Hey and Welcome to my world, for some Welcome Back. What a day I had. Finally got to meet my primary doctor and so far I must admit I like her. I’m so not a morning person and I had to be a walk in person. OMG! So had to be there at 8 this morning. Sighs. You guessed it still had wait be seen. Sighs. I hate the doctor office for that reason. Waiting! Got to the back prob before 10. Gave them all my information and told them why I was there. As some of you may know I have a nasty little cold and she orders x-ray that plan get tomorrow after my doc appointment. Since I have sickle cell we trying make sure it doesn’t turn into acute chest or pneumonia. Who knew meds for something else could give me a cough that evolves into a nasty one. In the back of my head, I’m saying duh. Lol. Anywho we made the visit sweet was the student doctor working with her. I’m not fond of students working under nurses or doctors. But she actually surprises me with the questions about how she can be a better doctor when dealing with sickle cell patient. So gave her a few of things I been through and how I have been treated. She sat and listen to me talk. I pray she never change from listening to her patients. I even gave her my blog link. I explain to her so many people still don’t know what sickle cell is. Before actually open up to her I as if she knew what it was she just knew the basic of what’s in the book. You would think after all these years they would update the information. Still not my best but hoping the meds help. Will keep y’all updated as I go. Have Eye appointment tomorrow. Until next time God Bless
Category: My Journey
World Sickle Cell Awareness Day
Today is Sickle Cell Awareness Day. I know I have mentioned it so many times on my blog and the different things I go through with dealing with this disease. Lately, all I see on Facebook is how they are getting treated. Some of yall may have never heard of the disease. Well, today is the day I explain what it is. If you want to know more keep following me on my journey and google as well. I never thought people would care about what I go through.
Whats sickle cell anemia.
It’s an awful hereditary blood disease. You can be fine one minute and the next you not. Years ago we didn’t see the age of thirty. Wow what a mighty God we serve, some may not see that age today and some are seen age all the way up to there 80s. When in crisis is turns your blood into crescent making it unbelievable to move because of oxygen not reaching that area. Normal blood cells look like doughnuts. Let’s be real for a second this is a dangerous disease it affects all your organs. Since its heredity disease. It can affect all your kids are just one or two. My parent had five of us, only two of us was diagnosed with this disease and the rest trait. They didn’t start testing babies to till the late 80s. For some many years, I was told and so many around us that sickle cell was a black disease, I believe it to join sickle cell groups on facebook. Wow, the many faces behind this evil disease showed me the truth. Since 2008 they have recognized sickle cell as a global public health priority in order to raise awareness to sickle cell. With that been said its still not much awareness. So many people still don’t know what sickle cell is. I hope by joining my journey it opens someone eyes and hearts up.
My Love Journey Thoughts
When looking for love and dating. How do yall feel about them calling you sweetie, baby, sexy, etc? I’m not fond of it, just be honest. You don’t know me so don’t come at me with sweet talk. I feel like we have let them pass because we think its cute are whatever reason may be. Sweet talking doesn’t work on me. What happens to talk to the opposite sex with respect? If you correct them they want to call you a female dog. Why should I lose my worth because they have lost their dang mind on the correct way speak to me with some sense. Am I wrong for thinking like that. Fellas how do yall feel about woman calling yall sexy, handsome, etc?
My Love Journey Thoughts
I never saw myself giving online dating a chance. And let me just tell you it’s not all that is cracked up to be. Some of the profiles are a joke and make you wonder why you even here. I have to take many breaks. If you have done online dating what did you look for are should I say did you know what you were looking for.? I ask that because you can say what you looking for and still the crazy ones won’t come at you sideways. I do know what I want, I don’t believe I find him online. But who knows God may place him in my path.
~TO BE CONTINUE~
Living With Sickle Cell Anemia
Hello, and Welcome back to my world. What a day I had. What I hate about doctor offices is to wait. I did mention had an appointment both days. Let’s just say Monday was a waste of time and gas. They went prepared for my arrival and didn’t want to see me because they didn’t have paperwork from the hospital, which I didn’t understand. You knew about for over two weeks. Always away from that. I arrive on time for both appointments. They did apologize but still, I was not happy. You are my primary doctor so it wouldn’t kill you to finally see me in person. Nope, I see my other doctors more then I see primary. Haven’t even met her yet. Yea something wrong with that pic big time. My sickle cell doctor was the most important for me to see. I had called in the week before explaining to them what had happened when I was in the hospital. I wanted blood work and wanted my results. She set everything up for me. Soon as the appointment was over went next door to the hospital to get labs drawn from my port. So back to my appointment, hadn’t been seen since Feb. She was like you good. I know I haven’t mentioned here before. I have changed my diet. I went keto and it has helped me a lot. Kept me out of the hospital. Lost over 60lbs. When on chemo meds for my sickle cell I had gained weight and couldn’t lose it. Then the new meds for sickle cell. It was making my head and back hurt. And I couldn’t deal so I stopped it. I had to first help myself and I have done just that. I honestly did my research for about 4/5 months before I went for it. I don’t have a gallbladder. Anywho back to my appointment.she check my heart and says sounds good. She asks me about meds she wanted me to start last time for my kidney. Told her I hadn’t started it yet. Since my body is doing overtime then a person without sickle cell. So she changes the mg since I’m smaller and started it last night. Never happy about trying a new medicine. So next visit we will see how everything looking. I’m putting it in God’s hand that everything is good and I won’t have to take it forever. I was glad I didn’t have a long wait for a tech come do my port. She was a nice woman and we talk while she did it. I always like to get to know whoever is dealing with me. I hate for my port get infected. I finally got my result around 5 and no new antibodies praise God. White counts were good. Retic little high but it’s be expected since my counts 7.6. It’s the best but it for sure not the worse. Praise God. Also, find out my bones in my back are deteriorating. It explains a lot when I’m going into crisis. Just a few days ago, I couldn’t move because I was hurting so bad. I read other sickle cell patients having the same problem. But so wasn’t expecting I had it. With so many people dying from my illness. I want to share my illness with y’all. Until next time pray everyone doing good. Stay Bless
My Love Journey Thoughts
Does love truly find us in odd situations? Do we find it or go looking for it? Do we wait? I was always told We first got to help ourselves. Is that true when looking for love? Or does that mean we should discover who we are, or get ourselves out into the dating world? Can we truly find love online? I decided to give it a try. I don’t have high hopes for it. It’s good and bad in every situation when dealing with dating. How do you know when to go for it or step away. I’m putting my FAITH in GOD. He’s going to lead me. I also wonder if love could be really for me.
~TO BE CONTINUE~
Getting my toes wet and seen what it’s all about. Join me on my Journey, do share some of your experience are thoughts with me. Until next time. God Bless
To be healed
I had to wait for my heart to heal.
I had to forgive myself
I had to learn to love me again
I never realize the hell you took me
Through
I couldn’t look at myself in the mirror.
I hated everything you took me through
I had to wait for my heart to heal
Boy you broke me
You destroy everything I was.
I had to learn to love me again
I had to have chat with myself
Teach myself you are worthy
I had to show myself
Who I was
That I was worthy
To be love
Boy
You showed me how strong I could be
Once reality kicked in.
I saw me returning to the strong woman
I once was.
I just had to wait
I had to learn to forgive myself
I just had to wait
To my heart heal
And I felt my worth
It was amazing
Feeling
To know my worth
To be loved
The way I loved you.
It’s an amazing feeling
To be healed
4.27.19
~PJ~Day 27. Feels good to express myself more and more after not writing for almost 2yrs. Do enjoy God Bless
My Song
I lay in bed with purpose
Beating in my heart.
I knew then and there
The love of my life
Was in the room with me
Holding me in his arms
You knew I would need you
Before you created me
My struggles or nothing
I’m giving them to you
I’m standing here with my arms
Lifted to you
God Almighty
I need you now
I can look back over
The years and see when
You carry me when I gave up
And died
You breathe life back in me
That’s when I realize I had a purpose
12/1/11
PoeticJourney
Day 23. If you wondering about the title, you’ll see the title more then once. Its actual song titles that spoke to me, and I use them to write my heart. Do enjoy and God Bless 🙂
It’s a repost, that means a lot to me to this day. No matter what you going through. You have a purpose. Do enjoy.
Join My Fight
Trying to make you mine
Want you on my team
I need justices
Are you going to help me
I’m trying to live my life
But nobody seems to want
Help me
We need justices
The systems not for us
All I’m doing is, trying to live my life
So my question
Are you going to help me
Too many dying at home
Cause we not been treated right
When we come in
I need you on my team
I want to live.
You my choice
Please don’t let me down
I want to live
I heard you the one
That fight for us
I want to live
Can you be on my team
4.19.19
~PJ~
Day 22. It’s been a while since I did update on some of the stuff we, meaning other sickle cell patients go thru. It breaks my heart, read some of the treatment others get. Since changing my diet, my treatment has changed. It has got better, but at times I worry if I get the proper care I need when I go into E.R. anywho another story for a separate post. Just in case you wondering this poem goes with my life.
The Past
I don’t want a reason to feel…
I’m tired of going back and forth
About you.
With my heart.
I just don’t want to think about you at all
I want you to stay in my past.
Why why
Am I still thinking about you in my present?
I don’t want to think about you.
I don’t want to feel anything
When you come to mind.
I want you to stay in my past
Where all my mistakes live
12.8.17
~PJ~
Day 20. A blast from the past when came across the poem. Was just telling my friend its good see where I was back then. Seem come a long way. Do enjoy.
Poets Afterthought 