I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then. I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂
Category: Health
Day 1-3,Living With Sickle Cell Anemia
I have being in hospital ever since Monday, I haven’t been feeling my best since the weekend and the pain got worse. I actually had doctor appointment Tuesday and was going to wait it out, but since I couldn’t get in touch with my ole primary doctor so I can get referral to go to my new one. I decided to cancel and go to E.R. Lets just say my lab came back fast because it was consider critical low. I’m not feeling my best still. I have to get transfusion. It actually was 6.9 when I arrive then that night it drop. Its taking longer this time for my blood, as you all know its hard to find my blood type. I haven’t been feeling my best, but decided to go head and share with each and every one of you. I’m so touch by all your comments and prayers. I do have some great nurses and doctors, that taking good care of me. I’ll try to keep you all updated from here on out. I do hope everyone is doing good. God Bless 🙂
Living With Sickle Cell Anemia(Update)
I don’t plan on making this long post, since I’m still not feeling my best. I know while I was in hospital I left off at Day 4. Lets just say things weren’t looking good for a while, but I was BLESS with a good doctor while I was int here. I know I had left off with telling you all I had bronchitis, but he was worry about me getting acute chest syndrome, which I got back in 06 and lets just say it wasn’t looking good for me back then. It’s safe to say I didn’t get it. 🙂 My blood count went up to to 10 but it actually was 9.6 since for some odd reason I was dehydrated so it gave a false reading the first time. I can honestly say it still is 9.5. I actually got 2 units of blood my hospital stay.
Oh yea, they actually did fax my paperwork over to sickle-cell clinic finally but only prove me for 3 visits. Hmm, what can they find out in only 3 visits? So I’m just waiting for call from the sickle-cell clinic so we can get that rolling. Wow, took long enough right? I actually have change my primary doctor since I been home as well. I need one that can actually come see me when I’m actually in the hospital. Once again I’m so thankful, touch, for the prayers you all been sending my way. Your kind comments kept my spirits uplifted. I Pray All Is Well! God Bless 🙂
Day 4,Living With Sickle Cell Anemia
Hello, and welcome to day 4. I’m still in the hospital, yesterday was actually a long day. I ended up gettng my tranfusion lastnight and didnt get finish to about two somethng this morning. As of right now my blood count is looking good, but its showing I’m dehydrated still so thats probably why I’m still hurting some. Had to get some x-rays this morning, seem I have touch of bronchitis, I don’t know how I got it. The doctor believe its the reason why I’m in the hospital because of it. I don’t know why its so hard for people to cover up there mouth when they cough. I’m so thankful for all the prayers, kind words you all have left me. God has truly BLESS me with some kind nurses and doctors. I’m not much with words tonight. I shall keep you all updated and make the next post longer. Till next time.. God Bless 🙂
Day 3, Living With Sickle Cell Anemia
Hello and welcome to another day with me in the hospital. Still waiting to get the confirmation about the blood tranfusion. I didn’t get much sleep lastnight, because they kept going and leaving out of here. My blood count has drop some more over the night. As of right now, I need two units of blood instead of one. Just got a visit from my blood doctor and it seems I will be rocking oxygen to help with the pain. I have been bless with some mre nice nurses today as well as lastnight. I’m so touch and thankful for all of y’all kind words and prayers, it does mean a lot to me. I shall keep you all updated as much as possible, I’ll be getting two units of blood for sure now. So I have to wait to both of them are here, so I an get them all in same day. I’m so happy SPRING is here, and I get to miss it all because I;m sick… :(, but I’m Alive, so I can’t complain. It could be so much worser then what it is right now. I do hope all is well with each and everyone of you.
Day 2, Living With Sickle Cell Anemia
I like to thank everyone for there kind words and prayers, I haven’t got to all my comments just yet, but have read them all. Truly touch my heart to hear you all praying for me. Early this morning got news I need to have tranfusion, my blood count has drop to 7.0! I’m not happy about it dropping because I believe it could’ve been prevented ahead of time. Before I came to hospital yesterday I receive some upsetting news, that my paperwork hasn’t been fax so I can see sickle cell doctor. Everytime I call and my blood doctor call they said they was faxing it over right then. We shall see how that goes. Its going to take awhile before they find my blood, so I have been told and I have been through this so many times in the past. Hopefully so many peeps done went out to donate blood 🙂 I do have a nice nurse today, the other nurse went home before she wasn’t feeling her best. Just waiting to see the doctor to see what he have to say. Thats all I have to share with you all for now. I shall keep you posted.
Day 1, Living With Sickle Cell Anemia
As you all know, I haven’t been feeling my best for the last few days. So I decide to go to E.R and well as you can see by the title, they decided to keep me. I have had a long day, basically dealing with my visit to be honest. I don’t really have much to say tonight, because I’m hurting. I’m so thankful for all the prayers, kind comments and encouragment, truly means a lot to me. I’M BLESS TO HAVE MET SO MANY WONDERFUL PEEPS ON my JOURNEY. I hope everyone is having a Bless Night! God Bless 🙂
Living With Sickle Cell Anemia
Before I begin, I hope I don’t be everywhere with this post! You have been warn 🙂 I’m so glad the month almost over, hopefully okay maybe I should be saying I’m praying I have a better month ahead of no pain, doctor visit, nasty uneducated doctors, and nurses with no freaking back bone. I believe I put all that in a nice way to be honest! As of last night, my lovely blood count has drop! I’m so not happy, I take it the uneducated doctor is waiting for it to drop lower before I should be put in the hospital. I have to say I’m totally losing my cool for hospitals all together. I know all doctors,nurses or not that ignorant. Lets just say I didn’t have a good day yesterday! I did have someone take care of the situation that had happen before. So thankful on that! I have come to conclusion, if I say I’m FINE, everything might just be that eventually! People or asking me how I’m feeling and I’m saying okay or I’m fine, because honestly I really just want to feel fine! I believe today has been one of my worse days. I forgot to bring some meds with me so I had to be in pain for a while today. You know how some say the calm before the storm. I believe I said that right, my head isn’t all here right now. I believe sleep is finally calling me home. Yesterday I was worry I would’ve wait longer before I could see the sickle-cell doctor, because of another reason, but got call and hoping to see him soon. I refuse to make a trip to E.R where I’m at! Plenty of hospitals, but when you in pain I don’t see the point going out the way, might be something I have to rethink to be honest! Something the nurse said to me who was discharging me, she just don’t know I had a lot of unkind words I would’ve said, but didn’t! I can’t lose my cool because there uneducated on my illness. Easy said then done, but something I truly need to work on. Honestly I’m starting to believe certain doctor love to see me in the E.R, but just not able to stick her head in the room when I’m there. Hmm you know a lot of words come to mind. I must say I better not have to visit the evil place no time soon. Sighs! I believe this post is long enough and you all can sense how I’m feeling about it all! Sorry to surprise some of you, but hey we all have our weak moments when we just fed up! I must say I think I need to go back to when I was younger and had to drag me to the evil place! I don’t think that good ideal, because I had to literally fall out before I actually went! Me in the evil place have many stories we could share!
Thankful for all the prayers and encouraging words, truly means a lot to me! God Bless Each & Everyone of You 🙂
Quiet
Today hasn’t been good day! I’m avoiding going to E.R, because I’m tired of them thinking nothing wrong because my blood work looks good! Feels like a few years ago back in 06. I almost died because they wouldn’t keep me! So if I’m quiet and you don’t hear much from me that’s why! I do hope everyone is having a good weekend! It done got cold once again which I’m not happy about! Sighs! Thank you all for the prayers and kind words truly means a lot! I’m praying I start feeling better soon! God Bless & Good Night 🙂
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My Story
Has taking me places I never thought it would be going.
Only honesty can get me out of this right now
So to my kind followers
Lately I have been losing
courage to share my JOURNEY
with you all.
It seem like I’m ready to throw
in the towel and ready to give up
All I want to do is cry,scream,yell
and hide under the covers in
the dark!
This is My story
2/22/12
PoeticJourney
I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain. Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about. I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done. After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense. I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.
I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂
Poets Afterthought 