Hello and Welcome to my World, at this point of time. I’m still in the hospital, the last time I posted I ended up getting my transfusion Friday night. It actually took to about 5 or 6 the next morning. A long night. I was glad to hear they find my blood. I was so out of it by the time my doctor made it around to see me and talk to me before I got the transfusion, he was like I was hoping to make it over to see you before you got the meds. All I could do was laugh at him. I got some good sleep that night, believe that’s the first night I actually got some good sleep since I been in the hospital. I’m still hurting but not as much as I was hurting when I first came here. The same morning after the transfusion I was surprise to with x-rays at 7 in the morning, can you believe that?? I can’t! I was cold and still sleepy. They could’ve waited to I had some coffee in me before they got me in my bed, but they tech who came to get me was cool. I had her once before. We talked about school and whatnot. Today is Father’s day, I call me dad and told him Happy Father’s Day early this morning, he have been calling me all morning to check up on me and to see when I was coming home. As of right now I don’t know when I’m coming home. Maybe tomorrow. I havent seen the doctor yet, I’m pretty sure his spending time with his son and father today. I believe I don’t bored you all enough. Oh yea my blood count is looking oh so good right now, its 9.9. I hope and pray it stay that way. Seems my calcium is little low so I have to take pills for that and of course iron pills and I’m not feeling that if you know like I know. This morning when I woke up for them to take my bp, it wasn’t looking so good. they was low, she even double-check them to see if it would be differently. No can do. Ty for all the prayers and kind words you all bn leaving me. God Bless 🙂
Tag: nurse
Day 1-3, Living With Sickle Cell Anemia
I know I mention to you all I wasn’t feeling my best Tuesday. I woke up Wednesday morning in terrieble pain and ended up going to er later that day. My blood count drop so I’m in need of transfusion. I’m thankful to have some wonderful nurses taking care of me while bn here. Can’t say the same about my doctor, naw I’m playing his a cool guy. Wouldn’t trade him, I’m so ready for the 28 to get here so I can see the Sickle Cell Specialist. I’m thankful for all the prayers from each and everyone of you, it truly means a lot to me. I’m still not feeling my best, but will do my best to keep you all inform on whats going on with me. Hopefully next time I have more to share with you all! God Bless 🙂
Living With Sickle Cell Anemia
The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know! My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.
I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!
Day 4-7, Living With Sickle Cell Disease
I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then. I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂
Day 4,Living With Sickle Cell Anemia
Hello, and welcome to day 4. I’m still in the hospital, yesterday was actually a long day. I ended up gettng my tranfusion lastnight and didnt get finish to about two somethng this morning. As of right now my blood count is looking good, but its showing I’m dehydrated still so thats probably why I’m still hurting some. Had to get some x-rays this morning, seem I have touch of bronchitis, I don’t know how I got it. The doctor believe its the reason why I’m in the hospital because of it. I don’t know why its so hard for people to cover up there mouth when they cough. I’m so thankful for all the prayers, kind words you all have left me. God has truly BLESS me with some kind nurses and doctors. I’m not much with words tonight. I shall keep you all updated and make the next post longer. Till next time.. God Bless 🙂
Living With Sickle Cell Anemia
Before I begin, I hope I don’t be everywhere with this post! You have been warn 🙂 I’m so glad the month almost over, hopefully okay maybe I should be saying I’m praying I have a better month ahead of no pain, doctor visit, nasty uneducated doctors, and nurses with no freaking back bone. I believe I put all that in a nice way to be honest! As of last night, my lovely blood count has drop! I’m so not happy, I take it the uneducated doctor is waiting for it to drop lower before I should be put in the hospital. I have to say I’m totally losing my cool for hospitals all together. I know all doctors,nurses or not that ignorant. Lets just say I didn’t have a good day yesterday! I did have someone take care of the situation that had happen before. So thankful on that! I have come to conclusion, if I say I’m FINE, everything might just be that eventually! People or asking me how I’m feeling and I’m saying okay or I’m fine, because honestly I really just want to feel fine! I believe today has been one of my worse days. I forgot to bring some meds with me so I had to be in pain for a while today. You know how some say the calm before the storm. I believe I said that right, my head isn’t all here right now. I believe sleep is finally calling me home. Yesterday I was worry I would’ve wait longer before I could see the sickle-cell doctor, because of another reason, but got call and hoping to see him soon. I refuse to make a trip to E.R where I’m at! Plenty of hospitals, but when you in pain I don’t see the point going out the way, might be something I have to rethink to be honest! Something the nurse said to me who was discharging me, she just don’t know I had a lot of unkind words I would’ve said, but didn’t! I can’t lose my cool because there uneducated on my illness. Easy said then done, but something I truly need to work on. Honestly I’m starting to believe certain doctor love to see me in the E.R, but just not able to stick her head in the room when I’m there. Hmm you know a lot of words come to mind. I must say I better not have to visit the evil place no time soon. Sighs! I believe this post is long enough and you all can sense how I’m feeling about it all! Sorry to surprise some of you, but hey we all have our weak moments when we just fed up! I must say I think I need to go back to when I was younger and had to drag me to the evil place! I don’t think that good ideal, because I had to literally fall out before I actually went! Me in the evil place have many stories we could share!
Thankful for all the prayers and encouraging words, truly means a lot to me! God Bless Each & Everyone of You 🙂
My Story
Has taking me places I never thought it would be going.
Only honesty can get me out of this right now
So to my kind followers
Lately I have been losing
courage to share my JOURNEY
with you all.
It seem like I’m ready to throw
in the towel and ready to give up
All I want to do is cry,scream,yell
and hide under the covers in
the dark!
This is My story
2/22/12
PoeticJourney
I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain. Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about. I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done. After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense. I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.
I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂
Day 7,Living With Sickle Cell Anemia
Another day in the hospital, I’m hoping to hear some good news tomorrow about going home. My blood count is still the same as yesterday. Hasn’t gone back up or down. I’m still a little concern that it drop so quickly. I still have some pain but not as bad as the pain I had when I came here. I’m hoping to receive some good news later tonight or early morning when they come do some lab work on me. I don’t really have much to post about. I have been in bed most of the bed. Little homesick, suppose you can say I miss the little one’s. I wasn’t there when my little lady went to daycare for the first time. I hope it went good for her, guess I find out tomorrow when I go home. I’m so thankful for all the prayers & encouraging words, truly means a lot to me. I see the shift is changing, with more new nurses tonight. I actually got to know the young lady last night, she is a few years younger than me who recently just move from here. I thought she didn’t talk.but she was just worry about bothering me and making sure I got plenty of rest.
Day 6, Living With Sickle Cell Anemia
Good Morning, Another Lovely Day and still stuck in the hospital. As of right now, I don’t know when I’m going home. I haven’t seen the doctor today or yesterday. I thought I would have a doctor that would be on call for the doctor I had during the week. I suppose I was wrong. I had to change rooms yesterday. I have a bigger room, which I’m loving I must admit. I had some more old nurses. I find out this morning, little lady doesn’t want to talk to me she wants to come and see me. I hope that explains why she hasn’t been taking my calls. Oh yea I was regretting moving to the room I have because of the person next door. I believe she is older woman. She keeps crying out help her help her. I didn’t know what was going on with her. I do have some nice nurses, so thats good. I do hope to receive some good news tomorrow when I do see my doctor. I hope my blood count be still on point since the last time it got check was two days ago. This time around I haven’t really have the strength to post or comment. I know once I’m out the hospital I have a lot of reading to catch up on. Well just saw the doctor, will be getting some blood work done to see how my blood looking. I hope to share some good news on the next post with you all. For some odd reason, my blood pressure isn’t looking good for me. It has been very low . I’m still having some pain, so still have to ask for pain medicine so I can get some sleep. If you wondering how long I been working on this post, let me tell you all freaking day! lol! I just got some sad news 😦 my count his drop some and I hope it doesn’t drop any tonight. It hasn’t drop enough to get enough unit but its not 9 anymore. I don’t know how I feel about all this. I believe I’ll get me some rest, since I’m not feeling my best. I do hope each and everyone of you is having a Bless Sunday! God Bless 🙂
P.S Thank you all for your prayers and kind words, truly means a lot to me! God Bless 🙂
Day 5,Living With Sickle Cell Anemia
Good Afternoon, Had rough night! I’m getting use to the port, actually started using it yesterday. So happy that I don’t have to get stuck anymore! YAY! Had accident with one of the nurses last night, I thought I had lost my pc. She knock my poor baby off the table and hit the hard floor. So happy she didn’t break because she not even two months ole yet. The nurse was like I’m not worry about buying you another one, I can do that. I just don’t want you losing your school work. So I receive a unit of blood last night, because they were worry about it dropping some more. I don’t know when I’m going home just yet. I’m still having some pain, which isn’t a good thing. 🙂 I did receive good news my count went up with the one unit. I was worry that it wouldn’t go up much since last time it didn’t move much. Sad to say little lady still not taking my calls. I don’t know how I feel about that. I don’t know if she think I turn my back on her and not coming back or she just holding a grudge on me. I can’t wait to get home so I can have a serious talking with her. I enjoyed hearing my little man try to talk while on the phone. More like whine because his uncle took his fork from him. I can’t believe I’m missing them this much. 😦 I know I say I’m thankful all the time for all the encouraging words and prayers from you all. It truly does mean a lot to me. I shall keep you all updated on when I go home and whatnot. I know I’m off to the end of the month with school. I must admit I’m excited about that. God Bless 🙂
Poets Afterthought 