Tag: Living with sickle cell anemia

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Good Evening, another Bless day. As I mention in last post, I ended up coming to er, and yep stuck here. Feeling much better then I was. I’m praying for a test to come back with good news, so I can stay off my steroids. Its bad enough I have to take meds every day. Must admit, I have had some good nurses. Can’t say nothing negative about them. Makes me wonder if they got there act together since I haven’t been here in awhile. I must admit I prefer to have male nurses. They so sweet, and cute as well. I’m hoping to make did short visit. Got me on oxygen, fluids, and of course pain meds. Guess what I saw my doctor. Hmm is all I can say. Got some x-rays done to see what’s going on. I have been in pain for three weeks, praying and hoping it go away on its own. Soon as I get information , I’ll share with you, when I get time and feeling strong enough to share. Thank you for the prayers, comments, as well as like, truly means a lot. God bless

Posted in 2014, AWARENESS, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello and Welcome to my World. I done had two different check ups since I been home. I have one more towards the end of the month. I’m still working on changing primary doctors. I can’t say I’m surprise that the hospital I been going to don’t do business with some doctors here. I must say I met a lot of nurses that work with the hospital I used to go to and know my doctor very well. Like I told him since you wouldn’t admit me the first time, I had to go to another hospital. I refuse to be in pain, and you suppose to be my primary doctor. I’m still waiting  on my labs from last week and to see how my chest x-ray looks. Umm I did all this last Thursday, and still haven’t heard crap. I haven’t had my steroids since I got out of hospital last week. You would think he would let me know something. I done call office a few times. I saw my blood doctor today, and got good report. My blood count is good, still holding its on. I couldn’t be more happy. I’m dealing with headaches once again, seems like there getting worse every since I got sick last time. I’m praying I don’t see inside hospital for nothing, but I know that’s not going to happen. I went last week to get xray and stuck. I believe nurses hate to see me coming. I give them one chance to stick me, hello I have port, put it to use. But the last two different people from both check ups, did good.

Posted in 2014, God, My Journey, Sickle Cell Anemia, Update

Day 4-6,Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Hello and Welcome back to my world! I’m still in hospital, but today is my lucky day! I’m going home 🙂 Feeling much better, so bless to not receive blood on dis visit! I would’ve stand strong and not accept it! My God had me in his hands! What a mighty God we serve. Going home with blood count still holding its own! I’m praying I wont see inside a hospital no time soon. My birthday month coming up, as well as Lil lady,she graduates! I want be healthy to enjoy it. I have engagement party next week! I’m doing everything to not get sick , so idk whats going on! Besides my body in a fight of its life. Thank for all the prayers, comments, mean so much to me. I never thought I would share my journey and it would touch so many lives. It took a kind hearted nurse to plant the seed and I’m still here sharing

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better 🙂 Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 6-7, Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived.  I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening. I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2!  So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

image

It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

image

Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia…

Posted on by poeticjourney

thumbnailSCDHey Everyone, And welcome to my world, basically a update from my two checkups. Not good updates, but hey I’m still alive, so I can’t complain. Right now Im waiting on phone call, on my blood work, lets just say I wasn’t happy about gettting stuck by a person who didnt know what they was doing. Bad enough my doctor was on vocation and I had lady who didnt know what she was talking about, so ummm she didnt order all the blood work I need’d. So I got a feeling when I do get a call, Its not going to be a good one. Makes you wonder why give me a appointment when the person I need to see when they on vocation? I don’t believe she like my attitude much, if you come in talking like you know everything I had while I was in hospital.. You already on my bad side. Sighs…

 

Primary doctor update didn’t go so well either, I had to wait awhile just to be seen… Add’d more poison to the list, for me to take. Since everything I eat, makes me feel uneasy, now I have ear infection on top of that. Im debating on taking more meds. My headaches have gotten worser, and trying to go to school with them is no joke. I dont want my meds up, because I would sleep all day,and I do enough sleeping as it is due to my health. So I believe I didn’t forget anything, if so I share in another post when I have another doctor appointment next month.

Posted in AWARENESS, family, Friends, God, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello Everyone,  I’m finally home, been home for a few days now, spending time with my love one’s. Getting much rest as possible. I must admit I’m so glad to be home, so can’t wait to be feeling my best. I usually would have this post up already, but still not 100 percent. I’m hoping sometime this week to know if my blood count has went up some more. Before I left it was still in the 5’s and we all know that’s not good. I must be honest with you all. Only Lauren knows whats going on with me. Right now I’m not doing good. I was supposed to have surgery on my birthday to have hip replacement, due to my illness. But that’s when I find out I had warm antibodies in me, because I done had so many transfusions, that’s why I can’t have anymore right now. I have been on the meds for over a month,and there not doing anything for me. I’m getting a lil discouraged, I must admit that to you all. I have been at my lowest last week and wanted to throw in the towel. I don’t know if it’s because I was just tired because of my health, and everything just wasn’t going my way or just cause the devil was just trying to get the bet of me. I believe it was a little of both. I’m not thinking that anymore. I know God isn’t finish with me yet, I’m here for a reason, so I need to continue to hold on and continue to fight to he calls me home to be with him. I’m so touch and feel so much love by all of your comments and prayers, it truly meant so much to me. I got to many visits from family and love one’s and calls from my best friend and TN, y’all thank you for praying for her mom her who had a stroke, she is doing so good. She has been there for me and so has her brother. They  have been keeping me laughing and if I couldn’t sleep staying up with me, and just praying for me. I couldn’t ask for two great group of lovely souls than them two. God knew what he was doing, he knew I couldn’t have that surgery for a reason on 5.21.13, I had to overcome this obstacle last week, and I can’t wait to im fully over it. I can’t wait to I can share more with you all. I need my rest and to stay on top of my studies, you all know how much I hate to be behind on my studies. God is truly good. I want to say thank you again. Thank you for joining my JOURNEY, and been part of my blogging family. I pray all is well with each and every one of you. God Bless. Sending love and hugs to each and every one of you. God Bless 🙂