I knew it was the Lord on my side
I thank God for him
stepping in fighting my battles…
Where would I be without him?
I knew it was the Lord.
The way he heals me…
how he brought me out…
The way he protected me.
When I was near death…
I’m so thankful for how he
Watches over my loved ones
When I couldn’t do it on my own.
I knew it was…
The Lord On My Side…
2/1/13
~PJ~
Since its poetry month, wanted to share a poem with ya’ll. it’s an old one but still speaks to my heart and soul. God Bless:)
Hello and Welcome to my world. Today isn’t a good day. In a lot of pain and hurts to walk. I was hoping I wouldn’t have to make ER visit, but the pain has got the best of me. Make it hard for me to walk. Got to the point when I did get out bed, pain shot up and had to wait to it calm down some. After debating with myself I decided to go. Maybe with the help of my parents telling me to go before getting worse. Finally got dress, that took almost 25 mins since I was hurting. I had a long wait. I was praying wouldn’t be full, but that wasn’t the case. The pain was getting worse while I waited. Think about 2.5 hours or more before they call me to the back. I was glad to get on the back side where I knew to get better care. I had Richard who’s my favorite and know how to take care of sickle cell patient. I had a woman in register said she misses me because she used to see me so much. I thought that was funny, and told her I switch my eating habit and that has helped a lot. With the cold weather, we having made it hard to stay from hurting. I had good nurses. It truly helps when you have a good team helping take care of you. My counts want the best, and the retic count was high as well. I had three does before I was discharged. I knew I wasn’t 100 percent but didn’t want to be admitted. But the body was still hurting but did help to sleep majority the next day. I wasn’t getting much rest. As of today, it’s bn a week and day since her visit. I’m still not my best. I’m doing everything to keep calm and rest as much as possible. I refuse to go back, but if I have to go back. I might its been a while since I been admitted. Almost a year come in May. Living with this illness take a toll on the body and the person but as well as the family. Until next time hope everyone staying warm. God Bless
What powerful message. I’m pretty sure it may speak to others as well. When trying to reach a certain goal when we think I can’t do it. Make me think on goal I had on going to college, and me struggling with a certain test. It was impossible but I got it and succeed. Never let fear take over and you miss out on your dreams
What a powerful message, with sickle cell were always told what we can’t do. Growing up I use to push my limits and pay for it at night. Why do we always let people say what we can’t do, when we can do whatever if we put our mind to it.
So many dying around us.
Young and old.
Will it ever be a cure.
So many deaths.
I’m tired of reading we lost
Somebody.
Somebody family is hurting
And suffering.
When will our care get better?
She/he fighting for their life.
Sickle cell
Needs a cure
And doctors/nurses who care.
Were tired of getting judge
Just cause you don’t know our pain
And understand our disease
When will y’all do right by us
So many dying
I’m tired of reading we lost
Warriors.
This fight is getting difficult.
Seems nobody cares
So many dying
Young and old
We fighting to live
each and every day.
All we want is just to live
2/10/19
PJ Prim
Good Morning and Welcome back to my world. Finally made it to my sickle cell doctor and must say glad be back on some of my meds. So far my sleep is blah. I done got out of bed, so many times. Either use restroom or something to drink. I done fold clothes up, played a few games on my phone. Why Am I Up? I need sleep, like right now. Guess I took my sleep meds late and body is like oh no we ain’t with that. Sighs. Tossing and turning and dealing with pain.
As some of yall may know if you been with me for a while. My dad has cancer. Well, he had to have surgery back in November because one wasn’t shrinking. It was getting bigger. The surgery went well. Thank God. He went for a scan last week to see how the others are doing since starting treatment again. They shrinking but two of them. The doctor wants to go in and remove them. My dad was like like let me think about it. In other words, pray about it and talk to the wife about it. You know God is good all the time. No matter what you going through. I can’t imagine not having my dad. When we find out a few years ago. It was shocking. We could have lost him. I thank God for that doctor appointment after Christmas. His counts were low. We knew something was wrong, but never in million years, we think it was cancer. We had to literally tell him to go to the hospital. He needed blood because he was losing it, and to see what was going on. His primary was like it maybe its cancer or an ulcer.
My nephew just celebrated his 9 birthday these past weekend. They grow up so fast. Where has the time gone? He celebrated his bday at the bowling alley. Second year in a row. No bowling, he chooses the arcade and lazor tag.
Hey and welcome to my world. It’s been a while since I wrote anything about my disease. Every since new year came in I have been hurting and dealing with a minor crisis. I have made two e.r visits. The first one I should have stayed but I felt like I was better but let me tell you it was all in my head because I got worse but refuse to go right back. When you been thru hell with medical staff people you choose to go home then being judge from people who don’t know your illness. I ended up going back Sunday and counts had come back up but was still hurting. A different doctor that day and since counts look better they wouldn’t admit me. So I had tough it out at home.
I haven’t seen my sickle cell doc since September and ended up losing my primary doc because she moved back home. Without primary doc, you can’t get in to see a specialist without a referral. So I have been without my meds since November. I must admit I don’t miss taking them, but I know my folic acid is a must have for me. To help me stay healthy. You don’t realize how much you so dependent on meds, like my sleep meds. I haven’t been sleeping lately. I hate the pain meds they have me on, makes me itch and let me tell u I hate scratching. The E.R did a number on me. I have so many fresh scratch marks on me from a week ago. Nope, they haven’t healed yet. I have been taking over counter meds to help with minor pain. I finally find a new primary doc and hope meet her next month. My blood doc got me in to see my sickle cell doc next month on 4, so I’m happy about that. It’s odd how I can see cancer/hematology doc without a referral. So thankful for him. Also get labs and result on the same day. My count has dropped once again. Guess that’s why I been cold so much lately and hurting. Winter is heck on my body. All I want is feel normal without pain, but I wouldn’t wish my illness on anyone. It amazes me how many nurse and docs have compassion and the ones who don’t. Are we allowing frustration of someone we once love to destroy the compassion we have as human beings?
how you just swept in and blew us away.
I mean the calendar said September you would
arrive.
I must say, I wasn’t prepared but truly did enjoy it
I get to pull my long sleeves out
dress up my tank top with a jean jacket
to keep me warm and safe.
My body may not agree with my words,
but I can’t help myself.
Fall
you done, did it?
Michael didn’t have anything on you.
Heart goes out to the ones that are suffering.
But Fall,
you brought the windy weather
And turn my world upside down.
Fall
Has finally arrive
10/8/18
~PJ~
So many fighting diseases behind
Close doors…
Breaks my heart to hear
So many losing the battle…
You see our smile,
But not know our pain.
Fighting to live.
Holding back tears
So many warriors dying
From sickle cell, lupus, ms, cancer
And so many other diseases…
I never consider myself a warrior
Warriors coming out the closet
And letting the world know
I’m not a shame, my disease isn’t me.
Warriors are the ones,
Who keeps moving when the
The world has turned there back on us…
Warriors
Keep marching to our heavenly
Father call you home.
4/10/14
PJ
Dedicated to so many falling warriors. Quit judging when you don’t know the whole story! God Bless. Feel as if I can add more.
Wanted to share it again for the month of September to bring more awareness to sickle cell since it was sickle cell awareness month. But as many of you may know I try to share it much as possible.
Poets Afterthought 