Posted in 2016, Health, My Journey, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Good Evening,

Welcome to my world. I havent  been feeling my best for about week now. Im currently in hospital. This has been my third time over the past few days.. I’m having trouble with my legs. I probably should’ve stayed Thursday when I came in, but I didn’t want be in hospital for Easter.  Lesson learn, I have bn admitted since last night. I’m waiting to see how my counts looking. Thursdays it was 8.6 and retic was 11.  I did have a good Easter with my family. I actually was in good spirits.. no pain so I thought I was getting better. I didn’t get put in my room till after midnight.I was hoping to go dis week without bn admitted. My primary doc is closed to Wednesday. I cant deal with being miserble that long. Going try and get me some rest. Hope all is well with you all. Ill try and keep you posted. God Bless

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Hello World,

I have bn feeling bad since yesterday. I don’t know what’s going on. I thought about going to hospital but truly tired of seen inside of hospital and doctors. Having trouble trying get comfortable so I can sleep. My left side is giving me a lot of trouble. I have bn getting plenty rest for the past two days, sad to say that’s all I bn wanting to do to be honest. I’m feeling much better then I was. I haven’t bn in the mood write or post much. I have bn reading some of y’all blogs when I had the energry.  We bn getting rain for the past few days.  Actually got really bad last night. Sorta have update in dis post. I pray all is well with each and everyone of you all. God Bless

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Hello World,

I’m late with sharing how I’m doing.  I have bn resting and trying recovery.  I have bn doing a lot of writing. Dis post will be short till I’m at my best to do a update. I have doc appointment Monday.  I may then do update then. My counts was holding it’s on I think. A lot has bn going on so I can’t remember if it was or not. Already dealing with fevers and nausea and vomiting. Which I’m not happy about it. So last night was rough had allergic reaction to something. I didn’t get much sleep. So hoping tonight I succeed.

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Living With Sickle Cell Anemia

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Hello World,

Yesterday I got the word I could go home. I got paperwork on having pneumonia. I’m hoping and praying I’m cleared of it all. I’m not feeling my best, I’m hoping it all past soon. All I want to do is sleep and that’s all I plan on doing. I’m so thankful for all the prayers and comments, truly means a lot to me. I hope to have a update post soon as I’m 100%. I pray all is well with each and everyone of you all. God Bless

Posted in Health, My Journey, My Life, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

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Hello World,  I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble.  I can’t do much with it. The doctor mention blood transfusion yesterday,  honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means  a lot to me.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

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Hello World,

I’m writing you from my hospital bed once again. I’m not feeling so hot , woke up with a nagging headache. I’m not going home today.  The doctor decided to do x- ray on my wrist since it been giving me trouble. I’m glad to hear no damage. Some time I can have a crisis in my hands and it moves up. I’m right handed so it was making it harder to type.  Still not at it’s best. I’m hoping when I do leave it be in good spirit,  if y’all know like I know. I’m not happy about nurses bn late when my meds, it takes awhile to get my pain uncontroll and with them bn late truly isn’t helping the cause. I pray all is well with each and everyone of you all. So thankful for the prayers….

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

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Hello Everyone,

Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia.  I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain.  It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works,  it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)

Posted in AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Hello World,

Another wonderful day to be alive. Last night was rough due to the weather,  not much damage my way.  I can’t say the same for my neighboring states in the south. Some lost love ones and some lost everything they have. I’m sitting at doctor office waiting to get labs done, so not feeling my best. Let see what my counts tell me. I like coming see him, I get hear how everything looks.  Since im having problems with my shoulder, im not letting them touch my arm to draw labs from. Thankful i have port and itll be first time for them. YIKES! Im working on stressing less over stuff in my life I have no control over. I’m a work in progress. Just left the doctor office, things didnt go as plan with my port it would give the lovely lady back blood. So I had to suck it up and well you know the rest.  My counts holding its own, not its best, but not its worse. I dont belive  he did retic count.  Hopefully my counts can hold to i can see my primary doctor next week. Yes, working on looking for a new one. Thats a post for another time. With all the meds im on, trying break it down see what im allergic to exactly;(. I pray all is well with each and everyone of you all. God Bless

Posted in 2016, Death, family, fight, God, Goodbye, Health, poem, Poetic, Poetry

Preparing

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To say goodbye….
Its heartbreaking…
To hear you have lost…
The will to fight…
You have refuse to even…
Try…
I hear they are bringing in reinforcers
as last resort….
To hear you lose…
Who you use to be…
Breaks my mother’s…
Heart. .
Preparing…
To not have you here…
Anymore is heartbreaking….
You was the woman to keep the…
Family together….
Today…
We got the call…
You coded…
The burden became too much. .
My God….
I thought you would be here …
A little longer….
Me and my mom…
Was just talking…
About you and how the old you
we thought returned… 
But God needed you more…
Preparing is no more…
Death is all around me…

2/18,21/16
~PJ~

I bn working on dis poem for a few days. I didn’t know how to finish it and I honestly thought I had plenty time to finish it before she pass. No matter how often you think you may have more time with a love one. You need to let them know how you feel. Tomorrow isn’t promise to anyone, no even a second, minute. Tonight I find out I lost a family member as well. So the poem hits me even harder then before

Posted in 2016, AWARENESS, fight, Health, Journey, My Journey, My Life, Sickle Cell Anemia, Update

Update

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Welcome to my world, I know it bn awhile since I wrote or had the courage to type. I have bn going thru a lot with my illness and dealing with idiot doctors  I’m glad it’s finally finna be some warm weather we’re I’m at.  I’m having more trouble with my shoulder so I have voice or either wait to I’m feeling upto typing.  I also bn thinking what to do about my blog since I have bn abandoning it lately. I supposed I could do a post just talking to you all once a week about my week about what’s going on with me on my side of the world. I pray everyone had a good valentines day with there loves. I don’t do valentines,  I see that as a every day thing,  not just one time thing. But hey that’s just me. As I mention early in post about idiot doctors,  seem to be having trouble when I go to er . I have do farther off, and that’s foolishness to me. Last weekend I suffer to Tuesday.  Honestly I didn’t have the strength to temp move and be bother with people. I tend to have attitude when I’m hurting. Some say mean as a snake. I was glad know my counts went up a little after starting my meds I hate. I had went see sickle cell doctor back in December and they up my hydrea that I help, supposed help less my crisis but also makes me throw up and not want to drink water. I have to drink water, that’s  a must for me. I was throwing up blood and I had stop it and go back to the other one till I see doc next week. Ill end post till Wednesday,  hope all is well with each and everyone of you all. God Bless