September is Sickle Cell Awareness and wanted to share the interview from a fellow warrior who experiences same crap I do and many others. Thank You for coming along for my journey. God Bless
Category: Sickle Cell Anemia
Update
Good Morning,
Hey World, it’s been awhile since I posted. I have been resting and spending time with family as well as clearing my head with different things going on. August wasn’t a good month for me. I had to make er visit and let’s just say it wasn’t good whatsoever. Had doc appointment following week. Er, visit what can I say, it was hell. They wouldn’t access my port, are oxygen is given me fluids. I got stuck like 6 times just so they could get my labs. I got a pain shot and let’s just say it didn’t work. Finally, after waiting and being in pain they wanted to access my port and give me fluids. Retic was high but counts was somewhat OK and not truly explaining why i was in the pain I was in.What the hell. I rather suffer then step foot in er. The following week my counts wasn’t good. If they had did they job right the first time. I decided to tough it out because I’m never prepared when i have doctor appointments.I didn’t think my post on rant and frustration got much attention. But wow Twitter and here has been going off and on. I guess my words are reaching people. September is sickle cell awareness month, I have been debating on sharing. Frustration knows how to get you. I got tired of reading are hearing another sickle cell warrior has died. I even got to the point I didn’t want get close to anyone else. Yes, I know we all have die. Coming to term to enjoy life, and not worry about death. I pray all is well with each and everyone of you all. God Bless
Rant and frustration
Hey world,
And welcome to Poets Afterthought, as you all know especially the ones been with me a long time my name was a poetic journey, it’s still my journey. I have sickle cell and been dealing with it all my life. But im truly tired of how we get treated when we go to the Emergency room. Some doctors shouldn’t have a license to treat patients, same goes with nurses. I done had my fair share. I usually keep quiet and don’t say what truly go thru with when I go. I’m just sick and tired of us dying because they believe oh she\he look good. Oh, they count fine, send them home. Basically so we can die and never be seen again. I could go on with the mistreatment we receive. I rather suffer at home than put up with bullshit doctors and nurses. I know by doing that I’m only hurting myself. I was watching video yesterday and it broke my heart, we have lost another warrior. We are not getting proper treatment. Point blank, we basically get screwed. Some times I have waited over 6 plus hours in the waiting room just to be seen. Plenty time for us get worse and die. I done waited a long time as well in the room after been call to back, so I could be seen by a doctor. Hell, half the time they run around chatting and joking with one another. I think it’s ridiculous for me to have been half dead are near death for them to do they damn job. I’m sick and tired of the mistreatment. If only they knew what we feel they would have more compassion. Just find out we lost another person. Some of these doctors and nurses still think it’s black disease but it’s not. I had to get blood work recently and had to get port access. One tech who they love call to try and stick me, knows I’m a hard person. Well, she just told me in my file it says to access my port. I’m wondering why these idiots not trying to do their job correctly, but rather put me thru more bullshit than my body can take. It’s sad when you have to pray that you’ll have a compassion doctor to actually do what need be done. How are we going fight when it seems the ones who suppose help us is letting us die.
Living With Sickle Cell
Good Morning and welcome to my world. Today isn’t a good day for me. Idk what’s going on? It’s too soon have another crisis, then again not really. I suppose if they had done the job correctly last time, I wouldn’t be in this predicament. I so don’t want to go the hospital, but deep down I need to. Chest pain and knee pain. I’m concern about chest pain more than anything. Don’t get me wrong knee pain important as well, cause that means I can’t get around by myself and I can’t have that. I going to end these post here since I’m in so much pain, try update when I’m feeling much better. God Bless and pray everyone in good spirit and health.
Update
Good Morning,
Where do I start, I have been out for almost a week. Still, not my best was glad I didn’t need blood. So that’s truly one good thing. I had a doctor appointment with my sickle cell doctor that Friday. Let’s just say they weren’t happy how I got treated at the hospital. My counts were worse than when I arrive. I truly believe they were trying to make room for other people be honest, that’s not a big hospital and truly not the best. I had some great nurses. I’m so thankful for all y’all prayers and comments.i have read them just hasn’t had the time to approve and respond. I have been working on schedule post for the days when I’m not at my best. Some days are better than others. Today is the fourth I pray everyone has a safe and bless one. If you don’t celebrate trust I do understand, just enjoy your day. I know I haven’t mentioned my dad in awhile, next week he hopefully takes his last treatment. Back to update at doc office, let’s say they weren’t happy that I got discharged so early. All I know wouldn’t want drive is ride a long distance when I’m in pain. So uncomfortable. But I may have to keep that in mind, my health comes first. Seems when we try to do what we need do, we still can have mishaps and get sick. No matter what we do, things will happen to shake our world. I pray all is well with who all that lay they eyes on this message. No matter what you going thru, don’t stop. Push and push some more. God Bless
Day 2-3, Living With Sickle Cell
I’m still in the hospital and in a lot of pain. At one point I truly thought, I was getting better, but that’s negative. I haven’t got much rest to be honest. I started working on the post yesterday, but my body wasn’t having it. Some days I just felt defeated. I haven’t gone 7 months with no hospital stay in a long time. It’s being awhile since I gotten sick. Honestly, we know our body better than anyone. With all the rain we have been getting, I’m not surprised on the way I been feeling! I’m still trying fight the sleep. You know as a child we hated to go school. I pray who all were affected by Tropical Storm Cindy, made it out with no harm. My count seems to be playing with me big time. Drop all the way 7.3 and following day it comes up to 7.6. I’m feeling much better than I was, which I’m very thankful for. We a lovely visit from my Lil Lady, she had been texting me saying she misses me. That visit I truly needed to brighten my day. Thank you all for the prayers , it truly means a lot to me. God is truly good all the time. No matter the situation, good or bad. Going end post here since I’m hurting . God Bless
Day 1, Living With Sickle Cell
Good Evening, I decided to make E.R visited yesterday since the pain wasn’t letting up. My mom actually pushes me to go, so they could give me some fluids and oxygen. Let me tell you I was thankful the doctor I like was working. He actually knows a lot about my illness so that’s a plus. My counts weren’t too bad was in middle 8’s, with an 11 for the retic, which let me know why I was hurting the way I was. With two doses of meds, my pain wasn’t moving. I didn’t catch it in time and that’s nobody fault but mine. I have been resting every since I got on the floor, let me just say probably slept 5 or 10 mins be honest. I can’t rest like I want when I’m hurting. I have been having chest pains on and off over the past week. So he made sure to do an x-ray to make sure I didn’t have an acute chest. I’m hoping and praying these a short stay. I have a nice doctor, she had to change my orders how often I get meds before seen me. That meant so much to me. She took the time out to read my orders and what was done last time I was admitted. I got some good nurses as well. Loving with these disease has taught me a lot. Taught me how to pick up on signs and what not to do when it’s already too late. I was getting upset with myself yesterday cause nothing was touching the pain. I thought I was doing everything right, but it doesn’t matter if you do what need be done. It comes with vengeance over of body. Sorry cut these short, but I’m getting tired hopefully I can get some rest. Truly means a lot if Y’all can keep me in your prayers and thoughts. Until next time, pray every one of you all is well. God Bless
Sickle Cell Awareness
Today is World Sickle Cell Awareness Day. Every day is sickle cell awareness day to me. Go out and get tested, as well as go out donate blood of you can. God has truly blessed me to be still alive. Living with these disease has taught me so much about life and prayers. Today I’m not feeling my best, but trying stay calm and relax. I just wanted to come on here and share it with you’ll. Too many warriors have died in past few weeks and it truly breaks my heart.
Let’s spread the word, never know who live you may help. It means a lot
Living With Sickle Cell Anemia
Today isn’t a good day, I have been hurting since Tuesday. I haven’t seen inside hospital e.r since the beginning of the year. Some days are better than the others. I may be going to the hospital later today, but let me tell you, that’s the last thing I want to do be honest. But the meds aren’t working, I haven’t had pain meds that hospital give it a long time. I have been taking nerve meds to relax, but it’s not working. So I know what I need to do… It’s the idea of ignorant doctor knowing more about my illness that’s turns me off on going to be treated. I truly believe some doctors are out to kill a lot of us with this illness.. Oh, your blood count looks fine, so we not going to do anything. The last time I went. My retic was high, did the idiot check my counts nope just retic. Did he give me any meds that I was suppose to get. Nope, he gave me something I never had before and it made me feel worse. Did he give a damn, nope. They truly believe giving us fluids should help without proper care. I just hope when I do go to the hospital I don’t have to deal with idiot doctor. My whole body is betraying me in the worse way. sighs…Do keep me in your prayers, I’ll be cutting these post short, because hurting too bad to focus properly. I pray all is well with each and every one of you. God is truly good all the time,
no matter what we go through. He got us.
Update
Hey and welcome to my world. It has been awhile since I posted an update on what’s going on. I had doctor appointment Friday morning, and miss it due to a blowout. But thankful we didn’t get hurt. We got someone to help us change the tire, and then the spare was flat. We had to put air in it and made out a way to tire place, to get the two front ones replace. I was two hours late, and they were gone from the clinic. I was so ticked off since I hadn’t been feeling my best whatsoever. I was glad to get my labs when I call the number they gave me. My counts were so so. I was surprised it was high as she said, but she said it was low for the type of Sickle Cell, but retic was high. Now I know why I been having the darn headaches I hate. What a way to start your birthday. I know I mention in few update post on finding a new primary doc, well I have and can’t wait to meet her. I have never had a woman doctor. I had them while in hospital but not as primary or sickle cell doctor. I shall keep you’ll post. My dad had a test the same day I had a doctor appointment to see if the treatments are helping and he just find out Tuesday when he went back for his treatment. Let me tell yall God is truly good all the time. Not just cause he got good news but just cause it has made me realize not to take love ones for granted. I hope everyone is doing good and in good spirits. Remember to let your loved one’s know you love them before it’s too late. I know it’s not much of update since my thoughts are everywhere.
Many Blessings to you all… God Bless:)
Poets Afterthought 