Category: AWARENESS

Posted in AWARENESS, My Journey, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless

Posted in 2015, AWARENESS, God, Health, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey peeps, welcome to my world! It has being hella hectic for me since weather hasn’t bn good to me.  I was just in hospital last week and got out Sunday, and hello back th’s following week. I’m so ready for Spring! I’m in process of meeting with pain management doctor soon. I see my sickle cell doctor dis week. Haven’t seen him in months, was need to get my crisis under wraps. I’m at the point I need drop my primary doctor a.s.a p. Dont want to stress about it while recovering. I’m Praying I don’t have see inside hospital unless it’s for blood work or surgery. Pray all is well with each and everyone of you all. I got Bless with some good doctors and nurses. Remember I said doctor,  I go to the other hospital that my doctor not connected with..Thank GOD. I’ll end post here so I can get some rest. But before I do, count is up, oxygen strong, so it blood pressure, pulse. GOD is truly good. Lil pain not as bad as it was:)

Posted in 2015, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 4, Living With Sickle Cell Anemia

Posted on by poeticjourney

Not sure how to start my post. I have been sick since Christmas Eve. Didn’t want go E.R are miss bn my family for the holidays. I finally decided to go to E.R Saturday after Christmas,  long as my count was good, they didn’t keep me. I thought I was getting better and ended up worse then Christmas. Two more hospital visits before I was bless with doctor who knew what to do when it comes to my illness. Tuesday morning, I was brought back to E.R, but what a wait cause hospital was book. I know I cried so much that the pain got worse every time. 6 hours waiting to be seen. once I got in back, it went smoothly. Had a good doctor and nurse. I couldn’t walk the first few days. I can walk a lil now but legs still bothering me. I got two units first day here, didn’t work as soon as I got it. Brought my count up to 9, has drop to the 7’s now. Praying it doesn’t drop anymore. I’m still here cause of pain n count dropping. Hoping go home tomorrow but only time will tell. I’ll end it for now and share more at another time. Pray everyone had a good Christmas and New Year. GOD Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello and welcome to my World! I have been in and out of hospital for past few weeks. Back in school so That’s taking up my time, but I’m praying to get back on top of blogging and visiting with you all. The first time in hospital was short stay, blood pressure kept dropping while I was sleeping. Second time was last week of October, seem I have warm antibodies again, and I haven’t had transfusion in awhile. Idk what’s going on, but I’m happy they not putting me on steroids for now. It would do more danger them anything. I have to have surgery in right arm down road. Blood count was dropping.  But no to to transfusion.  I had good nurses… got favorite male nurse, name Denny, such a sweetie. GOD truly bless me with lovely and caring nurses. Had good female nurses as well. My favorite was Nikki:) good doctor as well. I have miss reading y’all blogs and hearing from you all. I pray all is well with each and everyone of you

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄

Posted in AWARENESS, Death, fight, Health, hear me, My Life, poem, Poetry, Sickle Cell Anemia, Sickle Cell Awareness, Thankful

My Life

Posted on by poeticjourney

How can I speak…

when I’m only one

person…

You seem to look…

at me crazy…

Cause of the pain..

and you don’t understand…

Yes,

I’m one in a million…

So many of us or losing..

the fight…

So thankful for the one..

who fought with me..

You may not hear me…

But I know many hear me..

and join me to fight for our..

rights..

Do you hear me?

I hate to yell but hell..

my pain is that intense…

NO act..

over here..

We want Justices…

done…

We tired of been

mistreated..

some die in pain…

because of the abuse from

the one’s…

who supposed to help us..

Do that make you all happy?

see so many dying?

Technical I’m not finish with it but wanted to get it up, while I have the time and strength to share. I wanted to share it last month, since it was Sickle Cell Awareness Month. But you all know its every day for me… Do enjoy and let me know what you think.  The poem says a lot, so many sickle cell warriors have died this year. We don’t have it easy when we go to E.R/hospital. Since so many don’t know what it is or what we go through. We get sent home in pain or mistreated while been in hospital. I know you all have read a few of my post, and know I had could not so good nurses and doctors. I’m praying for cure for us.

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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I have some good news to share, where should I start. Yesterday I got okay come home or stay another night cause of xray of my arm. Must say blood test came back false, no steroids.  I’m so excited! God is truly good:) maybe later on u have to have another xray to make sure I don’t need surgery. I must admit hip surgery is more for me then shoulder!  It won’t be long post. I did enjoy seen my lil lady,  not happy on
cold weather.  I’m praying I don’t have set back. Hope all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world. I must say I’m not home yet, which I had got my hopes up on going home. I’m praying for tomorrow.  Still in some  pain, but not as bad as when I got admitted. So thankful for all the comments and prayers, truly touch my heart:) blood count came back up on its own, and guess what dropping slowly but surely. I have to be put back on steroids,  and nope not happy about it. If I don’t take them it could do more harm then anything,  but honestly I believe it make me sick at same time. I hope I can get some rest in a few.  I believe I shall wrap it up and try get comfortable.  I  have had some good nurses dis time around,  which is a plus. I hope all is well with each and everyone of you all.  God Bless

Posted in AWARENESS, Children, Health, Heartbreaking Story, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hey Welcome to my World!  I Had to make a trip to hospital. Monday I came and got fluids and meds,  find out I was dehydrated.  I take it Tuesday must got the best out of me. Rain isn’t good for me. I woke up Wednesday morning in pain from head to toe. You can only imagine how I was feeling at the time. I hate coming to E.R you always got to wait forever and a day. Doesn’t matter how early you come in. I had bad experience Monday when I came in. The guy half did his job, and four people that got here after I did. I’m wondering wdh going on.

My count is dropping slowly.I’m still in pain, but not as bad as it was when I came in Wednesday. Be a lovely thing if I had no pain whatsoever.  What dis cruel world coming to. 8 year ole find dead in ditch with nothing on. So many people trying come to terms with such heartbreaking news.  Praying for the family. Well believe I cut it short, pain and sleep. I pray all is well with you all. God Bless