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Living With Sickle Cell Disease

Hey and welcome to my world. As of lately, I haven’t been feeling good. I couldn’t use my right hand to do much of anything. Feeling a little better today. I had to make E.R trip Sunday because I was hurting so bad and right hand is and was swollen. I had to debate with myself if I wanted to go. The crisis started late Saturday night, I knew I didn’t want to go that night and be stuck with a lozy doctor with no bedside manners. I know I shared some of my experience with you all in the past. I was worry I would have the same problem as Sunday rolled around. I finally made up my mind go before it got worse. The wait was prob over an hour it was a busy day. Got triage out the way. I did t like the doctor who name was on my band. He was the same doctor that gave me med I’m an allergy to and can kill me. The doctor never wants to listen to the patient. I got a woman doctor who I had when been admitted on the floor. She now works in E.R. Before go into more information on my experience. I have bn going cold turkey without my pain meds. Haven’t had it since June but did have E.R visit last month. So I made sure let her know that. She wanted to just give me fluids and oxygen see if that helps. Red flag, if I could handle my pain at home I wouldn’t be made E.R visit. So I was in pain for over an hour before got med. Thankful counts were looking oh do good, but at the same time I know just because of counts show good report doesn’t mean anything. She was like what should we do. She caught me off guard with that question. I have never got asked that question from a doctor at that hospital. I was like is she pulling my finger she can’t be serious. She was like we going to give you some meds so you can think about it. She even asks what I take. I’m like yea this got me a joke. But she was serious. I decided to go home because I could go to my sickle cell doctor and pick up my prescription. She gave me a look because she knew I was in pain still. And sometimes I do end up returning back to E.R. she gave me three bags of fluids before she discharged me. Sometimes you have been strong when you don’t want to be. Don’t get me wrong I was getting frustrated because of my pain. I wanted to cry and scream but I know to do all that would make it worse. I did have some good nurses that night. And woman got my port on the first try, when I went last month, they had a hard time. I had request a nurse who never miss doing my port. When you hurting, you don’t want to hurt even more. I did pick up on the doctor I don’t like voice and was glad I didn’t have a deal with him. God is good all the time. I did get a chance to see my favorite doctor who got me last time. I wasn’t on his side and he was like she is good. He always let me know what’s up with nurses and doctors. I can talk to him like a friend. Both hospital visits were not so bad. I have started taking my Endari meds again, so I’m taking that’s helping with my counts. My retic was high. I usually get sick and have been admitted in October. Still not 100 percent. I have post and blog when I’m feeling ok to pick up. My hand is still swollen, it’s going all the way up to my shoulder blade, to be honest. I pray all is well with each and every one of you all who read my post. And thank you for the prayers, I can never have enough. God Bless.

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Posted in 2017, AWARENESS, God, Health, My Journey, My Life, Prayers, Sickle Cell Anemia, Thankful

Day 2-3, Living With Sickle Cell

I’m still in the hospital and in a lot of pain. At one point I truly thought, I was getting better, but that’s negative. I haven’t got much rest to be honest.  I started working on the post yesterday, but my body wasn’t having it. Some days I just felt defeated. I haven’t gone 7 months with no hospital stay in a long time. It’s being awhile since I gotten sick. Honestly, we know our body better than anyone. With all the rain we have been getting, I’m not surprised on the way I been feeling! I’m still trying fight the sleep. You know as a child we hated to go school. I pray who all were affected by Tropical Storm Cindy, made it out with no harm.  My count seems to be playing with me big time. Drop all the way 7.3 and following day it comes up to 7.6. I’m feeling much better than I was, which I’m very thankful for. We a lovely visit from my Lil Lady, she had been texting me saying she misses me. That visit I truly needed to brighten my day.  Thank you all for the prayers , it truly means a lot to me. God is truly good all the time. No matter the situation, good or bad. Going end post here since I’m hurting . God Bless

Posted in 2017, AWARENESS, fight, God, Health, Mini Update, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness

Day 1, Living With Sickle Cell

Good Evening, I decided to make E.R visited yesterday since the pain wasn’t letting up. My mom actually pushes me to go, so they could give me some fluids and oxygen. Let me tell you I was thankful the doctor I like was working. He actually knows a lot about my illness so that’s a plus. My counts weren’t too bad was in middle 8’s, with an 11 for the retic, which let me know why I was hurting the way I was. With two doses of meds, my pain wasn’t moving. I didn’t catch it in time and that’s nobody fault but mine. I have been resting every since I got on the floor, let me just say probably slept 5 or 10 mins be honest. I can’t rest like I want when I’m hurting. I have been having chest pains on and off over the past week. So he made sure to do an x-ray to make sure I didn’t have an acute chest. I’m hoping and praying these a short stay. I have a nice doctor, she had to change my orders how often I get meds before seen me. That meant so much to me. She took the time out to read my orders and what was done last time I was admitted. I got some good nurses as well. Loving with these disease has taught me a lot. Taught me how to pick up on signs and what not to do when it’s already too late. I was getting upset with myself yesterday cause nothing was touching the pain. I thought I was doing everything right, but it doesn’t matter if you do what need be done. It comes with vengeance over of body. Sorry cut these short, but I’m getting tired hopefully I can get some rest. Truly means a lot if Y’all can keep me in your prayers and thoughts. Until next time, pray every one of you all is well. God Bless

Posted in 2017, Cancer, Faith, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Update 


Hello World,
It’s bn few days, bn taking things and life slow. As I mention in last post. We find out my dad has cancer. All I know is it serious and I’m not sure just how. I believe and know God has the last say so. I had check up today and counts have drop from 8.8 to 7.5. Doc believe need unit, but I’m not trying have that right now. I bn dealing with headaches and pain lately. I knew it was something but just figure it was the weather. Last time i went er, they did nothing and I was running fever and coughing and whatnot, but since everything looks fine to them sent me home. Smh. I hate when people don’t so they job and think just cause counts fine nothing wrong. Well obvious they was wrong and probably my stressing didn’t help. The kids went back to school yesterday. So that a plus, we can rest and do more when they away learning.. lol.. omg 2 was and some days with them off. I.must say thankful I’m not parent. I know my blogging hasn’t bn consistent in awhile. But more then ever I need be writing clear my head. I need get back in school and finish my degree. My plan for the summer if I live see it.i hope you all rights well and enjoyed the New Year. I read comments and even some post, but bare with me. GOD Bless

Posted in 2016, My Journey, My Life, Sickle Cell Anemia, Update

Day 4-5, Living With Sickle Cell Anemia

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Good Morning World,

Wanted to do update for y’all. I’m still here, hoping go home today. My counts was still 7 and retic 12. I’m hoping things start looking up today so I can blow dis joint.. lol lately we been getting rain so we have been under tornado watch and flash flood warning as well. As of today my retic is 16 now. Its bee  awhile since my retic have been dis high. I was hoping go home today. Ty for the prayers and comments, truly means a lot to me. I have a great doc and nurses. As the doc said to me today. His here to serve me… his truly dedicated to his patients. My right hand is starting get better. It was swelling up, made it hard for me to move fingers. Well I’m going to crash out. Pray all is well each and everyone of you all.

Posted in 2016, God, Health, My Journey, My Life, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

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Hey World,

As you all know if you read my other post, that I’m in hospital.  My counts are still dropping and my right hand all the way up is swollen. I got x rays yesterday everything came back normal, nothing broke. When I was younger I use have problems with my arms and hands swellen due to my sickle cell. Thank for all the comments and prayers, truly means a lot to me. I’m not much with long post, but did want check in and let you all know how I was doing. If my counts don’t drop no more I could go home. But doc is holding off transfusion.  Which I’m happy about, haven’t had transfusion dis year. God is truly good all the time. Before I end dis post, I got heartbreaking news from my bestie, her cancer has return and now it’s attacking her liver. I actually enjoyed face time with her earlier today, just hear how she doing. 

Posted in 2016, Health, My Journey, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Good Evening,

Welcome to my world. I havent  been feeling my best for about week now. Im currently in hospital. This has been my third time over the past few days.. I’m having trouble with my legs. I probably should’ve stayed Thursday when I came in, but I didn’t want be in hospital for Easter.  Lesson learn, I have bn admitted since last night. I’m waiting to see how my counts looking. Thursdays it was 8.6 and retic was 11.  I did have a good Easter with my family. I actually was in good spirits.. no pain so I thought I was getting better. I didn’t get put in my room till after midnight.I was hoping to go dis week without bn admitted. My primary doc is closed to Wednesday. I cant deal with being miserble that long. Going try and get me some rest. Hope all is well with you all. Ill try and keep you posted. God Bless

Posted in Health, My Journey, My Life, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

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Hello World,  I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble.  I can’t do much with it. The doctor mention blood transfusion yesterday,  honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means  a lot to me.

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Hello World,

Another wonderful day to be alive. Last night was rough due to the weather,  not much damage my way.  I can’t say the same for my neighboring states in the south. Some lost love ones and some lost everything they have. I’m sitting at doctor office waiting to get labs done, so not feeling my best. Let see what my counts tell me. I like coming see him, I get hear how everything looks.  Since im having problems with my shoulder, im not letting them touch my arm to draw labs from. Thankful i have port and itll be first time for them. YIKES! Im working on stressing less over stuff in my life I have no control over. I’m a work in progress. Just left the doctor office, things didnt go as plan with my port it would give the lovely lady back blood. So I had to suck it up and well you know the rest.  My counts holding its own, not its best, but not its worse. I dont belive  he did retic count.  Hopefully my counts can hold to i can see my primary doctor next week. Yes, working on looking for a new one. Thats a post for another time. With all the meds im on, trying break it down see what im allergic to exactly;(. I pray all is well with each and everyone of you all. God Bless

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless