Posted in Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Before I begin, I hope I don’t be everywhere with this post! You have been warn 🙂 I’m so glad the month almost over, hopefully okay maybe I should be saying I’m praying I have a better month ahead of no pain, doctor visit, nasty uneducated doctors, and nurses with no freaking back bone.  I believe I put all that in a nice way to be honest! As of last night, my lovely blood count has drop! I’m so not happy, I take it the uneducated doctor is waiting for it to drop lower before I should be put in the hospital. I have to say I’m totally losing my cool for hospitals all together. I know all doctors,nurses or not that ignorant. Lets just say I didn’t have a good day yesterday! I did have someone take care of the situation that had happen before. So thankful on that! I have come to conclusion, if I say I’m FINE, everything might just be that eventually! People or asking me how I’m feeling and I’m saying okay or I’m fine, because honestly I really just want to feel fine! I believe today has been one of my worse days. I forgot to bring some meds with me so I had to be in pain for a while today. You know how some say the calm before the storm. I believe I said that right, my head isn’t all here right now. I believe sleep is finally calling me home. Yesterday I was worry I would’ve wait longer before I could see the sickle-cell doctor, because of another reason, but got call and hoping to see him soon. I refuse to make a trip to E.R where I’m at! Plenty of hospitals, but when you in pain I don’t see the point going out the way, might be something I have to rethink to be honest!  Something the nurse said to me who was discharging me, she just don’t know I had a lot of unkind words I would’ve said, but didn’t! I can’t lose my cool because there uneducated on my illness. Easy said then done, but something I truly need to work on. Honestly I’m starting to believe certain doctor love to see me in the E.R, but just not able to stick her head in the room when I’m there.  Hmm you know a lot of words come to mind. I must say I better not have to visit the evil place no time soon. Sighs! I believe this post is long enough and you all can sense how I’m feeling about it all! Sorry to surprise some of you, but hey we all have our weak moments when we just fed up! I must say I think I need to go back to when I was younger and had to drag me to the evil place! I don’t think that good ideal, because I had to literally fall out before I actually went! Me in the evil place have many stories we could share!

 

 

Thankful for all the prayers and encouraging words, truly means a lot to me! God Bless Each & Everyone of You 🙂

Author:

I blog for many reasons, the love of writing, to inspire and touch someone life. No matter what I'm going through in my life. It's a get away when my SC becomes to much for me to handle. I love to get carry away in MY WORLD! I'm on a JOURNEY to discover myself. God Bless! :)

14 thoughts on “Living With Sickle Cell Anemia

  1. I am proud of you PJ for getting stomping mad about all this wrong treatment of you! I know it all has been making me so upset for you. We all do reach our breaking points and just lose our tempers and all. We can all be very nice people, but this type of thing gets so distressful when it seems nobody professional is getting it. I can see all too clearly why you are so sick of the ER, hospital in general, too. It is scary when these so called educated doctors and nurses really aren’t understanding Sickle Cell Anemia. I am so praying overtime for the Sickle Cell specialist offers a lot more care and help to you. Praying that the month of March will bring much better things for you! I can only imagine the stories you could tell of that evil place PJ. I loved this post and so happy you got it all out there. A wonderful job of writing it, too…You really weren’t all over the place either, you told it very well. Thank you so much for sharing, it helps! Sending along Love and Hugs and another smile. 🙂

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    1. Gabby,

      what would I do with out you? I’m so thankful GOD Bless us with each other. 🙂 Thank you for your prayers it truly means a lot to me, more then you’ll ever know. Your encouraging words always uplifting to me. Honestly I wrote how I truly felt about the situation. I’m just tired of the same o same o with them! I do know all hospitals aren’t bad, special the one I might have to end up going to near where my sickle cell doctor is. I believe its a shame that all hospital don’t have nurses,doctors that really care about there patients, but guess I shouldn’t be to surprise! Thank yoou for the love and hugs and the smile to brighting up my day! Sending them all back to you! God Bless 🙂

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  2. Hi. I can imagine your frustration. My brother has Sickle Cell Anemia. We also had an aunt that had it. I know about the pain from dealing with them. My brother goes to the E.R. some and he has experiences with some doctors that lack knowledge, don’t care, or just need to be empathic about it. I pray you feel better soon. Take care of yourself and take your meds. It is really awesome & brave of you to share your story via web. Be encouraged and remember God is with you. Keep remembering, “HE GOT THIS”, when your body is in pain and you are dealing with incompetence. 🙂

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    1. Thank You for sharing your info about what your brother goes through. Its not a pretty penny, I just didn’t its getting out of hand that so many have a job that doesnt care about the patients. Its not our fault we are hurting. Thank you for your comments, truly meant a lot to me. I hate that anyone else in my shoes have to go throught what I got to go through, makes me sick to know that so amny have degree to take care of patients, but don’t have the heart to do just that. I’m glad I’m not alone. Youn so right he does have this, thank you for reminding me! God Bless You 🙂

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    1. Glad you mention that Eliz, I had someone call for me and they always do follow up call so trust I did let them know. If it still continues then I have to do it myself instead of having someone else.

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  3. Many, many–oh, so many–prayers for your COMFORT, dear journey! So very sorry to hear about the lower blood count. But you do have the right idea about thinking positive and focusing on other things than the pain! Lead on,Sister!

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  4. Hi PJ…I’m so sorry you are going through this pain and frustration…although, we want to trust the medical personnel, some of them aren’t too bright, nice or compassionate. I pray you receive the help and care you need to feel better and more comfortable…hang in there and know you have many, many friends who are praying for you each day~Sending more healing hugs your way, my friend~

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