Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

thumbnailSCDToday isn’t a good day. I’m so not enjoying the weather. Taking one day at a time, is easy said then done, when your body is screaming pain every which way. The E.R did call and check up on me yesterday, asking if I was feeling better then then day before, I told them no. I’m trying hold out to Tuesday, since I see my blood doctor. I don’t know if I can do that right now. My labs may have came back good, but my body is telling me another story, I don’t know what more to say.  I was glad I didn’t have a long wait Friday, only thing I didn’t like is the medicine they gave me. Seems my headaches are getting worse, migraine medicine not working anymore and I don’t want to up my doses to 100. Me and hospital seem to be at Whits in st the time been. My whole left back is either sore. I can’t lay on it, or touch it. I have pain shooting up. And my left arm is doing the most. Sighs… IMA love it when I have a day or even a week with of no pain. I’m on break to Wednesday, so thankful for that Blessing….

Posted in Health, My Journey, Physical Therapy, Prayers, Sickle Cell Anemia, Thankful, Update

Physical therapy

Week three since of Monday just pass. Yay! As you all may know for the ones who read my late post last week, of my accident! Doesn’t look like I damage anything, which I’m very thankful of! I was very worry… thank you all for the prayers. I so don’t like this season or the next. I’m more concern with my sickle cell while recoverying. Having trouble doing squats. You never realize the lil things to you can’t do them anymore. I know its temporary thing for now. I’m pushing myself every week! And trust I crash out everytime I get home. Me and bed have such good relationship during the day then night.  We working on bending my knee while walking, I think in back of my mind I’m scared ima fall. I still be happy with X-ray in a month. I have truly learn lesson to not do much and even tho not crazy about walker its not the enemy, it can prevent harm while recoverying… God Blessed till next time

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Posted in Health, My Journey, Physical Therapy, Update

Physical Therapy /Weekend

I know I’m late with the post. I been trying recovering from Thursday! I seem to have trouble bending my knees since surgery. I don’t know if I’m scared. I just know when working the muscles its no joke, its going to take some while. Right now I’m in serious pain and worried cause I walk into stump root in the ground, yep the hip just had surgery on. I’m using my walker less and less when I’m home. I have went out shopping this weekend and brought it with me.Friday, I overdid it, so I crashed out soon as I got home. I’m hating how I have to depend on people to help with my socks, shoes. Not going to mention how many precautions I broke.

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Posted in God, Health, My Journey, Physical Therapy, Sickle Cell Anemia, Update

Surgery Update Pt.2

Today l had my first doctor appointment since my surgery. It went good and was so glad to get the staples out and didn’t hurt.I was worry for nothing. Had a lot of people telling me everything would be okay. I need physical therapy for awhile. Can’t wait to see how everything goes when I return in six weeks. I’m praying for a smooth rest of the year with my health! The X-ray came out good, and showed everything going smoothly 🙂 God is Good!

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Posted in AWARENESS, God, Health, My Journey, Update

Surgery Update

Hello Everyone,

So thankful for all the prayers and comments truly touch my heart! I’m home, actually came home yesterday! It wasn’t as bad as I thought, my God knew I could handle it all! I read the comments but couldn’t respond and.still can’t!  Everyone saying I’m doing good on the walking! It maybe with walker for now! But to hear nurses say how good I am when other people are struggling that been using them longer then me. I had a good team working with me. I had a little rough time! Fever after surgery, they couldn’t find out where it was coming from. My blood count held its own before and after surgery! Then well it fell and came back up and did it all over again. I had a great group of nurses on my team as well! Some I felt probably in wrong career because she just forgot a lot of stuff! Lol Talk about that another time! Time for me to crash, hope.share more soon.God Bless

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Posted in AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Surgery Day

Good Morning, early post because I know I wont be able to do it later! Today is my surgery and its at 7:30 in this morning and I have be there at 6:00! And will leaving out at 4:30! Its in another county! I have slight headache, I didn’t eat because well I couldn’t!  No food or drink after midnight! I have put it all in God hands! If y’all wondering I’m having hip replacement surgery due to my sickle cell! 6-8 weeks recovery! Therapy is going whoop my butt! Lol! I’m thankful for the prayers and likes. I make sure to update once I got strength to do short post! Hope all is well! God Bless

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Posted in Health, My Journey, Sickle Cell Anemia, Update

What A Week…..

What a week I had! I was surposed to be having surgery the upcoming Monday, but unfortunately it got push back without my acknowledge. I actually had minor surgery Thursday! I had to have exchange to bring my blood count up so I’ve good to go pretty much! I believe 7.7 was good enough for me! A person who hasn’t had transfusion since April, but last two times I was hospitalized and got low as 5, couldn’t have transfusion no matter what do to having to many! Oh yea I was disappointed I couldn’t use my port to have the exchange! You all know how much I love and thankful to have it!  Had take a class to prepare me for the outcome on the 14! I’m hoping to get my term done this week and much needed rest. If I’m quiet you all know why! So do bare with me, and hope all is well with each and everyone of you! God Bless

Oh yea I got 5 units of blood, which brought my count 10! Hmm that special IV in my groin just bring my count upto 10! Yes, I’m feeling a little sarcastic about the matter! I did.have a good surgeon! So yeah

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