Tag: Sickle cell anemia

Posted in AWARENESS, Death, fight, Health, hear me, My Life, poem, Poetry, Sickle Cell Anemia, Sickle Cell Awareness, Thankful

My Life

Posted on by poeticjourney

How can I speak…

when I’m only one

person…

You seem to look…

at me crazy…

Cause of the pain..

and you don’t understand…

Yes,

I’m one in a million…

So many of us or losing..

the fight…

So thankful for the one..

who fought with me..

You may not hear me…

But I know many hear me..

and join me to fight for our..

rights..

Do you hear me?

I hate to yell but hell..

my pain is that intense…

NO act..

over here..

We want Justices…

done…

We tired of been

mistreated..

some die in pain…

because of the abuse from

the one’s…

who supposed to help us..

Do that make you all happy?

see so many dying?

Technical I’m not finish with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month, since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think.  The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for cure for us.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey, welcome to my world! A very short post. I have been under weather lately. Blood count is good n praying doesn’t drop anymore. Had a follow up doctor appointment today.  Over weekend got so bad couldn’t walk r stand. My ankles had swollen up. If it’s not one thing it’s another. My arms and hand hurts, which make it hard to type. I do read when I get the chance,  hoping to have update with more information.  Please do keep me in your prayers. God is good all the time:) I pray all is well with you, you and YOU:)

Posted in 2014, God, Health, My Journey, Update

Update

Posted on by poeticjourney

blogHey Everyone, and welcome to my world.  I haven’t been feeling my best but been trying to do what I can, as of right now. I have made some visit to e.r since my doctor have been on vocation. lets just say them visits’ didn’t go so well. I got sent home every time feeling worse then before. First time I went, had rude nurse practiner… It took God him self for me to hold my peace and not lose it.  Next time to had cool doctor, he explain everything to me on dis visit. Since my blood count looks fine, didn’t see a reason to keep me. He also told me that I know ya’ll can have pain even if blood count looks fine and retic. He tried to do everything he could, but since obamacare everything seems to be difficult to do. Hmm always something. Must admit its getting crazy for me as a person with chronic pain, if meds at home not doing its job. Taking meds and drinking  plenty fluids (water). I guess it a roll into E.R on my death bed then I get treated the proper way. Other then that my plumbing problem is almost taking care of that’s why I’m posting from home. I’m dealing with my nagging headaches, so it’s making it harder for me to post and read like I want 2. So do bare with me. I hope everyone is enjoying there summer, I hate the summer, its hella hot.. And not good for me. Who wants to stay in the house all the time? Looks around not me…  I do pray all is well with each and everyone of you all. So thankful for all who have join my journey. I now I have been slipping big time. So do bare with me, I have been writing, I just need to type it all up so I can share it with  you all.

 

 

I haven’t did update on the lil one’s in awhile. They getting so big and tall. Lil lady is 6 now and Mr. Man is 4. School will be starting soon for lil lady and of course Mr. Man will be going back to Daycare. I must say so glad to be home to enjoy peace and quiet. Maybe my headache will stop. I’m praying it does.. They grow up so fast right? Lil lady have become so freaking sassy its driving me crazy. Nast lil attitude for someone so young. Ha, I think I maybe rubbing off on her with attitude part. Ha. Mr. Man have one as well, and his tantrum is grr… That’s all I’m saying. Nope I’m not missing them whatsoever on this point. On flip side, the MOM who had them finally came home from prison. I must say I haven’t change my mind about her. I need proof that she done change and want to be in her kids life. One visit from my lil lady, she done got worse. Attitude … I already not liking it, but hey I’m not finna stress myself about it.. Another quick way to put in hospital looking crazy… Believe that’s enough update for now…

Posted in 2014, Health, My Journey, Pray, Sickle Cell Anemia, Update

Updated

Posted on by poeticjourney

Hello and Welcome to my world. I got out of hospital the day before the 4th. Blood count had drop 6.5, but I wanted to be home. I’m off my steroids. I had stop taking them before I was cleared. But got the lovely news while in hospital. Had good nurses and my doctor wanted to be on his P’s and Q’s. Surprise me cause I was ready to get rid of him. I’m doing better then I was…Headaches are giving me hell. But I’m pushing on each and everyday. At the moment me and bro staying at parents house, we currently having plumbing problems. I’m missing my peace and quietness. I had update doctor appointment, since been out of hospital. It went good, blood count went up tremendously:) I just wanted fill you in what’s been going on since I been quiet. As of right now I’m not feeling my best and don’t know what’s going on. I’m trying to see how long I can stay out of hospital. Please do keep me in your prayers. Many Blessing:)

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Good Evening, another Bless day. As I mention in last post, I ended up coming to er, and yep stuck here. Feeling much better then I was. I’m praying for a test to come back with good news, so I can stay off my steroids. Its bad enough I have to take meds every day. Must admit, I have had some good nurses. Can’t say nothing negative about them. Makes me wonder if they got there act together since I haven’t been here in awhile. I must admit I prefer to have male nurses. They so sweet, and cute as well. I’m hoping to make did short visit. Got me on oxygen, fluids, and of course pain meds. Guess what I saw my doctor. Hmm is all I can say. Got some x-rays done to see what’s going on. I have been in pain for three weeks, praying and hoping it go away on its own. Soon as I get information , I’ll share with you, when I get time and feeling strong enough to share. Thank you for the prayers, comments, as well as like, truly means a lot. God bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Good Morning, Welcome to my world, I know its been awhile. I have been in pain for over two weeks. I have made time to go ER, lets just say one didnt go so well. I got bless with rude nurse who threaten me and told lies. I thought to myself im not in mood for stupidity when im sick. Yes, did check her once, she got mad slam door. She thought calling my mom make her look better, if you all wonder my age I just said goodbye to my twentys, and dont live with my parents. If you follow me on twitter, you may think im lying about my age. Oh well thats on you. Anyways she been reported, if you dont love your job for whatever reason, get a new one. My other visit was okay, but since hemoglobin was ib 7″s and retic wasn’t to high, rhey gave me fluids, meds. Hmm both times oh and not so favorite oxygen. Im at the point im just tired.  Sighs…. I do have doctor appointment tomorrow, trying hold out. Waiting see blood doctor next week.

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello and Welcome to my world, I know its been awhile since I did update on everything that’s going on with me when it comes to my illness. I was in hospital last week only for a few days. I don’t know what’s going on with me, I done seen inside hospital to last me 100 years. I have been in bed all day, due to me not feeling my best. I’m actually debating going to er as of right now. My left side of my bed feels swollen and I can’t lay on that side. I been tossing and turning, feels like I have a fever. But I don’t, have ac and fan going . Do bare with me, I do read all comments, just haven’t had the time to respond to them all. Thank you for prayers, comments, hugs.. God Bless me with a lovely blogging family….

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and Welcome to my world! I been here since Saturday night. I did get a chance to party with my lil lady. A few pictures was taking, but since I wasn’t at my best. I just wanted my love to enjoy herself. I did have a check up a week ago, it was just the results from labs and x ray! My count had drop and came back up on its own, so happy about it 🙂 One more day here and if everything still good, I’m going home on my b-day! I have some good nurses, doctors on my team. I’m counting down the day I wont have take meds every day. My chest x ray came back good, labs in a way they came back good, but still on the evil steroids.