Posted in 2016, Bless, family, Friends, God, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Hello World,

I have been home for awhile since Wednesday. Blood brought my counts upto 9.5,which is good! I had good nurses and doctors! Thank God! Hoping 2016 be better year, lesser hospital stays..Its been cold every since and it’s already doing a number on me. Night I got out wasn’t all that cold, but i ran fever all way to next evening. I hate winter because it love tortue my body. Im hoping to have schedule days ill post till im done with hectic real life. Seem be on a break with writing and thats not good. I like to say Happy New Year to everyone. I brought the new year in with friends and family at church. My team won 0-38! Sorry about the short post, hoping have a longer one soon. I have doc appointment next week. So hoping that’ll be longer post. Looking to bring my love journey post back as well. Im hoping change blog up soon. I pray all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, Friends, God, Health, My Journey, Pray, Sickle Cell Anemia, Sickle Cell Awareness

Day 1-3, Living With Sickle Cell Anemia

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Hey Everyone,

 

As you can see by the title I’m in hospital, been here every since Christmas Night. So glad I had the chance to spend Christmas Eve and Christmas Morning with my love one’s. I was trying to make it to the end of the month. I was hoping it would pass.  I had to have transfusion today. Blood count had got low, I knew something was wrong since I been having headaches . Its a sign that your blood count can be low or I’m getting ready to go in a crisis. I do hope everyone of you all had a Lovely Christmas. Well better then mine:) I have some great nurses and doctors. So thankful for that to be honest. Last time I was sometime last month, and doctor wasn’t doing right by me. So I left the hospital, and lets just say I was in a lot of pain. I’m hoping to do right by myself dis time around. I’m hoping to go home tomorrow if everything come back looking normal. I’m still in some pain right now. Hoping the blood did some good for me. I try not to get blood, because one day when I’ll need it , it may not help me . Sighs. Well I had warm Christmas, seem the cold front is coming in. Guess its a good thing I’m in hospital now, to prevent all that. But its just cold in the evening time, so it shouldn’t be 2 bad. I’m going to wrap this post up, because I’m getting tired and restless. I haven’t been sleeping much for whatever reason. I always got some stuff on my mind. I know I have check up on the 4 to see how the meds is  doing. I hope good news, but I really haven’t been on them since I been in hospital. Only meds they giving me is my pain meds and not my every day meds.  I must say it truly means something  when you have  a great group of people taking care of you. I even have some nurses coming visit me since they always say I’m a good patient. Makes me feel good when they think that about me. I feel like I be getting on there nerves at times. But I have met some that have became friends.

Posted in 2015, Blessed, Death, family, God, Health, My Journey, poem, Poetry, Pray, Update

Update

Hello Everyone,

 

I hope everyone is well. I know its been awhile since I posted. I bn enjoying life and few hospital stays. But other then that all is well. Got heartbreaking news today, we lost a love one on my mother side right before the holidays. Always heartbreaking lose a love one, even more heartbreaking when its right before holidays. God doesn’t make any mistakes, that much I know.  I have decided to leave in a few months, I need get away. Part of me feel like I’m running away from certain things in my life, but part of me doesn’t. I need change in my life. I will come home and visit as much as possible. God work in mysterious ways. Im getting the opportunity to get my work publish, so Im excited about that. SO in the new year, I’ll be busy typing up old and new work and trying get everything that need be copyrighted.  I’ll try get back into blogging as much as possible. I have bn reading post and trying to like and comment. I have check up tomorrow with my sickle cell doctor. So I’m hoping for good news, since I haven’t been feeling my best lately. I pray everyone have a good Christmas and New Year. I shall post more or another post soon. God Bless:)

Posted in 2015, Health, Update

UPDATE

Hey All,

I know its been awhile since I posted. I hope all is well with each and everyone of you all. I have been in and out of hospital since last post. I have been writing poetry and starting some post and just stop them. I just haven’t had the energy to post and share with you all. I have been reading ya’ll work. I don’t like or comment all the time. I do miss each and everyone of you all. I’m not here to complain. I’m just here to check in. I was hoping to share a piece with you all but seem to have left my handy dandy notebook at home. I knew I was forgetting something once I step out the door dis morning. I should never leave home without my journal. I still try and write in my phone memo. But I love to write in a notebook/journal as much as possible. So I can have something to go back to as well. I have so many poems I haven’t even finish yet, that haven’t even made it to phone or even a pc or tablet. We seem to let technology take over, but we got to remember where we started when it come to writing. I love to see my thoughts on paper.. All my mistakes, my mark outs..  I have such a busy month, and worry about overdoing it. I have surprise bridal shower Friday coming up and I’m not feeling my best. Next weekend is the wedding reception and I have poem I’m going to read, and super excited about. And for the one’s that been with me from the beginning and know I’m a PK I have a few church events as well. My best friend from middle school is back in town since June and we been spending a lot of time together before she leaves next month for Cali. Fall has come and yes, I have a love and hate relationship with it.. OMG… right now here its beautiful, not to cold or to hot, its just right. First Friday in dis month I paid for the weather change on me and I was in for a few days. Shortest visit for me and must admit I was so excited to get out. I have been on the go a lot lately, trying to enjoy life.. I know a recent post I mention about was I truly living? and the answer was no.. I’m not talking about been crazy, I’m talking about stop making excuses due to my illness.  Right now with the weather going back and far… I’ll be marry to my home once more, just the way it should be :)…  Anyways going to end post here, I know I’m everywhere with dis post..

Thank for all the prayers, comments, likes, and joining my journey. I hope to be more active real soon. God Bless 🙂

Posted in 2015, AWARENESS, fight, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Thoughts!!!!

Living With Sickle Cell…

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Am I really living? Came to conclusion Im not. I have stop doing the things I love. I have stop moving to my frustration to be better. I realize its time get out my comfort zone! Enough is enough. If we dont live now , we wont
be able live later 

Just wanted share some thoughts that bn on my mind lately. Stop letting stuff hold you down. Release anchor from your life and live.

Dis my month shine: Sickle CELL AWARENESS MONTH.  . I have bn in out hospital for about a month.. .Till next time do stay bless;)

Posted in God, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

I know it’s been awhile since I post. I bn going thru it dis summer.. some times I feel like I should give up, but my sense come back and reminds me. I’m here for a reason. God has last so even when we begging to be taking away. I got out Sunday and I’m pain again . I feel like my cold dawn got worse. Voice almost gone. I know when I left counts wasn’t the best, but I was ready.. if I known I wasn’t ready probably stay little longer.  Almost sickle cell awareness month, we have the bold lips for awareness.. wear your boldest lipstick and take pic and use hash tags. A few weeks when i got out,  had get my scripts . The woman behind counter ask me what sickle cell is, hate say I don’t like talking about it. I got get out of that mind frame n spread word. We lost another warrior a few nights ago. One day it’s going be me. I want to touch so many lives and do so much before I leave. I ask myself am I really living, part of me says I’m not. I’m hurting myself. I bn battling with my faith, illness.. I know God got me, no matter what. It just get so tiring when all u go thru is repeating itself.. hope that make sense, half asleep.. I pray all is well with each and everyone. God bless

Thank for riding with me…

Posted in 2015, AWARENESS, God, Health, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

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Hey peeps, welcome to my world! It has being hella hectic for me since weather hasn’t bn good to me.  I was just in hospital last week and got out Sunday, and hello back th’s following week. I’m so ready for Spring! I’m in process of meeting with pain management doctor soon. I see my sickle cell doctor dis week. Haven’t seen him in months, was need to get my crisis under wraps. I’m at the point I need drop my primary doctor a.s.a p. Dont want to stress about it while recovering. I’m Praying I don’t have see inside hospital unless it’s for blood work or surgery. Pray all is well with each and everyone of you all. I got Bless with some good doctors and nurses. Remember I said doctor,  I go to the other hospital that my doctor not connected with..Thank GOD. I’ll end post here so I can get some rest. But before I do, count is up, oxygen strong, so it blood pressure, pulse. GOD is truly good. Lil pain not as bad as it was:)

Posted in 2015, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 4, Living With Sickle Cell Anemia

Not sure how to start my post. I have been sick since Christmas Eve. Didn’t want go E.R are miss bn my family for the holidays. I finally decided to go to E.R Saturday after Christmas,  long as my count was good, they didn’t keep me. I thought I was getting better and ended up worse then Christmas. Two more hospital visits before I was bless with doctor who knew what to do when it comes to my illness. Tuesday morning, I was brought back to E.R, but what a wait cause hospital was book. I know I cried so much that the pain got worse every time. 6 hours waiting to be seen. once I got in back, it went smoothly. Had a good doctor and nurse. I couldn’t walk the first few days. I can walk a lil now but legs still bothering me. I got two units first day here, didn’t work as soon as I got it. Brought my count up to 9, has drop to the 7’s now. Praying it doesn’t drop anymore. I’m still here cause of pain n count dropping. Hoping go home tomorrow but only time will tell. I’ll end it for now and share more at another time. Pray everyone had a good Christmas and New Year. GOD Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Hello and welcome to my World! I have been in and out of hospital for past few weeks. Back in school so That’s taking up my time, but I’m praying to get back on top of blogging and visiting with you all. The first time in hospital was short stay, blood pressure kept dropping while I was sleeping. Second time was last week of October, seem I have warm antibodies again, and I haven’t had transfusion in awhile. Idk what’s going on, but I’m happy they not putting me on steroids for now. It would do more danger them anything. I have to have surgery in right arm down road. Blood count was dropping.  But no to to transfusion.  I had good nurses… got favorite male nurse, name Denny, such a sweetie. GOD truly bless me with lovely and caring nurses. Had good female nurses as well. My favorite was Nikki:) good doctor as well. I have miss reading y’all blogs and hearing from you all. I pray all is well with each and everyone of you

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄