Tag: sickle cell disease

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, heart, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDToday wasn’t a good day! My pain has got worse since last post. I went to primary doctor, honestly didn’t do me no good! He treated me either kidney problems or either I got ulcer. I can’t sleep at night as it is. My sickle cell nurse told me if it get worse to go to hospital and get admitted! My primary wasn’t getting my sickle cell problem, I wasn’t worry about the problems he talking about! If I stress it kick my illness in worse 10 time worser! I can’t move or use both my arms to extent! My left side still bugging me. My second week of new term started today. So as you all know that been with me. This isn’t looking to good with stress. I have appointment with blood doctor tomorrow and I’m not even feeling him right now cause of all the pain I’m in. You can’t stick me! Nor check my blood pressure at this point in time. Now if they can get blood from my port that’s what’s up! But I ain’t having the abuse right now. To the next post. God Bless 🙂

Posted from WordPress for Android

Posted in AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Surgery Day

Posted on by poeticjourney

Good Morning, early post because I know I wont be able to do it later! Today is my surgery and its at 7:30 in this morning and I have be there at 6:00! And will leaving out at 4:30! Its in another county! I have slight headache, I didn’t eat because well I couldn’t!  No food or drink after midnight! I have put it all in God hands! If y’all wondering I’m having hip replacement surgery due to my sickle cell! 6-8 weeks recovery! Therapy is going whoop my butt! Lol! I’m thankful for the prayers and likes. I make sure to update once I got strength to do short post! Hope all is well! God Bless

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Posted in God, Health, My Journey, Prayers, Sickle Cell Anemia, Thankful, Update

Update (Good Report)

Posted on by poeticjourney

Good Morning, I pray everyone is having a Bless Day. I got the call yesterday that I been waiting for. My labs came back good from last Thursday. I’m so happy and not surprise, because i already know. I love how God works things out for me. I have to stay on the meds for twenty more days before I can actually stop taking, not happy about that, but happy the doses drop. My headaches have got worse since taking the meds. Once I’m off, I can start getting ready and plan for my surgery. Hopefully end of the month are beginning of next month. I do have another doctor appointment tomorrow, with blood doctor. Praying that one goes well as well. I want to hear your blood count is high 7 or 8! Okay maybe not 8, but I can hope right? Well wanted to share that little news with you all. God is good and able all the time. God Bless 🙂

So thankful for all the prayers from each and everyone of you. Many Blessings

Posted in Faith, God, Health, My Journey, Sickle Cell Anemia

Update ( doctor appointment)

Posted on by poeticjourney

I’m still not feeling my best, but as of right now waiting on my blood work, so we can get things moving. My doctor appointment with primary doctor went very well to extent, I was glad to get off some medicine. And also got new poison to help me as we’ll. My headaches are getting worse, so we had to do something to help the process. I have been putting off doing update post for awhile, but with my hectic school schedule and days I’m not at my best, I wanted to share what I can. I know last year was worse then this year, the last two sickle cell episode took me back when I was younger and wouldn’t go to hospital. I haven’t had pain like that in long time, bring tears to my eyes, and no matter what they medicate me with me it wouldn’t work. I know I shared a post awhile back, I’m not been able to get transfuse, cause of warm antibiotics. I pray if it got lower then 5, they would transfuse even if it didn’t do much. Yes, I really had no reason to share post last time i was hospitalize since I know its a give or take, but I know God got me even when the doctors wanting to give me blood and I kept denied it. My blood count came up fast this time in the 8″s. I’m praying when I see my blood doctor next week it still be decent enough. I’m not going give up, I do get discourage at times, but im Bless with so many loving souls. God truly knew what he was doing when he created me , and when he place me here on WordPress to share my story. Thank you all for joining me and praying. I hope to have more share next week. God Bless 😉

No matter what you going through, never give up! Continue to fight and hold on to God hands!

Posted in Health, My Journey, Sickle Cell Anemia, Update

Day 4-5 Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHey and Welcome to my World, I’m still in hospital and hopefully I get to come home tomorrow. I should know something in due time. I still can’t have transfusions, but it seem the meds they have me on is finally working and that makes me happy! I have been on some new meds since May, and ready to get off it. I’m actually on a lot of new meds, but this meds I really ready to get off because it’s interfering with some of my other meds, that I need on everything basic. Sighs. It feels good to finally get some sleep, I believe I’m still tired, but I’m actually on my last week of studies, and I need to try to catch up before the week is over with. So much to do in so little time. I have had some great nurses, had one rude nurse name Mary. Makes me wonder how she got a job to be Nurse Assistant, if all she does is complain, I would hate for her to be nurse, and she says she going back to school for it. Well, I hope peeps run the other way and don’t look back, I’m just saying. My bestie mom finally came home from the hospital the other day, and she is doing much better, but got heartbroken phone call, that she is not her self, she lost some of her memory. I spoke with her a few days ago, she knows who I am. It breaks my heart when strong woman a God is struggling the way she is. It’s truly breaking her daughter heart, because she want to take care of her mom and not rehab place. Doctor just told me not to long ago that my retic count has come up, I’m hoping to hear my blood count has come up as well. I’m praying for some good news. Looks like my head is everywhere with this post, please do forgive me. I have a lot going on with me at this time. Thank you all for the prayers, truly means a lot to me. I pray all is well with each and every one of you. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hey Everyone and welcome go my world!  I have been in hospital since Monday. I actually got sick Sunday night around 11, and knew I was in for rough night! My blood count was.7.9 when I arrived, now it 6.9! I know I mention in one of my post I had a cold, idk if that help kick in my sickle cell. Sounds like I I’m coughing up my lungs. Sighs! I have, some awesome nurses so that’s a plus in my book.  Be sweet if I could get some sleep! But my pain is making it difficult for me right now! Actually spoke to my doctor before he went on vocation, he was the E.R when I came in, so he fill the doctor in that’s stepping in for him about my situation. I still can’t receive transfusions right now. Another story for another time. If anything else comes up, ill make sure keep y’all updated! God Bless 🙂

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Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia…

Posted on by poeticjourney

thumbnailSCDHey Everyone, And welcome to my world, basically a update from my two checkups. Not good updates, but hey I’m still alive, so I can’t complain. Right now Im waiting on phone call, on my blood work, lets just say I wasn’t happy about gettting stuck by a person who didnt know what they was doing. Bad enough my doctor was on vocation and I had lady who didnt know what she was talking about, so ummm she didnt order all the blood work I need’d. So I got a feeling when I do get a call, Its not going to be a good one. Makes you wonder why give me a appointment when the person I need to see when they on vocation? I don’t believe she like my attitude much, if you come in talking like you know everything I had while I was in hospital.. You already on my bad side. Sighs…

 

Primary doctor update didn’t go so well either, I had to wait awhile just to be seen… Add’d more poison to the list, for me to take. Since everything I eat, makes me feel uneasy, now I have ear infection on top of that. Im debating on taking more meds. My headaches have gotten worser, and trying to go to school with them is no joke. I dont want my meds up, because I would sleep all day,and I do enough sleeping as it is due to my health. So I believe I didn’t forget anything, if so I share in another post when I have another doctor appointment next month.

Posted in AWARENESS, family, Friends, God, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello Everyone,  I’m finally home, been home for a few days now, spending time with my love one’s. Getting much rest as possible. I must admit I’m so glad to be home, so can’t wait to be feeling my best. I usually would have this post up already, but still not 100 percent. I’m hoping sometime this week to know if my blood count has went up some more. Before I left it was still in the 5’s and we all know that’s not good. I must be honest with you all. Only Lauren knows whats going on with me. Right now I’m not doing good. I was supposed to have surgery on my birthday to have hip replacement, due to my illness. But that’s when I find out I had warm antibodies in me, because I done had so many transfusions, that’s why I can’t have anymore right now. I have been on the meds for over a month,and there not doing anything for me. I’m getting a lil discouraged, I must admit that to you all. I have been at my lowest last week and wanted to throw in the towel. I don’t know if it’s because I was just tired because of my health, and everything just wasn’t going my way or just cause the devil was just trying to get the bet of me. I believe it was a little of both. I’m not thinking that anymore. I know God isn’t finish with me yet, I’m here for a reason, so I need to continue to hold on and continue to fight to he calls me home to be with him. I’m so touch and feel so much love by all of your comments and prayers, it truly meant so much to me. I got to many visits from family and love one’s and calls from my best friend and TN, y’all thank you for praying for her mom her who had a stroke, she is doing so good. She has been there for me and so has her brother. They  have been keeping me laughing and if I couldn’t sleep staying up with me, and just praying for me. I couldn’t ask for two great group of lovely souls than them two. God knew what he was doing, he knew I couldn’t have that surgery for a reason on 5.21.13, I had to overcome this obstacle last week, and I can’t wait to im fully over it. I can’t wait to I can share more with you all. I need my rest and to stay on top of my studies, you all know how much I hate to be behind on my studies. God is truly good. I want to say thank you again. Thank you for joining my JOURNEY, and been part of my blogging family. I pray all is well with each and every one of you. God Bless. Sending love and hugs to each and every one of you. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 5-8, Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello Everyone, This has been one long week. I don’t believe I have been this sick in a long time. I havent been in the mood to blog are do much of anything. I actually started back with my studies Wednesday and havent even tempted to do any of it. I’m hoping to do some of it. I actually made calls yesterday to let them know whats going on, with me. I don’t want to be drop from my classes. I didn’t get transfusion because it’s not in my best interest, but part of me wish I had got it. I’m so weak. My blood count is still low but still holding its low. I’m 5.8 so it’s coming up a lil. So that good 🙂 I got off the fluids yesterday, which im very happy about, I got tired of going to the bathroom so much. I still have my port hook up since I still have to get pain meds, since Im still hurting. Yesterday they actually lost someone on my floor she was 100yrs ole. She was blessed to live to see such a bless age. My nurse took it hard, and I can truly understand where she was coming from. Thank you all for the prayers and comments, and do bare with me. I havent had the chance to approve comments. Even the likes means a lot to me 🙂 Im hoping to go home today are tomorrow. It maybe tomorrow because im not feeling my  best today, and I want to be at my best when I head home. I did get a chance to talk to my lil lady and she ready for me to come home to her. And im ready to come home to her as well. I told her to be good, so I hope she does, but that easy said then done.   I have had some great group of nurses, doctor. Cant really say doctors, because I only been seen one doctor. I have to make a post about that another time, right now I feel like laying back down and getting some more rest. I pray everyone is having a Bless Friday.