Tag: Sickle cell anemia

Posted in 2016, God, Health, My Journey, My Life, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey World,

As you all know if you read my other post, that I’m in hospital.  My counts are still dropping and my right hand all the way up is swollen. I got x rays yesterday everything came back normal, nothing broke. When I was younger I use have problems with my arms and hands swellen due to my sickle cell. Thank for all the comments and prayers, truly means a lot to me. I’m not much with long post, but did want check in and let you all know how I was doing. If my counts don’t drop no more I could go home. But doc is holding off transfusion.  Which I’m happy about, haven’t had transfusion dis year. God is truly good all the time. Before I end dis post, I got heartbreaking news from my bestie, her cancer has return and now it’s attacking her liver. I actually enjoyed face time with her earlier today, just hear how she doing. 

Posted in Health, My Journey, My Life, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,  I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble.  I can’t do much with it. The doctor mention blood transfusion yesterday,  honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means  a lot to me.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

I’m writing you from my hospital bed once again. I’m not feeling so hot , woke up with a nagging headache. I’m not going home today.  The doctor decided to do x- ray on my wrist since it been giving me trouble. I’m glad to hear no damage. Some time I can have a crisis in my hands and it moves up. I’m right handed so it was making it harder to type.  Still not at it’s best. I’m hoping when I do leave it be in good spirit,  if y’all know like I know. I’m not happy about nurses bn late when my meds, it takes awhile to get my pain uncontroll and with them bn late truly isn’t helping the cause. I pray all is well with each and everyone of you all. So thankful for the prayers….

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello Everyone,

Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia.  I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain.  It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works,  it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Hello World,

Another wonderful day to be alive. Last night was rough due to the weather,  not much damage my way.  I can’t say the same for my neighboring states in the south. Some lost love ones and some lost everything they have. I’m sitting at doctor office waiting to get labs done, so not feeling my best. Let see what my counts tell me. I like coming see him, I get hear how everything looks.  Since im having problems with my shoulder, im not letting them touch my arm to draw labs from. Thankful i have port and itll be first time for them. YIKES! Im working on stressing less over stuff in my life I have no control over. I’m a work in progress. Just left the doctor office, things didnt go as plan with my port it would give the lovely lady back blood. So I had to suck it up and well you know the rest.  My counts holding its own, not its best, but not its worse. I dont belive  he did retic count.  Hopefully my counts can hold to i can see my primary doctor next week. Yes, working on looking for a new one. Thats a post for another time. With all the meds im on, trying break it down see what im allergic to exactly;(. I pray all is well with each and everyone of you all. God Bless

Posted in 2015, AWARENESS, Bless, God, Journey, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Uncategorized, Update

Update

Posted on by poeticjourney

Good Morning,

 

Will be short post, since its Christmas. I posted the last update late. I don’t know what happen. I guess it had bn awhile since I posted that I forgot to take it off draft and hit publish.. lol.  I had some what okay doctor appointment. I got put on more meds. So not happy about that. I got back in Feb, before I leave in March so that’s good. They up my dose on one of my meds. I already know how dis going to go. Lets just say I’m not happy:( . I bn dealing with headaches for like 3 days, not so bad today. I’m listening to music as I type up my post. So that’s helping. I’m loving the weather we having here in the South. Not cold whatsoever. I hope everyone having a lovely Christmas. I don’t believe I ever had a warm Christmas, but I’m so not complaining. Even with the rain. I’m not crazy about the rain because it makes my body aches and can interfere with my illness, but I do love rain. SO love and hate relationship. We trying to see about not depending on pain meds, I like the way that sound. Because I’m bad about going cold turkey a lot, but that could be reason why I be in and out hospital because I do that a lot. Sometime you just want to enjoy life and not be drug up. Just my opinion .  Sorry it took so long to do my updates, with everything going on, with health and holidays. I probably wont post anymore 2 New Year. So I want to wish everyone a Merry Christmas and Happy New years one more time. God bless :). If I forgot anything in the update, will edit later on. I need some sleep. Music do put my mind at ease.  Thank You all for sticking with me on dis bumping ride I call life.

Posted in God, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

I know it’s been awhile since I post. I bn going thru it dis summer.. some times I feel like I should give up, but my sense come back and reminds me. I’m here for a reason. God has last so even when we begging to be taking away. I got out Sunday and I’m pain again . I feel like my cold dawn got worse. Voice almost gone. I know when I left counts wasn’t the best, but I was ready.. if I known I wasn’t ready probably stay little longer.  Almost sickle cell awareness month, we have the bold lips for awareness.. wear your boldest lipstick and take pic and use hash tags. A few weeks when i got out,  had get my scripts . The woman behind counter ask me what sickle cell is, hate say I don’t like talking about it. I got get out of that mind frame n spread word. We lost another warrior a few nights ago. One day it’s going be me. I want to touch so many lives and do so much before I leave. I ask myself am I really living, part of me says I’m not. I’m hurting myself. I bn battling with my faith, illness.. I know God got me, no matter what. It just get so tiring when all u go thru is repeating itself.. hope that make sense, half asleep.. I pray all is well with each and everyone. God bless

Thank for riding with me…

Posted in AWARENESS, My Journey, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless

Posted in 2015, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 4, Living With Sickle Cell Anemia

Posted on by poeticjourney

Not sure how to start my post. I have been sick since Christmas Eve. Didn’t want go E.R are miss bn my family for the holidays. I finally decided to go to E.R Saturday after Christmas,  long as my count was good, they didn’t keep me. I thought I was getting better and ended up worse then Christmas. Two more hospital visits before I was bless with doctor who knew what to do when it comes to my illness. Tuesday morning, I was brought back to E.R, but what a wait cause hospital was book. I know I cried so much that the pain got worse every time. 6 hours waiting to be seen. once I got in back, it went smoothly. Had a good doctor and nurse. I couldn’t walk the first few days. I can walk a lil now but legs still bothering me. I got two units first day here, didn’t work as soon as I got it. Brought my count up to 9, has drop to the 7’s now. Praying it doesn’t drop anymore. I’m still here cause of pain n count dropping. Hoping go home tomorrow but only time will tell. I’ll end it for now and share more at another time. Pray everyone had a good Christmas and New Year. GOD Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄