Posted in AWARENESS, family, Friends, God, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia

thumbnailSCDHello Everyone,  I’m finally home, been home for a few days now, spending time with my love one’s. Getting much rest as possible. I must admit I’m so glad to be home, so can’t wait to be feeling my best. I usually would have this post up already, but still not 100 percent. I’m hoping sometime this week to know if my blood count has went up some more. Before I left it was still in the 5’s and we all know that’s not good. I must be honest with you all. Only Lauren knows whats going on with me. Right now I’m not doing good. I was supposed to have surgery on my birthday to have hip replacement, due to my illness. But that’s when I find out I had warm antibodies in me, because I done had so many transfusions, that’s why I can’t have anymore right now. I have been on the meds for over a month,and there not doing anything for me. I’m getting a lil discouraged, I must admit that to you all. I have been at my lowest last week and wanted to throw in the towel. I don’t know if it’s because I was just tired because of my health, and everything just wasn’t going my way or just cause the devil was just trying to get the bet of me. I believe it was a little of both. I’m not thinking that anymore. I know God isn’t finish with me yet, I’m here for a reason, so I need to continue to hold on and continue to fight to he calls me home to be with him. I’m so touch and feel so much love by all of your comments and prayers, it truly meant so much to me. I got to many visits from family and love one’s and calls from my best friend and TN, y’all thank you for praying for her mom her who had a stroke, she is doing so good. She has been there for me and so has her brother. They  have been keeping me laughing and if I couldn’t sleep staying up with me, and just praying for me. I couldn’t ask for two great group of lovely souls than them two. God knew what he was doing, he knew I couldn’t have that surgery for a reason on 5.21.13, I had to overcome this obstacle last week, and I can’t wait to im fully over it. I can’t wait to I can share more with you all. I need my rest and to stay on top of my studies, you all know how much I hate to be behind on my studies. God is truly good. I want to say thank you again. Thank you for joining my JOURNEY, and been part of my blogging family. I pray all is well with each and every one of you. God Bless. Sending love and hugs to each and every one of you. God Bless 🙂

Posted in AWARENESS, family, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Happy Holidays

I came home just in time for Christmas! Christmas Eve was my release date to spend with the love ones. The babies open there gifts lastnight and I’m so thankful for all the prayers and comments as we’ll.  I would have posted more but I was doing a lot of resting and making sure not to stress.  My blood is good! 🙂 I have doctor appointment in two weeks basically check up! I’m not happy about my Sickle Cell doctor appointment which has been puss back to March! Actually had call them before I went to ER! I do another post little later! Merry Christmas and God Bless:)

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appointment (update)

I had doctor appointment on Wednesday since I got since I got some lab work done!  I must say that I’m thankful for the prayers because I receive some good news back! Only one thing was low,but so what long as it wasn’t a 21, that’s when they and I have to worry! I believe I do the most worrying! I actually did some Tuesday when the nurse took to long! Makes you wonder what I have port for if they move slow as tropical Issac that’s coming my way may be! I provably should had said coming to U. S right? I can’t tell you what’s more stressful doctor visits or math problems?  I hate math as much as the doctor office!  Lol! Oh yea back to the nurse taking her time, you would think hospitals have ton of them that know how to access port right?  NO! WELL enough on my update, be on the lookout in a few weeks! I so wish I had twin to step in my place, I hate needles, any takers? Just playing I’m just thankful for who all go out and give blood for me and so many others in need! God Bless & Goodnight!

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What’s Going On?

I hope all is well with you all! I mention yesterday I would do post to basically chat with everyone, to see what’s going in your neck of the word! As you all know I’m back in school so it taking up some of my blogging time! Haven’t bn feeling my best, I do read post and comments even if I don’t get chance to approve and reply just yet! I do read y’all post! So basically if u feel like sharing whatever going on it updating me here, please do so! Ill try to do this once a Wei! Hope all is well! God Bless 🙂

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………………………… Silence On My End

Havent bn feeling my best, but haven’t forgot about you all. Just spending time with the family. I still have update on how the doctor visit went with the speacialist so hoping to have it up tomorrow. I do hope everyone is having a lovely weekend. God Bless Each & Everyone Of You 🙂

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia (Update)

I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6.  My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES!  I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂

 

 

P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know!  My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.

 

I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!

Posted in God, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appoitnment (Update)

Good Morning,

 

 

I know I was supposed to do this a few days ago, I have been busy trying to get the last-minute studying in, and have to be honest I had my head in a good novel, that I couldn’t put down! 🙂 So I’m a book-worm, feels good to be able to read some more like I use 2. It actually went well, it was basically a check up since I got out the hospital. I really havent been feeling my best, so that was another reason to go as well. My blood count is still in the 7’s, I must admit it’s not the best but I’m so thankful it’s not a 6. I probably would be back in the hospital, which I must say it feels like my home away from home lately. Thats sad to say, I know. But if you new on my JOURNEY, YOu don’t know I have been in the hospital every month since September, I believe I have had a transfusion, ever since then as well. I have to say trying not to worry since I haven’t been feeling my best. I have to put it all on GOD hand.  Oh yea I do have new primary doctor, I know I mention that back awhile. If you wondering if my old doctor gave the okay and sent my referral heck no, he even call me while I was in the hospital to ask if it was true that I wanted to change primary doctor. I said yes.  It was actually his wife and she had the nerves to have attitude. Even the doctor I have now, even call him to get it and still nothing, or you surprise? You know it took a long time to get him to fax the information over to see the sickle-cell specialist. But last month I took the time to call my insurance to change the doctor, so it kicks in next month.

Posted in AWARENESS, God, Health, Love, My Journey, Sickle Cell Anemia, Update

Day 8, Living With Sickle Cell Anemia

I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything.  I don’t want to make this post long.  I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love.  You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂

 

GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY

 

I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!

Posted in Health, Jesus, My Journey, Sickle Cell Anemia, Update

Day 4-7, Living With Sickle Cell Disease

I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then.  I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂