Posted in 2019, chronic illness, fight, God, Health, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

Welcome to My World. I made it a year without admissions. When you know your body, you know your limit. I tried so many times to push myself so I could make it to the little lady party the following day on 18. It was strange getting admitted when the dr. on the floor told me and not the E.R doctor or nurse. I wasn’t crazy about having to deal with E.R doctor, to be honest, we don’t have a good past. He did give me the wrong meds before. Thankful it wasn’t my time to leave here. After coming in and talking to me. Idk what kind of meds he was trying to give me. It’s something they give preg woman. Didn’t touch my pain but was trying to put me sleep. Different Things we go thru when dealing with people in the medical field makes you wonder how they got a degree. I didn’t have my usual nurses I usually deal with so having one got in E.R wasn’t umm pleasant. Getting on the floor was a different story. I was glad to be on first-floor just not crazy about the room I was in. I didn’t like how the doctor did my meds because the pain wasn’t been touch and had to practice my breathing to get thru the night and the next day till the doctor came to see me. When they see your counts still dropping they want to move and so right by you. Didn’t have the doctor I was used to having when all they have do is look at my file. Makes you wonder why they make stuff harder? My counts were 7.4 when I arrive, retic was 9 and hematocrit was low as 20.3 and the next day it was even lower in 17 and I was 6 in my counts. So who was looking at blood transfusion that they haven’t had in over a year or more? Believe or more. I got cross and type but had to wait till my blood was found since I have antibodies. Took it a few days which was a surprise. What was a bigger surprise I was itching the whole time during the first unit? We had space the other unit out. The same thing happens to that and they stopped it. I never had that happen before. So they wanted to clean up the mistake and I’m still waiting to hear what happen. I have 3 doctor appointments coming up. So I’ll find out if anything happens are not. If you wondering if I got medicine to prevent itching and answer is yes. Always have to get it, so I won’t have a reaction. Just this time around it didn’t work. I even got steroid meds for the second unit and still the same reaction. I wasn’t crazy about steroids but hey whatever helps. One does of steroids can’t make me gain weight. Lol. The one unit brought my count up to 7.3 and it drops till 7 the next day. I didn’t want to be there for my birthday, so was glad to get a discharge. I hate that haven’t been as active in the blogging world but still taking it easy. I did t know my counts was that low when I went in. You think it’s a small thing and it can be a major thing. Does make me slow it down some and take care of myself. It’s hard to do that and grieve at the same time. It’s hard to deal with sickle cell and remember not to get to happy are excited or whatever. It’s possible it can kick a crisis in. So thankful for all the kind comments and prayers. God sends the right people in your life. You never know who you need and why, but it’s truly a blessing to have. Pray all is well with each and every one of you all. I plan on doing a post with doctor visits. I know one doctor I’m meeting for the first time. Hope it goes well. Hate new doctors and starting over. Sighs. Do anyone else feel that way? Ok, maybe not hate it dislike. Who knows I may just hate change. Lol until next time stay bless.

Posted in 2014, Death, family, God, poem, Poetic, Poetry

Rest On

As I layed in bed
You was fighting to live
God Bless Your family
They gave upon you.
When you needed them
To a fatherless child
Broken hearted mother
So many grieving individuals
My heartaches for you.
God Bless You
As you rest in paradise.
As I layed in hospital
Fighting to keep going.
You was dying
And leaving so many
Hurting and shock
God Bless the brokenhearted
PJ Registered & Protected

Someone from my area lost his life fishing over weekend. We had bad weather , but they discover him yesterday morning! Let your love ones know how much they mean to you! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia


Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

Posted in 2013, Death, family, God, poem, Poetry, prayer

How could you

Not take your life serious?
How could you
Poison your body
I’m hurt you gone..
But more angry that you
Didn’t think about your son
Or your body…
I heard about your parents
Wanted you to do rehab..
I wish you hadn’t said NO,
How could you be so foolish.
You leave so many hurting and grieving…
They won’t see your beautiful smile,
Hear your voice
I pray that God keep his hands on
Your family…
God Bless there soul….

PJ Registered & Protected

Dedicated to my cousin and love ones whose mourning. Its hurts when you lose a love one, hurt even more when they do stupid and foolish things. God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 5-8, Living With Sickle Cell Anemia

thumbnailSCDHello Everyone, This has been one long week. I don’t believe I have been this sick in a long time. I havent been in the mood to blog are do much of anything. I actually started back with my studies Wednesday and havent even tempted to do any of it. I’m hoping to do some of it. I actually made calls yesterday to let them know whats going on, with me. I don’t want to be drop from my classes. I didn’t get transfusion because it’s not in my best interest, but part of me wish I had got it. I’m so weak. My blood count is still low but still holding its low. I’m 5.8 so it’s coming up a lil. So that good 🙂 I got off the fluids yesterday, which im very happy about, I got tired of going to the bathroom so much. I still have my port hook up since I still have to get pain meds, since Im still hurting. Yesterday they actually lost someone on my floor she was 100yrs ole. She was blessed to live to see such a bless age. My nurse took it hard, and I can truly understand where she was coming from. Thank you all for the prayers and comments, and do bare with me. I havent had the chance to approve comments. Even the likes means a lot to me 🙂 Im hoping to go home today are tomorrow. It maybe tomorrow because im not feeling my  best today, and I want to be at my best when I head home. I did get a chance to talk to my lil lady and she ready for me to come home to her. And im ready to come home to her as well. I told her to be good, so I hope she does, but that easy said then done.   I have had some great group of nurses, doctor. Cant really say doctors, because I only been seen one doctor. I have to make a post about that another time, right now I feel like laying back down and getting some more rest. I pray everyone is having a Bless Friday.

Posted in Love, Love Journey, poem, Poetry

Pointless Love

Do love suppose to be fair?

We have no control on

who we love.

No matter how we fight it

Either by being to scared

to love again.

To me loving you isn’t fair

I’m the one hurting and

you not.

I’m trying to snap out

of stupidity.

but you still hold my heart

I know you don’t feel the


it shouldn’t be so hard to stop

my beating heart.

it;s not fair

to love again and

get rejected.

You make walking away


You make giving up easy

You make loving you


Through all the b.s

I fell in love,

when I should have protected




The poem will be dedicated to my Love Journey, do enjoy! God Bless :) Registered & Protected

Posted in Health, My Journey, Sickle Cell Anemia

Day 1-3,Living With Sickle Cell Anemia

I have being in hospital ever since Monday, I haven’t been feeling my best since the weekend and the pain got worse. I actually had doctor appointment Tuesday and was going to wait it out, but since I couldn’t get in touch with my ole primary doctor so I can get referral to go to my new one. I decided to cancel and go to E.R. Lets just say my lab came back fast because it was consider critical low. I’m not feeling my best still. I have to get transfusion. It actually was 6.9 when I arrive then that night it drop. Its taking longer this time for my blood, as you all know its hard to find my blood type. I haven’t been feeling my best, but decided to go head and share with each and every one of you. I’m so touch by all your comments and prayers. I do have some great nurses and doctors, that taking good care of me. I’ll try to keep you all updated from here on out. I do hope everyone is doing good. God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

As you all know, I haven’t been feeling my best for the last few days. So I decide to go to E.R and well as you can see by the title, they decided to keep  me. I have had a long day, basically dealing with my visit to be honest. I don’t really have much to say tonight, because I’m hurting. I’m so thankful for all the prayers, kind comments and encouragment, truly means a lot to me. I’M BLESS TO HAVE MET SO MANY WONDERFUL PEEPS ON my JOURNEY. I hope everyone is having a Bless Night! God Bless 🙂

Posted in Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Before I begin, I hope I don’t be everywhere with this post! You have been warn 🙂 I’m so glad the month almost over, hopefully okay maybe I should be saying I’m praying I have a better month ahead of no pain, doctor visit, nasty uneducated doctors, and nurses with no freaking back bone.  I believe I put all that in a nice way to be honest! As of last night, my lovely blood count has drop! I’m so not happy, I take it the uneducated doctor is waiting for it to drop lower before I should be put in the hospital. I have to say I’m totally losing my cool for hospitals all together. I know all doctors,nurses or not that ignorant. Lets just say I didn’t have a good day yesterday! I did have someone take care of the situation that had happen before. So thankful on that! I have come to conclusion, if I say I’m FINE, everything might just be that eventually! People or asking me how I’m feeling and I’m saying okay or I’m fine, because honestly I really just want to feel fine! I believe today has been one of my worse days. I forgot to bring some meds with me so I had to be in pain for a while today. You know how some say the calm before the storm. I believe I said that right, my head isn’t all here right now. I believe sleep is finally calling me home. Yesterday I was worry I would’ve wait longer before I could see the sickle-cell doctor, because of another reason, but got call and hoping to see him soon. I refuse to make a trip to E.R where I’m at! Plenty of hospitals, but when you in pain I don’t see the point going out the way, might be something I have to rethink to be honest!  Something the nurse said to me who was discharging me, she just don’t know I had a lot of unkind words I would’ve said, but didn’t! I can’t lose my cool because there uneducated on my illness. Easy said then done, but something I truly need to work on. Honestly I’m starting to believe certain doctor love to see me in the E.R, but just not able to stick her head in the room when I’m there.  Hmm you know a lot of words come to mind. I must say I better not have to visit the evil place no time soon. Sighs! I believe this post is long enough and you all can sense how I’m feeling about it all! Sorry to surprise some of you, but hey we all have our weak moments when we just fed up! I must say I think I need to go back to when I was younger and had to drag me to the evil place! I don’t think that good ideal, because I had to literally fall out before I actually went! Me in the evil place have many stories we could share!



Thankful for all the prayers and encouraging words, truly means a lot to me! God Bless Each & Everyone of You 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update


Today hasn’t been good day! I’m avoiding going to E.R, because I’m tired of them thinking nothing wrong because my blood work looks good! Feels like a few years ago back in 06. I almost died because they wouldn’t keep me! So if I’m quiet and you don’t hear much from me that’s why! I do hope everyone is having a good weekend! It done got cold once again which I’m not happy about! Sighs! Thank you all for the prayers and kind words truly means a lot! I’m praying I start feeling better soon! God Bless & Good Night 🙂

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