my story

2022, Mini Update, My Journey, My Life, pain, Sickle Cell Anemia, Sickle Cell Awareness, sickle cell disease

Another Day Living With Sickle Cell Anemia

Posted on 2 Feb 20223 Feb 2022 by poeticjourney

Good Morning, what a night, it was a hella painful night. I didn’t get a call from the back after 11. I honestly was getting ready to walk out. Once got back things were running smoothly. Had a nice doc and they got one nurse they get my port every time now. My main concern was chest pain. X-ray and EKG look good but did find out have cars on my lungs. Learn something new and she said I even went back and look at other X-rays and showed the same thing. But she was the first and only doc me. If u wondering if I stay or go home. I’m home, maybe should’ve stayed the hospital is full and I would’ve bn in ER area for a while. My left arm hurts to lift, and so is my hip. So walking man slowly. I hate moving to be honest. Seem my chest pain is coming back now. May have gone back and let them keep me. Until next time. Oh if u wondering when got discharged it was around 8 that morning. I slept a lot. God Bless

2021, AWARENESS, Cancer, chronic illness, God, My Journey, my story, Sickle Cell Anemia, Sickle Cell Awareness

Living With Sickle Cell Anemia

Posted on 7 Oct 20217 Oct 2021 by poeticjourney

Good Morning/Evening, I havent been feeling well for the past few days. I take it change of season. Some days I dont want to get out of bed, but hell who doesn’t have them days? On other days I just push through it and pray about it. Thats all I can do at times. I really do miss my dad. He would know what to say right now. Its another month and usually I get sick in October. But lately I been getting sick like every other month. I need to return to keto to be honest, it really helped me out . Have you every realize when you change your eating habit for the best, your body does so much better. I have slipped after losing my dad. But I must admit I’m not ready to leave this world just yet. So its time to get back on track. Another day in pain paradise. Not funny, but had to say it. When it comes to Covid, I make sure I dont go out if I dont have to. And I always wear a mask when I do step out, I care santizer and wipes. I dont do gloves because some stuff Im allergy to and same with diff mask as well. Its weird you never know what you allergy to until you stuck with having to have it around you or in your life constantly. I know I mention awhile back. I havent got the shot and I don’t plan on getting it. Im always careful and to be honestly I dont like been around people to be frank. Im more of a home body and I keep to myself. With this virus thrown at us it make us realize a few things. We tend to forget who and whats important to us. We have the opportunity to spend time with our love one’s. Thats a sore subject for me to be honest still. I still want more time to be with my dad. Covid didnt take him, the damn cancer rob him and us who love him. I always figure I would leave before him, but look I’m still here and his gone. Just thinking about it hurt

2021, Bless, chronic illness, God, My Life, my story, Update

Update

Posted on 4 Oct 20214 Oct 2021 by poeticjourney

Hello and Welcome to my World. Its been awhile since I posted and read comments. I have been through a lot meaning to my emotions and still trying to get over losing my Ole Man{ dad}. Its rough when you a daddy girl. Its getting better but still is a struggle to be honest. I have been in hospital a few times. Its weird not having him here when he was the one I usually counted on when something would happen to me. I’m thankful last visit wasn’t long there was more concern about me getting covid then anything. I went awhile before I even step foot near the place since my area was getting it bad and they had sent extra help because of it. I did have to get blood that I wasn’t happy about. One of these days it can kill me instead of help me. Even though I haven’t blog much I have been writing here and there. I’m also thinking about where to go from here. i need go back to school and finish my last year and i still want to blog and educate people on my illness. I cant believe how many people have follow my journey because of the fact I have shared so much. Its a blessing that so many of you care and willing to learn. I still want to bring more to ya’ll. my fight isn’t over yet and its not easy. I must say I haven’t had any bad experience lately. I know the last time I went i got someone I wasn’t crazy about because they don’t know anything about sickle cell. She was making it seem like I had Covid instead of listening to me , I have made it clear that I don’t want her. If you not going to listen to the patient why be in the field period? Another season has come in and pray everyone is staying warm/cool depending wherever you from. I pray everyone is staying healthy as well. No matter what we going through God is still good all the time. Till next time God Bless

2021, Journey, My Journey, Sickle Cell Anemia, Update

Life Update

Posted on 9 Jul 20219 Jul 2021 by poeticjourney

Good Morning/Afternoon/Evening. It’s been a while since I posted and must say I missed it and y’all. Every since lost my dad I have been lost and drowning and was so angry. It’s been a year unfortunately and he still not here with me. All I have left are memories. Thank you all who stuck with me and newcomers. I have been missing writing and visiting y’all. I have been writing here and there, just clear my head. But not on here. It says I have been blogging here for 10 years. Wow, that’s been a long time. Word press truly became home for me. It has become a place for me to share my journey with my illness. The good and bad. I never thought I would touch so many people live through my experience but I have. It hasn’t been easy. It hasn’t been easy since my dad been gone. I don’t have him here anymore to pray for me and talk to me and just be here. I haven’t truly grieved so I do it Lil bit every time I’m in the hospital. I thought about blogging each time I’m in but never have the energy to share anymore. Hoping to find my way back to sharing more of my life and read about y’all journey. I pray y’all are well and covid hasn’t got y’all down and out. Do enjoy y’all summer but make sure to drink plenty water. It’s hella hot in south. Pray all is well with each and everyone of y’all. God Bless

2020, AWARENESS, chronic illness, My Journey, My Life, my story, Sickle Cell Anemia, Sickle Cell Awareness

My port update

Posted on 22 Nov 202022 Nov 2020 by poeticjourney

Welcome to my world. I haven’t blog in a while but have been thinking and contemplating on how to share more of my illness and my thoughts on different things. As I was browsing sickle cell Facebook group I came across a patient sharing what used to be my journey going to the hospital with multiple pokes and bruises. I never thought in a million years I would agree to a port. But when you tired of bn a pin cushion and having a rude ass nurse wake you out of your sleep to put a line in. You either go for line or port. I was glad my nurse was in the hallway when it happens. Some nurses or so compassionate and some just there for a check. It’s always a plus when a nurse has an illness just as bad as you and understands our pain as well. It’s funny because my doctor had been trying to get me to get a port for a while. I have always been scared of needles and still is to this day. When dealing with my port sometimes I hold my breath and they have reminded me to breathe. Everyone doesn’t know what they doing when it comes to my port. They don’t like to listen when you tell them what works and what doesn’t. The port has been a life savior for me in more ways than one. I haven’t taken many pictures showing my port, but do have one. My journey is just that (Mine). If you wondering what my port is used for. It’s for getting fluids, blood when I need a transfusion, and for meds of course. I know over the years I spoke about my port and probably when I got it. It’s good and bad with them. Hell, it’s good and bad with everything. I’m not really at my best, so I’ll end my post here. I pray all is well and everyone is staying safe and warm through the holidays. Many Blessings

My port

2020, AWARENESS, Health, Mini Update, My Journey, My Life, my story, Sickle Cell Anemia, Sickle Cell Awareness

Blog Update

Posted on 27 Oct 202027 Oct 2020 by poeticjourney

Good Afternoon, hope everyone is good and well. As things have changed so much. And seen how so many warriors or saying due to the treatment. I have decided to make a Facebook page so I can share my story and others who give me the ok to do so. Soon as I’m done with the page. I didn’t realize how much work just making another page and the naming process. I have come to the conclusion we need to be heard and if doing this and not been quiet about the treatment or care I get. How will we be heard and how will y’all know my journey and understand just what sickle cell is. A change starts with me not been quiet and hurting in silence.

Faith, God, Health, My Journey, poem, Poetry, School, Sickle Cell Anemia, Update

Posted on 22 Feb 201222 Feb 2012 by poeticjourney

Has taking me places I never thought it would be going.

Only honesty can get me out of this right now

So to my kind followers

Lately I have been losing

courage to share my JOURNEY

with you all.

It seem like I’m ready to throw

in the towel and ready to give up

All I want to do is cry,scream,yell

and hide under the covers in

the dark!

This is My story

2/22/12

PoeticJourney

I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain. Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about. I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done. After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense. I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.

I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂

My Journey, poem, Poetry

Push Play

Posted on 2 Jan 2012 by poeticjourney

I’m constantly

thinking always influence

to write

dream more,

This is my story

some is already

recorded

so I’m just

rewinding it & pushing play

Majority of it is Whats

happening now, the present

Some I pause or rewind

I have to admit it,

I have

fast forward some parts

I’m constantly

over thinking

stressing

When I should be relaxing

11/16/11

PoeticJourney

Something I wrote when I had a lot on my mind and was struggling with school and my illness. I havent really finish it, that’s all I could come up with at the time and not sure if I’ll add more to it. Not sure if I stick with that title, but thats what I came up with at the time. God Bless 🙂