Posted in 2014, AWARENESS, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDHello and Welcome to my World. I done had two different check ups since I been home. I have one more towards the end of the month. I’m still working on changing primary doctors. I can’t say I’m surprise that the hospital I been going to don’t do business with some doctors here. I must say I met a lot of nurses that work with the hospital I used to go to and know my doctor very well. Like I told him since you wouldn’t admit me the first time, I had to go to another hospital. I refuse to be in pain, and you suppose to be my primary doctor. I’m still waitingΒ  on my labs from last week and to see how my chest x-ray looks. Umm I did all this last Thursday, and still haven’t heard crap. I haven’t had my steroids since I got out of hospital last week. You would think he would let me know something. I done call office a few times. I saw my blood doctor today, and got good report. My blood count is good, still holding its on. I couldn’t be more happy. I’m dealing with headaches once again, seems like there getting worse every since I got sick last time. I’m praying I don’t see inside hospital for nothing, but I know that’s not going to happen. I went last week to get xray and stuck. I believe nurses hate to see me coming. I give them one chance to stick me, hello I have port, put it to use. But the last two different people from both check ups, did good.

Posted in 2014, God, My Journey, Sickle Cell Anemia, Update

Day 4-6,Living With Sickle Cell Anemia

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Hello and Welcome back to my world! I’m still in hospital, but today is my lucky day! I’m going home πŸ™‚ Feeling much better, so bless to not receive blood on dis visit! I would’ve stand strong and not accept it! My God had me in his hands! What a mighty God we serve. Going home with blood count still holding its own! I’m praying I wont see inside a hospital no time soon. My birthday month coming up, as well as Lil lady,she graduates! I want be healthy to enjoy it. I have engagement party next week! I’m doing everything to not get sick , so idk whats going on! Besides my body in a fight of its life. Thank for all the prayers, comments, mean so much to me. I never thought I would share my journey and it would touch so many lives. It took a kind hearted nurse to plant the seed and I’m still here sharing

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

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Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better πŸ™‚ Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all πŸ™‚

Posted in 2014, Faith, God, Journey, Love, My Journey, poem, Poetic, Poetry, Strength

Against All Odds

I learn to fight
I shed tears, question
Myself if I was meant for
These journey with Warriors
Against All Odds.
God showed me just how..
Strong I was to be Warrior..
He knew what he was doing
When he created me
Against All Odds .
I showed strength, when I wanted
To give up
God showed me love…
In the midst of storm
He showed me I’m nothing
Without him..
Reminded me to hold on to
Faith…
Against All Odds..
4/18/14
PJ

Dedicated to my journey of life. No matter what you going thru his right there in the midst! Don’t stop fighting/ believing in him..No matter my odds, God had everything in control… Not sure if I’m happy with this piece, do let me know what you think πŸ™‚

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Hey Welcome to my world! I’m home and doing good! I have little doubt and fear in back of my head since I wasn’t supposed get transfusion, but then again I wouldn’t be among the living! Will praying for the best! I know my God got me! My blood count was a 9, after I got blood, it drop to 7.2, before I came home it went back up 7.9! God is good πŸ™‚ I’m still on my steroids, I maybe on them longer, since I received blood against all odds! I’m looking into new primary doctor, I made my mind up on new hospital from now on! I’m touch by all your love and prayers, comments πŸ™‚  it has been 6 months 4 days since my hip surgery πŸ™‚

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 6-7, Living With Sickle Cell Anemia

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Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived.Β  I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening.Β I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2!  So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 4-5,Living With Sickle Cell Anemia

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Hello welcome to my world! Im still in hospital, and lets just say what a hell of a way to start my morning! My count has dropped 5.2, seem I had to get threatened to even consider transfusions. My options were have heart attack or my kidney failure! Lastnight was rough on me, seem my knee got swollen on the leg just had surgery on. Cant move it much or put pressure on it. They mention trying pull fluid from it, lets just say your girl flipped out. That was big ole needle and it didnt sit well with me. Mri didn’t sit well with me!! Idk how my lil heart handle all that stress lastnight. Right now im in some pain, so I shall end it here and hopefully update tomorrow! Thank you all for comments and prayers! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later πŸ™‚ All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless