Category: AWARENESS

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

I have bn feeling bad since yesterday. I don’t know what’s going on. I thought about going to hospital but truly tired of seen inside of hospital and doctors. Having trouble trying get comfortable so I can sleep. My left side is giving me a lot of trouble. I have bn getting plenty rest for the past two days, sad to say that’s all I bn wanting to do to be honest. I’m feeling much better then I was. I haven’t bn in the mood write or post much. I have bn reading some of y’all blogs when I had the energry.  We bn getting rain for the past few days.  Actually got really bad last night. Sorta have update in dis post. I pray all is well with each and everyone of you all. God Bless

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

I’m late with sharing how I’m doing.  I have bn resting and trying recovery.  I have bn doing a lot of writing. Dis post will be short till I’m at my best to do a update. I have doc appointment Monday.  I may then do update then. My counts was holding it’s on I think. A lot has bn going on so I can’t remember if it was or not. Already dealing with fevers and nausea and vomiting. Which I’m not happy about it. So last night was rough had allergic reaction to something. I didn’t get much sleep. So hoping tonight I succeed.

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

Yesterday I got the word I could go home. I got paperwork on having pneumonia. I’m hoping and praying I’m cleared of it all. I’m not feeling my best, I’m hoping it all past soon. All I want to do is sleep and that’s all I plan on doing. I’m so thankful for all the prayers and comments, truly means a lot to me. I hope to have a update post soon as I’m 100%. I pray all is well with each and everyone of you all. God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

I’m writing you from my hospital bed once again. I’m not feeling so hot , woke up with a nagging headache. I’m not going home today.  The doctor decided to do x- ray on my wrist since it been giving me trouble. I’m glad to hear no damage. Some time I can have a crisis in my hands and it moves up. I’m right handed so it was making it harder to type.  Still not at it’s best. I’m hoping when I do leave it be in good spirit,  if y’all know like I know. I’m not happy about nurses bn late when my meds, it takes awhile to get my pain uncontroll and with them bn late truly isn’t helping the cause. I pray all is well with each and everyone of you all. So thankful for the prayers….

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello Everyone,

Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia.  I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain.  It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works,  it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Hello World,

Another wonderful day to be alive. Last night was rough due to the weather,  not much damage my way.  I can’t say the same for my neighboring states in the south. Some lost love ones and some lost everything they have. I’m sitting at doctor office waiting to get labs done, so not feeling my best. Let see what my counts tell me. I like coming see him, I get hear how everything looks.  Since im having problems with my shoulder, im not letting them touch my arm to draw labs from. Thankful i have port and itll be first time for them. YIKES! Im working on stressing less over stuff in my life I have no control over. I’m a work in progress. Just left the doctor office, things didnt go as plan with my port it would give the lovely lady back blood. So I had to suck it up and well you know the rest.  My counts holding its own, not its best, but not its worse. I dont belive  he did retic count.  Hopefully my counts can hold to i can see my primary doctor next week. Yes, working on looking for a new one. Thats a post for another time. With all the meds im on, trying break it down see what im allergic to exactly;(. I pray all is well with each and everyone of you all. God Bless

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, Friends, God, Health, My Journey, Pray, Sickle Cell Anemia, Sickle Cell Awareness

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey Everyone,

 

As you can see by the title I’m in hospital, been here every since Christmas Night. So glad I had the chance to spend Christmas Eve and Christmas Morning with my love one’s. I was trying to make it to the end of the month. I was hoping it would pass.  I had to have transfusion today. Blood count had got low, I knew something was wrong since I been having headaches . Its a sign that your blood count can be low or I’m getting ready to go in a crisis. I do hope everyone of you all had a Lovely Christmas. Well better then mine:) I have some great nurses and doctors. So thankful for that to be honest. Last time I was sometime last month, and doctor wasn’t doing right by me. So I left the hospital, and lets just say I was in a lot of pain. I’m hoping to do right by myself dis time around. I’m hoping to go home tomorrow if everything come back looking normal. I’m still in some pain right now. Hoping the blood did some good for me. I try not to get blood, because one day when I’ll need it , it may not help me . Sighs. Well I had warm Christmas, seem the cold front is coming in. Guess its a good thing I’m in hospital now, to prevent all that. But its just cold in the evening time, so it shouldn’t be 2 bad. I’m going to wrap this post up, because I’m getting tired and restless. I haven’t been sleeping much for whatever reason. I always got some stuff on my mind. I know I have check up on the 4 to see how the meds is  doing. I hope good news, but I really haven’t been on them since I been in hospital. Only meds they giving me is my pain meds and not my every day meds.  I must say it truly means something  when you have  a great group of people taking care of you. I even have some nurses coming visit me since they always say I’m a good patient. Makes me feel good when they think that about me. I feel like I be getting on there nerves at times. But I have met some that have became friends.

Posted in 2015, AWARENESS, Bless, God, Journey, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Uncategorized, Update

Update

Posted on by poeticjourney

Good Morning,

 

Will be short post, since its Christmas. I posted the last update late. I don’t know what happen. I guess it had bn awhile since I posted that I forgot to take it off draft and hit publish.. lol.  I had some what okay doctor appointment. I got put on more meds. So not happy about that. I got back in Feb, before I leave in March so that’s good. They up my dose on one of my meds. I already know how dis going to go. Lets just say I’m not happy:( . I bn dealing with headaches for like 3 days, not so bad today. I’m listening to music as I type up my post. So that’s helping. I’m loving the weather we having here in the South. Not cold whatsoever. I hope everyone having a lovely Christmas. I don’t believe I ever had a warm Christmas, but I’m so not complaining. Even with the rain. I’m not crazy about the rain because it makes my body aches and can interfere with my illness, but I do love rain. SO love and hate relationship. We trying to see about not depending on pain meds, I like the way that sound. Because I’m bad about going cold turkey a lot, but that could be reason why I be in and out hospital because I do that a lot. Sometime you just want to enjoy life and not be drug up. Just my opinion .  Sorry it took so long to do my updates, with everything going on, with health and holidays. I probably wont post anymore 2 New Year. So I want to wish everyone a Merry Christmas and Happy New years one more time. God bless :). If I forgot anything in the update, will edit later on. I need some sleep. Music do put my mind at ease.  Thank You all for sticking with me on dis bumping ride I call life.

Posted in 2015, AWARENESS, fight, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Thoughts!!!!

Living With Sickle Cell…

Posted on by poeticjourney

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Am I really living? Came to conclusion Im not. I have stop doing the things I love. I have stop moving to my frustration to be better. I realize its time get out my comfort zone! Enough is enough. If we dont live now , we wont
be able live later 

Just wanted share some thoughts that bn on my mind lately. Stop letting stuff hold you down. Release anchor from your life and live.

Dis my month shine: Sickle CELL AWARENESS MONTH.  . I have bn in out hospital for about a month.. .Till next time do stay bless;)