Posted in 2019, AWARENESS, chronic illness, God, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Good Morning and Welcome to My World. It’s been a while since I posted about my illness. I’m trying to do better. Today isn’t a good day. Not feeling my best. I don’t know if it’s the rain or the season change that got me hurting. Usually, I tend to go in crisis around this time every year. I have been avoiding going to the ER. I may need to put my big girl undies on and go and get check out. I had a doctor’s appointment last week. I didn’t really get blood work done and wasn’t feeling my best then. They were more concern on a check-up from the last visit when I got admitted for 8 days. And make sure my kidneys are good. No news is good news, right? She would have called me and let me know what’s what so I’m glad they are ok. Last time I went to ER let’s just say the woman nurse practitioner was an idiot. My counts were in the 7s so she going tell me I wasn’t in a crisis and was going to discharge me. I look at her and said fine. Just cause my counts shows and looks like that don’t mean anything. Let’s just say I stayed in a crisis for two whole weeks. I made sure to call sickle cell clinic to let them know what was going on and for my pain meds. I tend to go without them but when pain is bad I let them know. She wasn’t happy about the woman saying I wasn’t in crisis. The month of July did a number on me so I was trying to go cold turkey. I don’t see doctors till next year. I’m hoping I don’t need them till then. God has been good to me even on the days when in fed up with the pain. I’m thankful. I’m also thankful for y’all sticking with me, as well as the new people who have to join my journey. Bare with me, haven’t forgotten about y’all. I did read a few posts a few days ago. It’s going to take longer when I’m taking meds for my pain. Until next time. Pray all is well with each and every one. God Bless

Posted in 2019, Encouragement, Journey, Motivation, Trust, Word Of Wisdom

Word of Wisdom

Embrace the pace of your own journey. #TrustTheProcess #YouGotThis

Good Morning, God is truly good all the time. Pray everyone week started off good and today is even better than yesterday. Still, not my best, seem I’m losing my voice. New meds gave me dry cough but seen maybe turning into summer cold. Yes, yes I know summer doesn’t arrive until a few more days. Lol! Pray message speaks to someone, sure does speak to me. God Bless

Posted in 2019, growth, Heart, Journey, Love, Love Journey, poem, Poetry, Relatonships

Happy Anniversary

Happy anniversary

Time to celebrate yall love

Time to celebrate yall journey.

The way shows young folks.

What marriage all about.

Happy Anniversary

Today is your day

Let’s show the world

What vows all about

Time to celebrate

Yall love

Happy Anniversary

Yall love is for a lifetime

Thru the ups and down.

Time Celebrate true love.

Happy Anniversary

4.15.19

~PJ~

Day 15, a poem dedicated to my parents. They have been married for 37 years. Do enjoy and God Bless

Posted in 2019, Christian, Christianity, God, Journey, Spiritual Word Of The Day, Trust, Word to the Wise (Spiritual Word Of The Day)

Word to the Wise (Spiritual Word Of Day)

You have to trust that even if your journey doesn’t look like you want it to look—that would never stop God from doing what He has promised to do! #WayMaker #RestInHisPromises

Good Morning, God is truly good all the time. Pray everyone had a good weekend and message speaks to someone soul/heart. God Bless

Posted in 2019, God, Journey, Lord, poem, Poetic, Poetry, Trust

Use Me

We need to learn to shake the devil off. No matter what he throws our way.

Get on your knees and pray.

God do you hear me.
I know it’s been a while,
but I need you.
I try to handle stuff on my own.
Dear Lord
I need you.
Down on my knees crying out.
I’m struggling on my journey.
I’m drowning
Dear Lord

I need you
I’m sorry
for not trusting you when things got rough
Dear Lord
I’m in need
Of your blessing
Of your healing
I’m drowning in my sin.,
Dear Lord
Do you hear me
I can’t do this journey without you
I’m down on my knees Crying out.,
Yes, Lord, I hear you
Yes, Lord
Yes, Lord.
Use me, Use me, Lord,

I want to do your will
Use Me Lord.

2/10/19

~PJ~

Posted in 2019, Love, Love Journey, Love Lesson, My Love Journey, Relatonships

Love Lesson

When starting a relationship. Do you believe and think its best to be friends first are just jump in head first.

I believe in getting to know a person and becoming friends. Its good have a bond with someone. Knowing the good and bad. Some say friendship is good because you learn the end and out of the other person. You grow as a couple and some may think it’s not good. You could run them off once they get to know you. Some may see the ugly and not want to put up with it for a lifetime. Some may see it and love it and know how to handle it.

Why jump in head first without thinking. Some may succeed in that kind of relationships and some may not. Makes me wonder is it safe to do relationships that way. So many questions running thru my mind when I think about starting a relationship without been friends.

Love to hear yall thought and opinion on this topic. Thank you for joining my love journey.

Posted in 2017, AWARENESS, fight, Journey, Life Lessons, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness

Inside my journey

https://www.statnews.com/2017/09/18/sickle-cell-pain-treatment/?s_campaign=fb&utm_content=buffer9f7d0&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer

September is Sickle Cell Awareness and wanted to share the interview from a fellow warrior who experiences same crap I do and many others. Thank You for coming along for my journey. God Bless

Posted in 2017, fight, Journey, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Good Morning,

Hey World, it’s been awhile since I posted.  I have been resting and spending time with family as well as clearing my head with different things going on. August wasn’t a good month for me. I had to make er visit and let’s just say it wasn’t good whatsoever. Had doc appointment following week. Er, visit what can I say, it was hell. They wouldn’t access my port, are oxygen is given me fluids. I got stuck like 6 times just so they could get my labs. I got a pain shot and let’s just say it didn’t work. Finally, after waiting and being in pain they wanted to access my port and give me fluids.  Retic was high but counts was somewhat OK and not truly explaining why i was in the pain I was in.What the hell. I rather suffer then step foot in er.  The following week my counts wasn’t good. If they had did they job right the first time. I decided to tough it out because I’m never prepared when i have doctor appointments.I didn’t think my post on rant and frustration got much attention. But wow Twitter and here has been going off and on. I guess my words are reaching people. September is sickle cell awareness month, I have been debating on sharing. Frustration knows how to get you. I got tired of reading are hearing another sickle cell warrior has died. I even got to the point I didn’t want get close to anyone else. Yes, I know we all have die.  Coming to term to enjoy life, and not worry about death. I pray all is well with each and everyone of you all. God Bless