Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

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Good Evening, another Bless day. As I mention in last post, I ended up coming to er, and yep stuck here. Feeling much better then I was. I’m praying for a test to come back with good news, so I can stay off my steroids. Its bad enough I have to take meds every day. Must admit, I have had some good nurses. Can’t say nothing negative about them. Makes me wonder if they got there act together since I haven’t been here in awhile. I must admit I prefer to have male nurses. They so sweet, and cute as well. I’m hoping to make did short visit. Got me on oxygen, fluids, and of course pain meds. Guess what I saw my doctor. Hmm is all I can say. Got some x-rays done to see what’s going on. I have been in pain for three weeks, praying and hoping it go away on its own. Soon as I get information , I’ll share with you, when I get time and feeling strong enough to share. Thank you for the prayers, comments, as well as like, truly means a lot. God bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Good Morning, Welcome to my world, I know its been awhile. I have been in pain for over two weeks. I have made time to go ER, lets just say one didnt go so well. I got bless with rude nurse who threaten me and told lies. I thought to myself im not in mood for stupidity when im sick. Yes, did check her once, she got mad slam door. She thought calling my mom make her look better, if you all wonder my age I just said goodbye to my twentys, and dont live with my parents. If you follow me on twitter, you may think im lying about my age. Oh well thats on you. Anyways she been reported, if you dont love your job for whatever reason, get a new one. My other visit was okay, but since hemoglobin was ib 7″s and retic wasn’t to high, rhey gave me fluids, meds. Hmm both times oh and not so favorite oxygen. Im at the point im just tired.  Sighs…. I do have doctor appointment tomorrow, trying hold out. Waiting see blood doctor next week.

Posted in 2014, God, My Journey, Sickle Cell Anemia, Update

Day 4-6,Living With Sickle Cell Anemia

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Hello and Welcome back to my world! I’m still in hospital, but today is my lucky day! I’m going home 🙂 Feeling much better, so bless to not receive blood on dis visit! I would’ve stand strong and not accept it! My God had me in his hands! What a mighty God we serve. Going home with blood count still holding its own! I’m praying I wont see inside a hospital no time soon. My birthday month coming up, as well as Lil lady,she graduates! I want be healthy to enjoy it. I have engagement party next week! I’m doing everything to not get sick , so idk whats going on! Besides my body in a fight of its life. Thank for all the prayers, comments, mean so much to me. I never thought I would share my journey and it would touch so many lives. It took a kind hearted nurse to plant the seed and I’m still here sharing

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

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Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better 🙂 Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 6-7, Living With Sickle Cell Anemia

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Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived.  I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening. I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2!  So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless

Posted in 2014, Death, Health, Journey, My Journey, poem, Poetic, Poetry, Sickle Cell Anemia

Warriors

So many fighting diseases behind
Close doors…
Breaks my heart to hear
So many losing the battle…
You see our smile,
But not know our pain..
Fighting to live..
Holding back tears
So many warriors dying
From sickle cell, lupus, ms, cancer
And so many other diseases…
I never consider myself a warrior
Warriors coming out the closet
And letting the world know
I’m not a shame, my disease isn’t me..
Warriors are the ones,
Who keep moving when the
World has turn there back on us…
Warriors
Keep marching to our heavenly
Father call you home..

4/10/14
PJ

Dedicated to so many falling warriors. Quit judging when you don’t know the whole story! God Bless.. Feel as if I can add more..

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 4-5,Living With Sickle Cell Anemia

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Hello welcome to my world! Im still in hospital, and lets just say what a hell of a way to start my morning! My count has dropped 5.2, seem I had to get threatened to even consider transfusions. My options were have heart attack or my kidney failure! Lastnight was rough on me, seem my knee got swollen on the leg just had surgery on. Cant move it much or put pressure on it. They mention trying pull fluid from it, lets just say your girl flipped out. That was big ole needle and it didnt sit well with me. Mri didn’t sit well with me!! Idk how my lil heart handle all that stress lastnight. Right now im in some pain, so I shall end it here and hopefully update tomorrow! Thank you all for comments and prayers! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless