Posted in AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Hello and Welcome to my place, if you new to my JOURNEY, you may not know I just recently got out of the hospital for been in there for about a week! sighs! If you been on my JOURNEY, you all know the routine and thank you all for staying with me for the long ride. I never imagine it would be so bumpy. I have never seen the inside of hospital as much as I have this year. I suppose it’s the first time for everything. Well not just this year, since the year just came in. lol. I have never seen the inside of hospital every month. Usually just once or twice and sometimes none. I truly miss the times I didn’t see inside the hospital. I’m glad I finally got my port, on my last stay, so I don’t have to worry about  getting stuck so much when I do have to visit doctor office as well as the hospital. I’m hard person to stick. Every since I been out the hospital I haven’t been feeling my best. I have been in pain ever since. I find out yesterday I’m actually in the process of having a crisis, but were trying to do everything to prevent it before it get out of hand. I’m happy to let you all know, my blood count is looking good. YAY! I hope it still looks good,when it comes to check up or if I have to return to hospital because for some odd reason I can’t get my pain under control. I must admit did have nice looking doctor yesterday with the prettiest darkest blue eye’s. I’m a sucker for them. Okay you getting to know me a little bit more 🙂  On side note, my little lady has been sick as well with ear infection, she is starting to feel a little bit better. THANK GOD! If it was anything besides ear ache, I couldn’t be around her. She been saying, but I love you. 🙂 Okay back to the point of my post. I haven’t been feeling my best, right now I’m still not feeling the best that I should be feeling. I’m actually in the process of watching a movie with my little lady.  I just hope my blood count stay the same, since it was looking good, but long as I’m hurting that means it got plenty time to betray me. 😦 I’m praying it stay up and going strong. I’m so thankful for the one’s who or still praying for me and holding me in their thoughts. It means a lot to me! I must admit, the day I came home from hospital I did tell the doctor I wanted to come home even if I was in pain, but to be honest, I had started to feel better. The weather has been a little crazy here.

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I blog for many reasons, the love of writing, to inspire and touch someone life. No matter what I'm going through in my life. It's a get away when my SC becomes to much for me to handle. I love to get carry away in MY WORLD! I'm on a JOURNEY to discover myself. God Bless! :)

20 thoughts on “Living With Sickle Cell Anemia

  1. Thank you so much for posting the update PJ. I am praying your blood counts stay where they are, then continue to go up. Also, for the pain to go away and stay away! I know I was a bit worried maybe the site wasn’t healing right where they put the port. But, that can’t be because your counts would be lower. I am going to continue reading about your illness, I am hoping others will do the same. To have the facts, and I am still learning even more as I continue to read, it’s so important for us that love you to understand better. Little lady has an ear infection, give her a hug from me and I will be praying she gets better quickly. That is so sweet how she loves being with you, you are watching a movie together and that makes me smile. I also had to laugh about the new doctor being cute with those blue eyes, as long as he helps you get better I am happy you have him for a doctor, too! I say Yay for the new doctor! 🙂 I know it’s been raining a lot and maybe the dampness isn’t the best for healing. I will be praying for it to clear up, too! Now, that I’ve taken up most of the page I will leave room for others to comment.lol You know you are in my prayers and thoughts sweetie, rest up and enjoy Little Lady’s company! Love and Hugs!! 🙂 God Bless!! 🙂

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    1. Gabby,

      Thank you for your long & kind comment! were watching Smurf right now, I believe secretly she trying to push me out the bed without fully knowing. She said she want to be next to me. Shoo.. I’m just glad to have the port, and its healing up good, they had to use it yesterday, and I don’t think the nurse was careful yesterday. Or maybe it just me. Heck if I know. Im a touchy person when it comes to my port. I know I need to really do post on my illness one day to make it easy for differnt one’s. I’m actually doing some serious thinking about how Ima do it. I make sure to give her a hug for you, I believe she is feeling much better now. Which is good for me, because I don’t like seen her sick! 😦 I had to add how cute the doctor was! 🙂 Thank you for praying, it truly means a lot to me. I’m truly touch that you or reading up on my illness. God Bless:)

      Think I take a break and watch movie and nap,starting to feel bad. Sending love & hugs! God Bless 🙂 When I was in hospital my dad came to visit I told him I would love to see snow since it wwas actually getting cold while I was in hospital. I have to say I was in the right place to be already. He said the snow need to be where its at. I had to laugh. Wanted to share that little informaton with you, since you know I haven’t really seen snow!

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  2. PJ, please know that we appreciate you taking the time and energy to write to us. We are all hugging you in our hearts…….very tightly.
    I wish I could mail you some snow……just so you could feel it, see it, taste it.
    We have plenty of it here in Ontario (Canada). If I could post a picture in here for you I would but I don’t think it’s possible to.
    Hugzzz to your little girl. She sounds lovely!
    Bless,
    Lee

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    1. Hey Lee,

      thank you for your kind comment 🙂 truly means a lot to me, it touch my heart! You or so lucky about the snow, but you probably think I’m crazy to say that! I’m not crazy! I just never seen it! If you ever do get a chance to put a picture up do let me know! Check out my post call Sleeping Beauty and Curls, actually have pictures of her if you want to see how she looks! God Bless 🙂

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  3. I really hope that the blood count goes up, and your pain goes away. I know just you typing out your experience and journey is tough, but it is highly appreciated. Thank you so much for keeping us in the loop of your sickle cell anemia journey.

    As for little lady, I’m glad that she’s getting better. I know ear aches can be so painful for the little ones. Once when she gets healed, she’ll be bouncing again in no time.

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    1. KalleyC She is starting to feel better now, she is already letting her energy return! Its truly her first ear ache to be honest. My poor baby was so miserible. I hope it stays up, I was glad to hear it was higher. I just wish I wasn’t hurting! You very welcome, thank you for taking the time to read about it! Truly means a lot to me! God Bless YOu

      I do hope all is well on your end! 🙂

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  4. Yucky weather and a precious little girl with an earache would no doubt add tension to your time at home. Tension does produce pain and physical discomfort. SO pleased about your good blood count, however! Praying for your comfort RIGHT NOW!

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    1. Thank you for the prayers, I truly do need them to be honest! She is feeling so much better and was happy to go to school to day! I do hope all is well on your end! God Bless 🙂

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  5. First time visiting your blog. It’s clear that you are a strong person with faith and determination. I hope that you continue well and are able to continue writing.

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  6. Hi PJ, I’m late on reading posts, but I’m glad you’re home…I have to catch up on the others..have you felt better today? I hope so and you’re always in my prayers…hugs to you! xx

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    1. You never late, You have a lot going on, so thank you for the prayers, truly means a lot to me! God Bless 🙂 Still not feeling my best, I don’t know whats going on! But I’m putting it all in GOD hands! Many Blessings

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      1. Okay, God has a lot to handle right now, but I know He can handle it; just hang in there, PJ, and you have so many friends praying for you~xx

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      2. What A MIGHTY GOD WE SERVE, WHO CAN DO ALL THINGS! I’m hanging on and you do the same! I’m BLESS with so many wonderful peoples praying for me! God Bless 🙂

        I do hope all is well on your end!

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      3. Well, I’d love to say all is “fine” but honestly, my hubby has had pneumonia for a week now and really not much better. We’ll see how he is tomorrow~more prayers for God…thanks for your hopeful comment, though…I just feel concerned about so many things right now; when it rains, it pours! 🙂 xx

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      4. I know what you mean Lauren! Some days I put on a smile and when someone ask me how I’m doing I say Im good when I know deep down I’m not feeling my best. trust me I know where you coming from. I do hope he gets better soon, his in my prayers. REMEMEBER NO LIMITS TO WHAT GOD CAN DO, NO MATTER WHAT IT IS! you never lied on that part when it rains, it surely does pours! God Bless 🙂

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