Hello, and welcome to day 4. I’m still in the hospital, yesterday was actually a long day. I ended up gettng my tranfusion lastnight and didnt get finish to about two somethng this morning. As of right now my blood count is looking good, but its showing I’m dehydrated still so thats probably why I’m still hurting some. Had to get some x-rays this morning, seem I have touch of bronchitis, I don’t know how I got it. The doctor believe its the reason why I’m in the hospital because of it. I don’t know why its so hard for people to cover up there mouth when they cough. I’m so thankful for all the prayers, kind words you all have left me. God has truly BLESS me with some kind nurses and doctors. I’m not much with words tonight. I shall keep you all updated and make the next post longer. Till next time.. God Bless 🙂
Tag: doctor
Day 2, Living With Sickle Cell Anemia
I like to thank everyone for there kind words and prayers, I haven’t got to all my comments just yet, but have read them all. Truly touch my heart to hear you all praying for me. Early this morning got news I need to have tranfusion, my blood count has drop to 7.0! I’m not happy about it dropping because I believe it could’ve been prevented ahead of time. Before I came to hospital yesterday I receive some upsetting news, that my paperwork hasn’t been fax so I can see sickle cell doctor. Everytime I call and my blood doctor call they said they was faxing it over right then. We shall see how that goes. Its going to take awhile before they find my blood, so I have been told and I have been through this so many times in the past. Hopefully so many peeps done went out to donate blood 🙂 I do have a nice nurse today, the other nurse went home before she wasn’t feeling her best. Just waiting to see the doctor to see what he have to say. Thats all I have to share with you all for now. I shall keep you posted.
Living With Sickle Cell Anemia
Before I begin, I hope I don’t be everywhere with this post! You have been warn 🙂 I’m so glad the month almost over, hopefully okay maybe I should be saying I’m praying I have a better month ahead of no pain, doctor visit, nasty uneducated doctors, and nurses with no freaking back bone. I believe I put all that in a nice way to be honest! As of last night, my lovely blood count has drop! I’m so not happy, I take it the uneducated doctor is waiting for it to drop lower before I should be put in the hospital. I have to say I’m totally losing my cool for hospitals all together. I know all doctors,nurses or not that ignorant. Lets just say I didn’t have a good day yesterday! I did have someone take care of the situation that had happen before. So thankful on that! I have come to conclusion, if I say I’m FINE, everything might just be that eventually! People or asking me how I’m feeling and I’m saying okay or I’m fine, because honestly I really just want to feel fine! I believe today has been one of my worse days. I forgot to bring some meds with me so I had to be in pain for a while today. You know how some say the calm before the storm. I believe I said that right, my head isn’t all here right now. I believe sleep is finally calling me home. Yesterday I was worry I would’ve wait longer before I could see the sickle-cell doctor, because of another reason, but got call and hoping to see him soon. I refuse to make a trip to E.R where I’m at! Plenty of hospitals, but when you in pain I don’t see the point going out the way, might be something I have to rethink to be honest! Something the nurse said to me who was discharging me, she just don’t know I had a lot of unkind words I would’ve said, but didn’t! I can’t lose my cool because there uneducated on my illness. Easy said then done, but something I truly need to work on. Honestly I’m starting to believe certain doctor love to see me in the E.R, but just not able to stick her head in the room when I’m there. Hmm you know a lot of words come to mind. I must say I better not have to visit the evil place no time soon. Sighs! I believe this post is long enough and you all can sense how I’m feeling about it all! Sorry to surprise some of you, but hey we all have our weak moments when we just fed up! I must say I think I need to go back to when I was younger and had to drag me to the evil place! I don’t think that good ideal, because I had to literally fall out before I actually went! Me in the evil place have many stories we could share!
Thankful for all the prayers and encouraging words, truly means a lot to me! God Bless Each & Everyone of You 🙂
My Story
Has taking me places I never thought it would be going.
Only honesty can get me out of this right now
So to my kind followers
Lately I have been losing
courage to share my JOURNEY
with you all.
It seem like I’m ready to throw
in the towel and ready to give up
All I want to do is cry,scream,yell
and hide under the covers in
the dark!
This is My story
2/22/12
PoeticJourney
I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain. Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about. I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done. After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense. I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.
I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂
Living With Sickle Cell Anemia
Hello and Welcome to my place, if you new to my JOURNEY, you may not know I just recently got out of the hospital for been in there for about a week! sighs! If you been on my JOURNEY, you all know the routine and thank you all for staying with me for the long ride. I never imagine it would be so bumpy. I have never seen the inside of hospital as much as I have this year. I suppose it’s the first time for everything. Well not just this year, since the year just came in. lol. I have never seen the inside of hospital every month. Usually just once or twice and sometimes none. I truly miss the times I didn’t see inside the hospital. I’m glad I finally got my port, on my last stay, so I don’t have to worry about getting stuck so much when I do have to visit doctor office as well as the hospital. I’m hard person to stick. Every since I been out the hospital I haven’t been feeling my best. I have been in pain ever since. I find out yesterday I’m actually in the process of having a crisis, but were trying to do everything to prevent it before it get out of hand. I’m happy to let you all know, my blood count is looking good. YAY! I hope it still looks good,when it comes to check up or if I have to return to hospital because for some odd reason I can’t get my pain under control. I must admit did have nice looking doctor yesterday with the prettiest darkest blue eye’s. I’m a sucker for them. Okay you getting to know me a little bit more 🙂 On side note, my little lady has been sick as well with ear infection, she is starting to feel a little bit better. THANK GOD! If it was anything besides ear ache, I couldn’t be around her. She been saying, but I love you. 🙂 Okay back to the point of my post. I haven’t been feeling my best, right now I’m still not feeling the best that I should be feeling. I’m actually in the process of watching a movie with my little lady. I just hope my blood count stay the same, since it was looking good, but long as I’m hurting that means it got plenty time to betray me. 😦 I’m praying it stay up and going strong. I’m so thankful for the one’s who or still praying for me and holding me in their thoughts. It means a lot to me! I must admit, the day I came home from hospital I did tell the doctor I wanted to come home even if I was in pain, but to be honest, I had started to feel better. The weather has been a little crazy here.
:)
I know I mention I receive good news yesterday 🙂 The good news was I went home, so I spent the rest of the day with my family. I was so glad to see my little lady , her little face lit up. She was so upset about leaving school that she was crying, she stop when she saw me. It truly made my day coming home, I must admit. I told the doctor I was ready to go home either way if I was hurting or not. Let me tell I meant it. A week in the hospital was long enough for me. I must admit I did have cute doctor, the man I saw the first night I was put in. I was excited to hear my blood count went up a little bit more. Thank God. It didn’t get check the night before, and I was off the fluid the day before for four hours, so who knows it might have made a difference. I must admit I did have a good Valentine, going home and being with the one’s I love. Nothing is better than that. In my book that the perfect Valentine. 🙂 For the first time since I have been in hospital I haven’t really been in the mood to post or comment through my ordeal. I must admit it has been one of my not so good experience in a long time. That truly says a lot. I’m not going to bore you with long story, I know you all getting tired of reading about my experience in the hospital. SO I leave it as that. Thank you all for your encouraging words and prayers, truly meant/means a lot to me. Kept me going! God Bless 🙂
Day 6, Living With Sickle Cell Anemia
Good Morning, Another Lovely Day and still stuck in the hospital. As of right now, I don’t know when I’m going home. I haven’t seen the doctor today or yesterday. I thought I would have a doctor that would be on call for the doctor I had during the week. I suppose I was wrong. I had to change rooms yesterday. I have a bigger room, which I’m loving I must admit. I had some more old nurses. I find out this morning, little lady doesn’t want to talk to me she wants to come and see me. I hope that explains why she hasn’t been taking my calls. Oh yea I was regretting moving to the room I have because of the person next door. I believe she is older woman. She keeps crying out help her help her. I didn’t know what was going on with her. I do have some nice nurses, so thats good. I do hope to receive some good news tomorrow when I do see my doctor. I hope my blood count be still on point since the last time it got check was two days ago. This time around I haven’t really have the strength to post or comment. I know once I’m out the hospital I have a lot of reading to catch up on. Well just saw the doctor, will be getting some blood work done to see how my blood looking. I hope to share some good news on the next post with you all. For some odd reason, my blood pressure isn’t looking good for me. It has been very low . I’m still having some pain, so still have to ask for pain medicine so I can get some sleep. If you wondering how long I been working on this post, let me tell you all freaking day! lol! I just got some sad news 😦 my count his drop some and I hope it doesn’t drop any tonight. It hasn’t drop enough to get enough unit but its not 9 anymore. I don’t know how I feel about all this. I believe I’ll get me some rest, since I’m not feeling my best. I do hope each and everyone of you is having a Bless Sunday! God Bless 🙂
P.S Thank you all for your prayers and kind words, truly means a lot to me! God Bless 🙂
Day 3, Quick Update
I’m back to share how it all went down today. OMG im so sore where I got my port at so its hurts to really move and to type, so this will be short post. I haven’t had the chance to make it to my comments so do bare with me. I’m not ignoring you. I have a nice nurse tonight, his name is Alex. His a funny guy 🙂 I was so glad to have something to drink, I can’t even tell you what all I had to drink. Of course I was excited about eating as well. I finish my subway sandwich it was good. I’m so thankful for all your prayers and comments. They truly mean a lot to me. Oh yea a little good news is I find out a few hours ago my blood count is going back up! YAY! still low but not low as it was the other day. Something tells me I’m forgetting something, if that the case I make sure to mention it tomorrow lord will. Many Blessings 2 each and every one of you! 🙂 Oh yea I must admit I have been getting much sleep since I been back from surgery. I got to meet the doctor earlier today before it came down to have the surgery, such a nice man. And plenty of nice nurses as well. 🙂
Day 3,Living With Sickle Cell Anemia
Good Morning, Another Day here in the evil place. I might make two post today. I’m not happy to be honest. I can’t eat or drink to I get my port. YAY for the port, boo that I can’t have anything to eat or drink. We have subway here at the hospital so it’s not like I would eat the hospital food. I would love a cup of coffee right now. I had another lovely nurse last night she went and go my sub for me last night. 🙂 I’m still waiting to get my transfusion, I need two units instead of one. I believe they have one right now, but not the other one. Sighs! I’m a little nerves about the port, but I need it, because I don’t know how much more I can take getting stick. I saw my little lady yesterday, she didn’t want to leave me. I was so happy to see her. I told her I would call her and check on her, but I feel bad since I was in so much pain yesterday. I had forgotten to call my little lady. She didn’t want to talk to me today. I can’t blame her. I saw my doctor yesterday. I seem to have to start seen a sickle-cell doctor since I’m having more crisis then every before. Oh yea lucky me I have to add another pill to my collection. Sighs! If you all don’t know I hate taking medication. I can understand take them every now and then when you have pain, but to take them so you wont have pain is another story. Well that all for now, I do hope each and every one of you is having a lovely day.
P.s I’m so thankful for all the prayers and lovely comments, they truly help my day go by. God Bless:)
Day 2,Living With Sickle Cell Anemia
Good Morning, I had rough night last night dealing with my I.V, had to get a new one. I would get a rude nurse this morning to put it in. I told her to take it out and she ask a stupid question WHY? or you freaking kidding me. Obviously it hurt. I had to but my tongue and let me tell you I had some words to say to be honest. Today I have a lovely nurse I done had before. She is so nice. She heard about the rude nurse, and I don’t know how she heard about her because I didn’t say nothing to anyone. I was in too much pain, to let the nurse I had known last night. I didn’t get the nurse name who came and put my I.V in, my nurse says she don’t play that. See what I mean a good nurse I have. Okay to the bad news, my count drop to 7.3, so you all know what that mean right? I need transfusion. sighs. I know another one. I’m still hurting today, not feeling my best, but wanted to share some of my good and bad news with you today, since last night was sort of short because of the pain. I’m so thankful for all your prayers and encouraging words. Truly touch my heart and head me all teary eyes. I shall keep you all posted, so until next time. You all have a Bless & Glorious Day!
p.s Almost forgot about the doctor, I do have a nice one this time around as well. Someone I never had before! Actually saw him when I got on the floor lastnight and that was around 11 soemthing. I told him I’m use to seen the doctor in the morning, he said he had nothing better to do. I had to laugh at them, sounds like a man thats about his business! We shall see how it goes throughout my stay here.
Poets Afterthought 