Category: Update

Posted in 2015, AWARENESS, Bless, God, Journey, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Uncategorized, Update

Update

Posted on by poeticjourney

Good Morning,

 

Will be short post, since its Christmas. I posted the last update late. I don’t know what happen. I guess it had bn awhile since I posted that I forgot to take it off draft and hit publish.. lol.  I had some what okay doctor appointment. I got put on more meds. So not happy about that. I got back in Feb, before I leave in March so that’s good. They up my dose on one of my meds. I already know how dis going to go. Lets just say I’m not happy:( . I bn dealing with headaches for like 3 days, not so bad today. I’m listening to music as I type up my post. So that’s helping. I’m loving the weather we having here in the South. Not cold whatsoever. I hope everyone having a lovely Christmas. I don’t believe I ever had a warm Christmas, but I’m so not complaining. Even with the rain. I’m not crazy about the rain because it makes my body aches and can interfere with my illness, but I do love rain. SO love and hate relationship. We trying to see about not depending on pain meds, I like the way that sound. Because I’m bad about going cold turkey a lot, but that could be reason why I be in and out hospital because I do that a lot. Sometime you just want to enjoy life and not be drug up. Just my opinion .  Sorry it took so long to do my updates, with everything going on, with health and holidays. I probably wont post anymore 2 New Year. So I want to wish everyone a Merry Christmas and Happy New years one more time. God bless :). If I forgot anything in the update, will edit later on. I need some sleep. Music do put my mind at ease.  Thank You all for sticking with me on dis bumping ride I call life.

Posted in 2015, Blessed, Death, family, God, Health, My Journey, poem, Poetry, Pray, Update

Update

Posted on by poeticjourney

Hello Everyone,

 

I hope everyone is well. I know its been awhile since I posted. I bn enjoying life and few hospital stays. But other then that all is well. Got heartbreaking news today, we lost a love one on my mother side right before the holidays. Always heartbreaking lose a love one, even more heartbreaking when its right before holidays. God doesn’t make any mistakes, that much I know.  I have decided to leave in a few months, I need get away. Part of me feel like I’m running away from certain things in my life, but part of me doesn’t. I need change in my life. I will come home and visit as much as possible. God work in mysterious ways. Im getting the opportunity to get my work publish, so Im excited about that. SO in the new year, I’ll be busy typing up old and new work and trying get everything that need be copyrighted.  I’ll try get back into blogging as much as possible. I have bn reading post and trying to like and comment. I have check up tomorrow with my sickle cell doctor. So I’m hoping for good news, since I haven’t been feeling my best lately. I pray everyone have a good Christmas and New Year. I shall post more or another post soon. God Bless:)

Posted in 2015, Health, Update

UPDATE

Posted on by poeticjourney

Hey All,

I know its been awhile since I posted. I hope all is well with each and everyone of you all. I have been in and out of hospital since last post. I have been writing poetry and starting some post and just stop them. I just haven’t had the energy to post and share with you all. I have been reading ya’ll work. I don’t like or comment all the time. I do miss each and everyone of you all. I’m not here to complain. I’m just here to check in. I was hoping to share a piece with you all but seem to have left my handy dandy notebook at home. I knew I was forgetting something once I step out the door dis morning. I should never leave home without my journal. I still try and write in my phone memo. But I love to write in a notebook/journal as much as possible. So I can have something to go back to as well. I have so many poems I haven’t even finish yet, that haven’t even made it to phone or even a pc or tablet. We seem to let technology take over, but we got to remember where we started when it come to writing. I love to see my thoughts on paper.. All my mistakes, my mark outs..  I have such a busy month, and worry about overdoing it. I have surprise bridal shower Friday coming up and I’m not feeling my best. Next weekend is the wedding reception and I have poem I’m going to read, and super excited about. And for the one’s that been with me from the beginning and know I’m a PK I have a few church events as well. My best friend from middle school is back in town since June and we been spending a lot of time together before she leaves next month for Cali. Fall has come and yes, I have a love and hate relationship with it.. OMG… right now here its beautiful, not to cold or to hot, its just right. First Friday in dis month I paid for the weather change on me and I was in for a few days. Shortest visit for me and must admit I was so excited to get out. I have been on the go a lot lately, trying to enjoy life.. I know a recent post I mention about was I truly living? and the answer was no.. I’m not talking about been crazy, I’m talking about stop making excuses due to my illness.  Right now with the weather going back and far… I’ll be marry to my home once more, just the way it should be :)…  Anyways going to end post here, I know I’m everywhere with dis post..

Thank for all the prayers, comments, likes, and joining my journey. I hope to be more active real soon. God Bless 🙂

Posted in God, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

I know it’s been awhile since I post. I bn going thru it dis summer.. some times I feel like I should give up, but my sense come back and reminds me. I’m here for a reason. God has last so even when we begging to be taking away. I got out Sunday and I’m pain again . I feel like my cold dawn got worse. Voice almost gone. I know when I left counts wasn’t the best, but I was ready.. if I known I wasn’t ready probably stay little longer.  Almost sickle cell awareness month, we have the bold lips for awareness.. wear your boldest lipstick and take pic and use hash tags. A few weeks when i got out,  had get my scripts . The woman behind counter ask me what sickle cell is, hate say I don’t like talking about it. I got get out of that mind frame n spread word. We lost another warrior a few nights ago. One day it’s going be me. I want to touch so many lives and do so much before I leave. I ask myself am I really living, part of me says I’m not. I’m hurting myself. I bn battling with my faith, illness.. I know God got me, no matter what. It just get so tiring when all u go thru is repeating itself.. hope that make sense, half asleep.. I pray all is well with each and everyone. God bless

Thank for riding with me…

Posted in 2015, My Journey, My Life, Update

Update

Posted on by poeticjourney

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I know it’s been awhile since I post. I pray all is well with each other. I have been taking it easy. Sad to say I have been in n out of hospital. Hopefully in due time I can return to blogging more. I have miss sharing and reading and hearing from you all. It’s the summer and I hate it. I’m spending time with my lil lady. We both turnt a year older in May. I have some poems to share with you all. Hope all is well with each of you….GOD Bless

Posted in AWARENESS, My Journey, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless

Posted in 2015, AWARENESS, God, Health, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey peeps, welcome to my world! It has being hella hectic for me since weather hasn’t bn good to me.  I was just in hospital last week and got out Sunday, and hello back th’s following week. I’m so ready for Spring! I’m in process of meeting with pain management doctor soon. I see my sickle cell doctor dis week. Haven’t seen him in months, was need to get my crisis under wraps. I’m at the point I need drop my primary doctor a.s.a p. Dont want to stress about it while recovering. I’m Praying I don’t have see inside hospital unless it’s for blood work or surgery. Pray all is well with each and everyone of you all. I got Bless with some good doctors and nurses. Remember I said doctor,  I go to the other hospital that my doctor not connected with..Thank GOD. I’ll end post here so I can get some rest. But before I do, count is up, oxygen strong, so it blood pressure, pulse. GOD is truly good. Lil pain not as bad as it was:)

Posted in 2015, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 4, Living With Sickle Cell Anemia

Posted on by poeticjourney

Not sure how to start my post. I have been sick since Christmas Eve. Didn’t want go E.R are miss bn my family for the holidays. I finally decided to go to E.R Saturday after Christmas,  long as my count was good, they didn’t keep me. I thought I was getting better and ended up worse then Christmas. Two more hospital visits before I was bless with doctor who knew what to do when it comes to my illness. Tuesday morning, I was brought back to E.R, but what a wait cause hospital was book. I know I cried so much that the pain got worse every time. 6 hours waiting to be seen. once I got in back, it went smoothly. Had a good doctor and nurse. I couldn’t walk the first few days. I can walk a lil now but legs still bothering me. I got two units first day here, didn’t work as soon as I got it. Brought my count up to 9, has drop to the 7’s now. Praying it doesn’t drop anymore. I’m still here cause of pain n count dropping. Hoping go home tomorrow but only time will tell. I’ll end it for now and share more at another time. Pray everyone had a good Christmas and New Year. GOD Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.