWARENESS, God, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

Good Morning World,          
I know it’s been awhile since I last posted. I have bn busy trying find new primary doctor, taking care of myself at home without er visit. It hasn’t bn easy, but haven’t been in one, in few months. Before I forget hope everyone enjoyed Easter. And we all know the real meaning of it. So I won’t go there right now. I’m not feeling my best at the moment. I have appointment with m hematology doctor Monday, just trying hold out till then. Pray for me please and thank you. Well good news I find primary doctor and cant wait meet her next month. I’ll make another post on that. Hopefully Monday I’ll have good news on what’s going on with me. Usually my counts drop some. It hasn’t been in 8’s for a few months now. In December I had stop taking meds that would help lessing crisis and E. R visit. I had the worse Christmas ever. I was in bed most of the day. My head felt like it wanted explode. I ran fever as well. I refuse I was going go to hospital another christmas. So when saw sickle cell doctor two months ago, they put me on it again but took it down 3 instead of 4 and lesser doses. I hated the meds years ago and I hate it now. Let me tell you I don’t know how much longer I’ll keep taking it. Right now I’m still having headaches every day. Not sure if it’s from meds are I’m getting sick. I truly have miss blogging. I have started writing again, I take it I have been bitting by writing bug. I can finally express myself the way I should and deserve. I pray all is well with each and everyone on you all. God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.

Posted in 2014, Faith, God, Journey, Love, My Journey, poem, Poetic, Poetry, Strength

Against All Odds

Posted on by poeticjourney

I learn to fight
I shed tears, question
Myself if I was meant for
These journey with Warriors
Against All Odds.
God showed me just how..
Strong I was to be Warrior..
He knew what he was doing
When he created me
Against All Odds .
I showed strength, when I wanted
To give up
God showed me love…
In the midst of storm
He showed me I’m nothing
Without him..
Reminded me to hold on to
Faith…
Against All Odds..
4/18/14
PJ

Dedicated to my journey of life. No matter what you going thru his right there in the midst! Don’t stop fighting/ believing in him..No matter my odds, God had everything in control… Not sure if I’m happy with this piece, do let me know what you think 🙂

Posted in AWARENESS, family, Friends, God, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello Everyone,  I’m finally home, been home for a few days now, spending time with my love one’s. Getting much rest as possible. I must admit I’m so glad to be home, so can’t wait to be feeling my best. I usually would have this post up already, but still not 100 percent. I’m hoping sometime this week to know if my blood count has went up some more. Before I left it was still in the 5’s and we all know that’s not good. I must be honest with you all. Only Lauren knows whats going on with me. Right now I’m not doing good. I was supposed to have surgery on my birthday to have hip replacement, due to my illness. But that’s when I find out I had warm antibodies in me, because I done had so many transfusions, that’s why I can’t have anymore right now. I have been on the meds for over a month,and there not doing anything for me. I’m getting a lil discouraged, I must admit that to you all. I have been at my lowest last week and wanted to throw in the towel. I don’t know if it’s because I was just tired because of my health, and everything just wasn’t going my way or just cause the devil was just trying to get the bet of me. I believe it was a little of both. I’m not thinking that anymore. I know God isn’t finish with me yet, I’m here for a reason, so I need to continue to hold on and continue to fight to he calls me home to be with him. I’m so touch and feel so much love by all of your comments and prayers, it truly meant so much to me. I got to many visits from family and love one’s and calls from my best friend and TN, y’all thank you for praying for her mom her who had a stroke, she is doing so good. She has been there for me and so has her brother. They  have been keeping me laughing and if I couldn’t sleep staying up with me, and just praying for me. I couldn’t ask for two great group of lovely souls than them two. God knew what he was doing, he knew I couldn’t have that surgery for a reason on 5.21.13, I had to overcome this obstacle last week, and I can’t wait to im fully over it. I can’t wait to I can share more with you all. I need my rest and to stay on top of my studies, you all know how much I hate to be behind on my studies. God is truly good. I want to say thank you again. Thank you for joining my JOURNEY, and been part of my blogging family. I pray all is well with each and every one of you. God Bless. Sending love and hugs to each and every one of you. God Bless 🙂

Posted in 2013, Journey, poem, Poetry

Who Am I?

Posted on by poeticjourney

I’m trying to find myself, but it seems I’m broken.

Everywhere I look, I lose the courage

to pick up the pieces

I once look into the mirror

and broke down, because it wasnt my reflection

I’m trying to find myself….

Who Am I?

I’m Broken

Tears seems to fall, as I gather my thoughts together

I’m afraid to share my life with someone

because they wont understand me

I feel like im damage,

I feel like I cant do it..

I feel like I’ll just crumble

What happen to the woman

I was,

I stood strong,

I layed there and let him break me down

I don’t realize just what kind of hold he had

I’m so broken,

devastated

Who Am I?

Im Finding Myself

6/9/13

PoeticJourney

Actually got inspired to write this poem from a dear friend: http://glimpsesofred.wordpress.com/, and I put some of my own thoughts in, I left it to end like that because I plan on coming back with poem to finish it out. Sometimes we let different things take over our life and not realize it and it tend to get the best of us. Do enjoy and let me know what you all think. God Bless 🙂

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