Tag: sickle cell disease

Posted in Health, My Journey, My Life, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,  I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble.  I can’t do much with it. The doctor mention blood transfusion yesterday,  honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means  a lot to me.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello World,

I’m writing you from my hospital bed once again. I’m not feeling so hot , woke up with a nagging headache. I’m not going home today.  The doctor decided to do x- ray on my wrist since it been giving me trouble. I’m glad to hear no damage. Some time I can have a crisis in my hands and it moves up. I’m right handed so it was making it harder to type.  Still not at it’s best. I’m hoping when I do leave it be in good spirit,  if y’all know like I know. I’m not happy about nurses bn late when my meds, it takes awhile to get my pain uncontroll and with them bn late truly isn’t helping the cause. I pray all is well with each and everyone of you all. So thankful for the prayers….

Posted in 2016, AWARENESS, Health, My Journey, My Life, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello Everyone,

Writing from my hospital bed. I’m not feeling my best. I was planning on doing a post yesterday saying living with it, but I couldn’t take the pain no more.. I was throwing up and gagging a lot. Come find out have fluid in my lungs, seems I may have a touch of pneumonia.  I have a great group of people on my team here. It took me awhile get on the floor dis morning. I’m trying write to distract me from my pain.  It’s not really working. My port still not letting them pull blood from it. So when they came around to check port I let them know and she reclog it to get it working. I’m not ready to get it replace. I know it still works,  it can be flush and I can get fluids, and meds. My right hand is swollen real bad so I’ll cut dis post short with you all. I pray all is well with each and everyone of you all. God Bless:)

Posted in 2015, Health, Update

UPDATE

Posted on by poeticjourney

Hey All,

I know its been awhile since I posted. I hope all is well with each and everyone of you all. I have been in and out of hospital since last post. I have been writing poetry and starting some post and just stop them. I just haven’t had the energy to post and share with you all. I have been reading ya’ll work. I don’t like or comment all the time. I do miss each and everyone of you all. I’m not here to complain. I’m just here to check in. I was hoping to share a piece with you all but seem to have left my handy dandy notebook at home. I knew I was forgetting something once I step out the door dis morning. I should never leave home without my journal. I still try and write in my phone memo. But I love to write in a notebook/journal as much as possible. So I can have something to go back to as well. I have so many poems I haven’t even finish yet, that haven’t even made it to phone or even a pc or tablet. We seem to let technology take over, but we got to remember where we started when it come to writing. I love to see my thoughts on paper.. All my mistakes, my mark outs..  I have such a busy month, and worry about overdoing it. I have surprise bridal shower Friday coming up and I’m not feeling my best. Next weekend is the wedding reception and I have poem I’m going to read, and super excited about. And for the one’s that been with me from the beginning and know I’m a PK I have a few church events as well. My best friend from middle school is back in town since June and we been spending a lot of time together before she leaves next month for Cali. Fall has come and yes, I have a love and hate relationship with it.. OMG… right now here its beautiful, not to cold or to hot, its just right. First Friday in dis month I paid for the weather change on me and I was in for a few days. Shortest visit for me and must admit I was so excited to get out. I have been on the go a lot lately, trying to enjoy life.. I know a recent post I mention about was I truly living? and the answer was no.. I’m not talking about been crazy, I’m talking about stop making excuses due to my illness.  Right now with the weather going back and far… I’ll be marry to my home once more, just the way it should be :)…  Anyways going to end post here, I know I’m everywhere with dis post..

Thank for all the prayers, comments, likes, and joining my journey. I hope to be more active real soon. God Bless 🙂

Posted in God, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

I know it’s been awhile since I post. I bn going thru it dis summer.. some times I feel like I should give up, but my sense come back and reminds me. I’m here for a reason. God has last so even when we begging to be taking away. I got out Sunday and I’m pain again . I feel like my cold dawn got worse. Voice almost gone. I know when I left counts wasn’t the best, but I was ready.. if I known I wasn’t ready probably stay little longer.  Almost sickle cell awareness month, we have the bold lips for awareness.. wear your boldest lipstick and take pic and use hash tags. A few weeks when i got out,  had get my scripts . The woman behind counter ask me what sickle cell is, hate say I don’t like talking about it. I got get out of that mind frame n spread word. We lost another warrior a few nights ago. One day it’s going be me. I want to touch so many lives and do so much before I leave. I ask myself am I really living, part of me says I’m not. I’m hurting myself. I bn battling with my faith, illness.. I know God got me, no matter what. It just get so tiring when all u go thru is repeating itself.. hope that make sense, half asleep.. I pray all is well with each and everyone. God bless

Thank for riding with me…

Posted in AWARENESS, My Journey, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless

Posted in 2015, AWARENESS, God, Health, Sickle Cell Anemia, Update

Day 3, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey peeps, welcome to my world! It has being hella hectic for me since weather hasn’t bn good to me.  I was just in hospital last week and got out Sunday, and hello back th’s following week. I’m so ready for Spring! I’m in process of meeting with pain management doctor soon. I see my sickle cell doctor dis week. Haven’t seen him in months, was need to get my crisis under wraps. I’m at the point I need drop my primary doctor a.s.a p. Dont want to stress about it while recovering. I’m Praying I don’t have see inside hospital unless it’s for blood work or surgery. Pray all is well with each and everyone of you all. I got Bless with some good doctors and nurses. Remember I said doctor,  I go to the other hospital that my doctor not connected with..Thank GOD. I’ll end post here so I can get some rest. But before I do, count is up, oxygen strong, so it blood pressure, pulse. GOD is truly good. Lil pain not as bad as it was:)

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello and welcome to my World! I have been in and out of hospital for past few weeks. Back in school so That’s taking up my time, but I’m praying to get back on top of blogging and visiting with you all. The first time in hospital was short stay, blood pressure kept dropping while I was sleeping. Second time was last week of October, seem I have warm antibodies again, and I haven’t had transfusion in awhile. Idk what’s going on, but I’m happy they not putting me on steroids for now. It would do more danger them anything. I have to have surgery in right arm down road. Blood count was dropping.  But no to to transfusion.  I had good nurses… got favorite male nurse, name Denny, such a sweetie. GOD truly bless me with lovely and caring nurses. Had good female nurses as well. My favorite was Nikki:) good doctor as well. I have miss reading y’all blogs and hearing from you all. I pray all is well with each and everyone of you

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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I have some good news to share, where should I start. Yesterday I got okay come home or stay another night cause of xray of my arm. Must say blood test came back false, no steroids.  I’m so excited! God is truly good:) maybe later on u have to have another xray to make sure I don’t need surgery. I must admit hip surgery is more for me then shoulder!  It won’t be long post. I did enjoy seen my lil lady,  not happy on
cold weather.  I’m praying I don’t have set back. Hope all is well with each and everyone of you all 🙂