Posted in 2016, fight, God, Mini Update, My Journey, My Life, Sickle Cell Anemia

Mini Update

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Good Morning, I pray all is well with each and everyone of you all. I’m sitting here at my eye appointment waiting be seen and wanted to check in with you all. Wow spring is finally here and the weather being a little crazy over my way,  how about y’all?  I have been doing schedule post when I know I’m not going have the time to do it a day. They truly come in handy when I’m not at my best. But not all my post or schedule. I made a error dis morning and it took my schedule post back to the 9, sorry about that y’all.  I’m hoping today appoint go well, my eyes being giving me problems and I have to have dis done once a year to make sure my sickle cell isn’t doing major damage. Lately I have being hearing how so many sickle cell warriors or dying. Always hit me hard, when I hear heartbreaking news. I know one day I’ll be call home. Every day is a struggle when it comes to my health. Some days I dont want get out of bed. Some days I want run away from a dis. Some days I just give it to God and continue my fight .  I may be strong but I do get weak at times and discouraged. Okay I’m getting carry away here. I’m hoping have a post dedicated to dis soon. Till next time pray all is well…

Posted in 2016, Death, family, fight, God, Goodbye, Health, poem, Poetic, Poetry

Preparing

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To say goodbye….
Its heartbreaking…
To hear you have lost…
The will to fight…
You have refuse to even…
Try…
I hear they are bringing in reinforcers
as last resort….
To hear you lose…
Who you use to be…
Breaks my mother’s…
Heart. .
Preparing…
To not have you here…
Anymore is heartbreaking….
You was the woman to keep the…
Family together….
Today…
We got the call…
You coded…
The burden became too much. .
My God….
I thought you would be here …
A little longer….
Me and my mom…
Was just talking…
About you and how the old you
we thought returned… 
But God needed you more…
Preparing is no more…
Death is all around me…

2/18,21/16
~PJ~

I bn working on dis poem for a few days. I didn’t know how to finish it and I honestly thought I had plenty time to finish it before she pass. No matter how often you think you may have more time with a love one. You need to let them know how you feel. Tomorrow isn’t promise to anyone, no even a second, minute. Tonight I find out I lost a family member as well. So the poem hits me even harder then before

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, fight, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Thoughts!!!!

Living With Sickle Cell…

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Am I really living? Came to conclusion Im not. I have stop doing the things I love. I have stop moving to my frustration to be better. I realize its time get out my comfort zone! Enough is enough. If we dont live now , we wont
be able live later 

Just wanted share some thoughts that bn on my mind lately. Stop letting stuff hold you down. Release anchor from your life and live.

Dis my month shine: Sickle CELL AWARENESS MONTH.  . I have bn in out hospital for about a month.. .Till next time do stay bless;)

Posted in AWARENESS, Death, fight, Health, hear me, My Life, poem, Poetry, Sickle Cell Anemia, Sickle Cell Awareness, Thankful

My Life

How can I speak…

when I’m only one

person…

You seem to look…

at me crazy…

Cause of the pain..

and you don’t understand…

Yes,

I’m one in a million…

So many of us or losing..

the fight…

So thankful for the one..

who fought with me..

You may not hear me…

But I know many hear me..

and join me to fight for our..

rights..

Do you hear me?

I hate to yell but hell..

my pain is that intense…

NO act..

over here..

We want Justices…

done…

We tired of been

mistreated..

some die in pain…

because of the abuse from

the one’s…

who supposed to help us..

Do that make you all happy?

see so many dying?

Technical I’m not finish with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month, since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think.  The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for cure for us.