September is Sickle Cell Awareness and wanted to share the interview from a fellow warrior who experiences same crap I do and many others. Thank You for coming along for my journey. God Bless
Tag: doctor
Update
Good Morning,
Hey World, it’s been awhile since I posted. I have been resting and spending time with family as well as clearing my head with different things going on. August wasn’t a good month for me. I had to make er visit and let’s just say it wasn’t good whatsoever. Had doc appointment following week. Er, visit what can I say, it was hell. They wouldn’t access my port, are oxygen is given me fluids. I got stuck like 6 times just so they could get my labs. I got a pain shot and let’s just say it didn’t work. Finally, after waiting and being in pain they wanted to access my port and give me fluids. Retic was high but counts was somewhat OK and not truly explaining why i was in the pain I was in.What the hell. I rather suffer then step foot in er. The following week my counts wasn’t good. If they had did they job right the first time. I decided to tough it out because I’m never prepared when i have doctor appointments.I didn’t think my post on rant and frustration got much attention. But wow Twitter and here has been going off and on. I guess my words are reaching people. September is sickle cell awareness month, I have been debating on sharing. Frustration knows how to get you. I got tired of reading are hearing another sickle cell warrior has died. I even got to the point I didn’t want get close to anyone else. Yes, I know we all have die. Coming to term to enjoy life, and not worry about death. I pray all is well with each and everyone of you all. God Bless
Day 1, Living With Sickle Cell
Good Evening, I decided to make E.R visited yesterday since the pain wasn’t letting up. My mom actually pushes me to go, so they could give me some fluids and oxygen. Let me tell you I was thankful the doctor I like was working. He actually knows a lot about my illness so that’s a plus. My counts weren’t too bad was in middle 8’s, with an 11 for the retic, which let me know why I was hurting the way I was. With two doses of meds, my pain wasn’t moving. I didn’t catch it in time and that’s nobody fault but mine. I have been resting every since I got on the floor, let me just say probably slept 5 or 10 mins be honest. I can’t rest like I want when I’m hurting. I have been having chest pains on and off over the past week. So he made sure to do an x-ray to make sure I didn’t have an acute chest. I’m hoping and praying these a short stay. I have a nice doctor, she had to change my orders how often I get meds before seen me. That meant so much to me. She took the time out to read my orders and what was done last time I was admitted. I got some good nurses as well. Loving with these disease has taught me a lot. Taught me how to pick up on signs and what not to do when it’s already too late. I was getting upset with myself yesterday cause nothing was touching the pain. I thought I was doing everything right, but it doesn’t matter if you do what need be done. It comes with vengeance over of body. Sorry cut these short, but I’m getting tired hopefully I can get some rest. Truly means a lot if Y’all can keep me in your prayers and thoughts. Until next time, pray every one of you all is well. God Bless
Update
Hey and welcome to my world. It has been awhile since I posted an update on what’s going on. I had doctor appointment Friday morning, and miss it due to a blowout. But thankful we didn’t get hurt. We got someone to help us change the tire, and then the spare was flat. We had to put air in it and made out a way to tire place, to get the two front ones replace. I was two hours late, and they were gone from the clinic. I was so ticked off since I hadn’t been feeling my best whatsoever. I was glad to get my labs when I call the number they gave me. My counts were so so. I was surprised it was high as she said, but she said it was low for the type of Sickle Cell, but retic was high. Now I know why I been having the darn headaches I hate. What a way to start your birthday. I know I mention in few update post on finding a new primary doc, well I have and can’t wait to meet her. I have never had a woman doctor. I had them while in hospital but not as primary or sickle cell doctor. I shall keep you’ll post. My dad had a test the same day I had a doctor appointment to see if the treatments are helping and he just find out Tuesday when he went back for his treatment. Let me tell yall God is truly good all the time. Not just cause he got good news but just cause it has made me realize not to take love ones for granted. I hope everyone is doing good and in good spirits. Remember to let your loved one’s know you love them before it’s too late. I know it’s not much of update since my thoughts are everywhere.
Many Blessings to you all… God Bless:)
Update
Hello World,
It’s bn few days, bn taking things and life slow. As I mention in last post. We find out my dad has cancer. All I know is it serious and I’m not sure just how. I believe and know God has the last say so. I had check up today and counts have drop from 8.8 to 7.5. Doc believe need unit, but I’m not trying have that right now. I bn dealing with headaches and pain lately. I knew it was something but just figure it was the weather. Last time i went er, they did nothing and I was running fever and coughing and whatnot, but since everything looks fine to them sent me home. Smh. I hate when people don’t so they job and think just cause counts fine nothing wrong. Well obvious they was wrong and probably my stressing didn’t help. The kids went back to school yesterday. So that a plus, we can rest and do more when they away learning.. lol.. omg 2 was and some days with them off. I.must say thankful I’m not parent. I know my blogging hasn’t bn consistent in awhile. But more then ever I need be writing clear my head. I need get back in school and finish my degree. My plan for the summer if I live see it.i hope you all rights well and enjoyed the New Year. I read comments and even some post, but bare with me. GOD Bless
New Year (2017)
Good Morning World,
I pray all is well and that we all made it in the New Year. God is truly good all the time.. I may not be feeling my best, but thankful see another day/year. It’s raining where I’m at. Love rain long as I’m not in it and that it don’t interfere with my sickle cell. I hoping to make 2017 better year than the last. Only God knows what we can handle and what we can’t. Idk after receiving some bad news my body is preparing me for big crisis. You don’t expect your love one received bad news that they have cancer. You think they unstoppable. My dad (man of God) as yell know I’m PK. Was sick for few months, after Christmas he finally went doc to receive some news we wasn’t expecting. .ulcer or cancer and his labs was lower then mine for the first time in my life.. he needed to be in hospital receive blood.. my God we could’ve lost him.his counts was 4, and he was still thinking about going work.. me and my brothers and mom talk him into going hospital. Tests was done, he got blood soon as he hit floor. So thankful for people who give blood save so many people lives. He came home yesterday. I had wait till he made it home find out what’s going on. Worrying doesn’t do well with sickle cell person.. colon cancer we don’t know how serious till tuesday. I heard it spread more before leaving hospital.. I want scream, cry but hell that’s not going make it go away. I’ll have finish post another time. I pray yell r doing good. Remember tell your love ones you love them. You never know. GOD Bless
Day 4-5, Living With Sickle Cell Anemia
Good Morning World,
Wanted to do update for y’all. I’m still here, hoping go home today. My counts was still 7 and retic 12. I’m hoping things start looking up today so I can blow dis joint.. lol lately we been getting rain so we have been under tornado watch and flash flood warning as well. As of today my retic is 16 now. Its bee awhile since my retic have been dis high. I was hoping go home today. Ty for the prayers and comments, truly means a lot to me. I have a great doc and nurses. As the doc said to me today. His here to serve me… his truly dedicated to his patients. My right hand is starting get better. It was swelling up, made it hard for me to move fingers. Well I’m going to crash out. Pray all is well each and everyone of you all.
Living With Sickle Cell Anemia
Hello World,
Yesterday I got the word I could go home. I got paperwork on having pneumonia. I’m hoping and praying I’m cleared of it all. I’m not feeling my best, I’m hoping it all past soon. All I want to do is sleep and that’s all I plan on doing. I’m so thankful for all the prayers and comments, truly means a lot to me. I hope to have a update post soon as I’m 100%. I pray all is well with each and everyone of you all. God Bless
Day 3, Living With Sickle Cell Anemia
Hello World, I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble. I can’t do much with it. The doctor mention blood transfusion yesterday, honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means a lot to me.
Day 1, Living With Sickle Cell Anemia
Hello Everyone,
Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia. I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain. It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works, it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)
Poets Afterthought 