Posted in 2016, Health, My Journey, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Good Evening,

Welcome to my world. I havent  been feeling my best for about week now. Im currently in hospital. This has been my third time over the past few days.. I’m having trouble with my legs. I probably should’ve stayed Thursday when I came in, but I didn’t want be in hospital for Easter.  Lesson learn, I have bn admitted since last night. I’m waiting to see how my counts looking. Thursdays it was 8.6 and retic was 11.  I did have a good Easter with my family. I actually was in good spirits.. no pain so I thought I was getting better. I didn’t get put in my room till after midnight.I was hoping to go dis week without bn admitted. My primary doc is closed to Wednesday. I cant deal with being miserble that long. Going try and get me some rest. Hope all is well with you all. Ill try and keep you posted. God Bless

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless

Posted in 2016, Bless, family, Friends, God, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Hello World,

I have been home for awhile since Wednesday. Blood brought my counts upto 9.5,which is good! I had good nurses and doctors! Thank God! Hoping 2016 be better year, lesser hospital stays..Its been cold every since and it’s already doing a number on me. Night I got out wasn’t all that cold, but i ran fever all way to next evening. I hate winter because it love tortue my body. Im hoping to have schedule days ill post till im done with hectic real life. Seem be on a break with writing and thats not good. I like to say Happy New Year to everyone. I brought the new year in with friends and family at church. My team won 0-38! Sorry about the short post, hoping have a longer one soon. I have doc appointment next week. So hoping that’ll be longer post. Looking to bring my love journey post back as well. Im hoping change blog up soon. I pray all is well with each and everyone of you all. God Bless

Posted in 2015, Blessed, Death, family, God, Health, My Journey, poem, Poetry, Pray, Update

Update

Hello Everyone,

 

I hope everyone is well. I know its been awhile since I posted. I bn enjoying life and few hospital stays. But other then that all is well. Got heartbreaking news today, we lost a love one on my mother side right before the holidays. Always heartbreaking lose a love one, even more heartbreaking when its right before holidays. God doesn’t make any mistakes, that much I know.  I have decided to leave in a few months, I need get away. Part of me feel like I’m running away from certain things in my life, but part of me doesn’t. I need change in my life. I will come home and visit as much as possible. God work in mysterious ways. Im getting the opportunity to get my work publish, so Im excited about that. SO in the new year, I’ll be busy typing up old and new work and trying get everything that need be copyrighted.  I’ll try get back into blogging as much as possible. I have bn reading post and trying to like and comment. I have check up tomorrow with my sickle cell doctor. So I’m hoping for good news, since I haven’t been feeling my best lately. I pray everyone have a good Christmas and New Year. I shall post more or another post soon. God Bless:)

Posted in 2015, Health, Update

UPDATE

Hey All,

I know its been awhile since I posted. I hope all is well with each and everyone of you all. I have been in and out of hospital since last post. I have been writing poetry and starting some post and just stop them. I just haven’t had the energy to post and share with you all. I have been reading ya’ll work. I don’t like or comment all the time. I do miss each and everyone of you all. I’m not here to complain. I’m just here to check in. I was hoping to share a piece with you all but seem to have left my handy dandy notebook at home. I knew I was forgetting something once I step out the door dis morning. I should never leave home without my journal. I still try and write in my phone memo. But I love to write in a notebook/journal as much as possible. So I can have something to go back to as well. I have so many poems I haven’t even finish yet, that haven’t even made it to phone or even a pc or tablet. We seem to let technology take over, but we got to remember where we started when it come to writing. I love to see my thoughts on paper.. All my mistakes, my mark outs..  I have such a busy month, and worry about overdoing it. I have surprise bridal shower Friday coming up and I’m not feeling my best. Next weekend is the wedding reception and I have poem I’m going to read, and super excited about. And for the one’s that been with me from the beginning and know I’m a PK I have a few church events as well. My best friend from middle school is back in town since June and we been spending a lot of time together before she leaves next month for Cali. Fall has come and yes, I have a love and hate relationship with it.. OMG… right now here its beautiful, not to cold or to hot, its just right. First Friday in dis month I paid for the weather change on me and I was in for a few days. Shortest visit for me and must admit I was so excited to get out. I have been on the go a lot lately, trying to enjoy life.. I know a recent post I mention about was I truly living? and the answer was no.. I’m not talking about been crazy, I’m talking about stop making excuses due to my illness.  Right now with the weather going back and far… I’ll be marry to my home once more, just the way it should be :)…  Anyways going to end post here, I know I’m everywhere with dis post..

Thank for all the prayers, comments, likes, and joining my journey. I hope to be more active real soon. God Bless 🙂

Posted in God, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

I know it’s been awhile since I post. I bn going thru it dis summer.. some times I feel like I should give up, but my sense come back and reminds me. I’m here for a reason. God has last so even when we begging to be taking away. I got out Sunday and I’m pain again . I feel like my cold dawn got worse. Voice almost gone. I know when I left counts wasn’t the best, but I was ready.. if I known I wasn’t ready probably stay little longer.  Almost sickle cell awareness month, we have the bold lips for awareness.. wear your boldest lipstick and take pic and use hash tags. A few weeks when i got out,  had get my scripts . The woman behind counter ask me what sickle cell is, hate say I don’t like talking about it. I got get out of that mind frame n spread word. We lost another warrior a few nights ago. One day it’s going be me. I want to touch so many lives and do so much before I leave. I ask myself am I really living, part of me says I’m not. I’m hurting myself. I bn battling with my faith, illness.. I know God got me, no matter what. It just get so tiring when all u go thru is repeating itself.. hope that make sense, half asleep.. I pray all is well with each and everyone. God bless

Thank for riding with me…

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Hello and welcome to my World! I have been in and out of hospital for past few weeks. Back in school so That’s taking up my time, but I’m praying to get back on top of blogging and visiting with you all. The first time in hospital was short stay, blood pressure kept dropping while I was sleeping. Second time was last week of October, seem I have warm antibodies again, and I haven’t had transfusion in awhile. Idk what’s going on, but I’m happy they not putting me on steroids for now. It would do more danger them anything. I have to have surgery in right arm down road. Blood count was dropping.  But no to to transfusion.  I had good nurses… got favorite male nurse, name Denny, such a sweetie. GOD truly bless me with lovely and caring nurses. Had good female nurses as well. My favorite was Nikki:) good doctor as well. I have miss reading y’all blogs and hearing from you all. I pray all is well with each and everyone of you

Posted in 2014, God, Health, My Journey, Update

Update

blogHey Everyone, and welcome to my world.  I haven’t been feeling my best but been trying to do what I can, as of right now. I have made some visit to e.r since my doctor have been on vocation. lets just say them visits’ didn’t go so well. I got sent home every time feeling worse then before. First time I went, had rude nurse practiner… It took God him self for me to hold my peace and not lose it.  Next time to had cool doctor, he explain everything to me on dis visit. Since my blood count looks fine, didn’t see a reason to keep me. He also told me that I know ya’ll can have pain even if blood count looks fine and retic. He tried to do everything he could, but since obamacare everything seems to be difficult to do. Hmm always something. Must admit its getting crazy for me as a person with chronic pain, if meds at home not doing its job. Taking meds and drinking  plenty fluids (water). I guess it a roll into E.R on my death bed then I get treated the proper way. Other then that my plumbing problem is almost taking care of that’s why I’m posting from home. I’m dealing with my nagging headaches, so it’s making it harder for me to post and read like I want 2. So do bare with me. I hope everyone is enjoying there summer, I hate the summer, its hella hot.. And not good for me. Who wants to stay in the house all the time? Looks around not me…  I do pray all is well with each and everyone of you all. So thankful for all who have join my journey. I now I have been slipping big time. So do bare with me, I have been writing, I just need to type it all up so I can share it with  you all.

 

 

I haven’t did update on the lil one’s in awhile. They getting so big and tall. Lil lady is 6 now and Mr. Man is 4. School will be starting soon for lil lady and of course Mr. Man will be going back to Daycare. I must say so glad to be home to enjoy peace and quiet. Maybe my headache will stop. I’m praying it does.. They grow up so fast right? Lil lady have become so freaking sassy its driving me crazy. Nast lil attitude for someone so young. Ha, I think I maybe rubbing off on her with attitude part. Ha. Mr. Man have one as well, and his tantrum is grr… That’s all I’m saying. Nope I’m not missing them whatsoever on this point. On flip side, the MOM who had them finally came home from prison. I must say I haven’t change my mind about her. I need proof that she done change and want to be in her kids life. One visit from my lil lady, she done got worse. Attitude … I already not liking it, but hey I’m not finna stress myself about it.. Another quick way to put in hospital looking crazy… Believe that’s enough update for now…

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Hello and Welcome to my world, I know its been awhile since I did update on everything that’s going on with me when it comes to my illness. I was in hospital last week only for a few days. I don’t know what’s going on with me, I done seen inside hospital to last me 100 years. I have been in bed all day, due to me not feeling my best. I’m actually debating going to er as of right now. My left side of my bed feels swollen and I can’t lay on that side. I been tossing and turning, feels like I have a fever. But I don’t, have ac and fan going . Do bare with me, I do read all comments, just haven’t had the time to respond to them all. Thank you for prayers, comments, hugs.. God Bless me with a lovely blogging family….

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Hey Welcome to my world! I’m home and doing good! I have little doubt and fear in back of my head since I wasn’t supposed get transfusion, but then again I wouldn’t be among the living! Will praying for the best! I know my God got me! My blood count was a 9, after I got blood, it drop to 7.2, before I came home it went back up 7.9! God is good 🙂 I’m still on my steroids, I maybe on them longer, since I received blood against all odds! I’m looking into new primary doctor, I made my mind up on new hospital from now on! I’m touch by all your love and prayers, comments 🙂  it has been 6 months 4 days since my hip surgery 🙂