Tag: Update

Posted in AWARENESS, My Journey, Sickle Cell Anemia, Update

Update

Posted on by poeticjourney

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Good Evening and Welcome to My World… I know it’s been awhile since I posted pretty much anything. I finally got a new primary doctor. Took me two times to finally snap me into reality and change doctors. Only one GOD n let me tell you, he wasn’t it. I had to take extra trip to get put in hospital since he wouldn’t do it. So far as right now, I’m doing much then I was last week. The crazy weather was getting the best of me. One minute hot and next cold. Now it’s just right, I pray it last. Minus the rain. Blood count is holding it’s on for now which is good. I have had my check up with sickle cell doctor and blood doctor and it went well. Has been a month since I been in hospital, so That’s always a plus:) I’m working on getting more insurance because the one I have now, isn’t doing me justices. I’m hoping to visit other bloggers and return slowly but surely. I believe I mention awhile back I have to have surgery on my shoulder. I’m hoping to meet with him soon and once everything set up, I’ll post with you all. I pray all is well with each and everyone of you all. GOD Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

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I have some good news to share, where should I start. Yesterday I got okay come home or stay another night cause of xray of my arm. Must say blood test came back false, no steroids.  I’m so excited! God is truly good:) maybe later on u have to have another xray to make sure I don’t need surgery. I must admit hip surgery is more for me then shoulder!  It won’t be long post. I did enjoy seen my lil lady,  not happy on
cold weather.  I’m praying I don’t have set back. Hope all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey and welcome to my world. I must say I’m not home yet, which I had got my hopes up on going home. I’m praying for tomorrow.  Still in some  pain, but not as bad as when I got admitted. So thankful for all the comments and prayers, truly touch my heart:) blood count came back up on its own, and guess what dropping slowly but surely. I have to be put back on steroids,  and nope not happy about it. If I don’t take them it could do more harm then anything,  but honestly I believe it make me sick at same time. I hope I can get some rest in a few.  I believe I shall wrap it up and try get comfortable.  I  have had some good nurses dis time around,  which is a plus. I hope all is well with each and everyone of you all.  God Bless

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Update

Posted on by poeticjourney

thumbnailSCDHey World,

 

Its been awhile since I been able to post and just enjoy blogging.  So since September come in, I have been loving the fact its my month to bring awareness about sickle cell. I’m on Facebook a lot and in many groups dealing with my illness. Seems so many our the warriors have died. I had got to the point of why am I fighting when we get treated so poorly when we go to er. That be another post for another time. I hope to share some stuff through the month about some of the things  and so many other go through.  My doctor appoint on Tuesday went very well, my blood count is highest it ever been. I haven’t been transfuse since early June. Don’t even get me started on that hospital stay and how many times it took before they took me serious about my pain. Even though counts r good, can’t say the same about my headaches, they have got worse. Lets just say I’m taking more meds to get them in check. I’m trying to stay on top of them and not get ct scan. It could mean many things. Another post later down the road. I had eye appoint  last month, it went so so. they have to stay on top of them. I’m on eye drops  and have to wear glasses. I’m nearsighted big time Sorry to make the post so long, but its been awhile since I posted and wanted to do mini update.

 

 

I’m hoping to visit many blogs over the weekend.

Posted in 2014, God, Health, My Journey, Update

Update

Posted on by poeticjourney

blogHey Everyone, and welcome to my world.  I haven’t been feeling my best but been trying to do what I can, as of right now. I have made some visit to e.r since my doctor have been on vocation. lets just say them visits’ didn’t go so well. I got sent home every time feeling worse then before. First time I went, had rude nurse practiner… It took God him self for me to hold my peace and not lose it.  Next time to had cool doctor, he explain everything to me on dis visit. Since my blood count looks fine, didn’t see a reason to keep me. He also told me that I know ya’ll can have pain even if blood count looks fine and retic. He tried to do everything he could, but since obamacare everything seems to be difficult to do. Hmm always something. Must admit its getting crazy for me as a person with chronic pain, if meds at home not doing its job. Taking meds and drinking  plenty fluids (water). I guess it a roll into E.R on my death bed then I get treated the proper way. Other then that my plumbing problem is almost taking care of that’s why I’m posting from home. I’m dealing with my nagging headaches, so it’s making it harder for me to post and read like I want 2. So do bare with me. I hope everyone is enjoying there summer, I hate the summer, its hella hot.. And not good for me. Who wants to stay in the house all the time? Looks around not me…  I do pray all is well with each and everyone of you all. So thankful for all who have join my journey. I now I have been slipping big time. So do bare with me, I have been writing, I just need to type it all up so I can share it with  you all.

 

 

I haven’t did update on the lil one’s in awhile. They getting so big and tall. Lil lady is 6 now and Mr. Man is 4. School will be starting soon for lil lady and of course Mr. Man will be going back to Daycare. I must say so glad to be home to enjoy peace and quiet. Maybe my headache will stop. I’m praying it does.. They grow up so fast right? Lil lady have become so freaking sassy its driving me crazy. Nast lil attitude for someone so young. Ha, I think I maybe rubbing off on her with attitude part. Ha. Mr. Man have one as well, and his tantrum is grr… That’s all I’m saying. Nope I’m not missing them whatsoever on this point. On flip side, the MOM who had them finally came home from prison. I must say I haven’t change my mind about her. I need proof that she done change and want to be in her kids life. One visit from my lil lady, she done got worse. Attitude … I already not liking it, but hey I’m not finna stress myself about it.. Another quick way to put in hospital looking crazy… Believe that’s enough update for now…

Posted in 2014, Health, My Journey, Pray, Sickle Cell Anemia, Update

Updated

Posted on by poeticjourney

Hello and Welcome to my world. I got out of hospital the day before the 4th. Blood count had drop 6.5, but I wanted to be home. I’m off my steroids. I had stop taking them before I was cleared. But got the lovely news while in hospital. Had good nurses and my doctor wanted to be on his P’s and Q’s. Surprise me cause I was ready to get rid of him. I’m doing better then I was…Headaches are giving me hell. But I’m pushing on each and everyday. At the moment me and bro staying at parents house, we currently having plumbing problems. I’m missing my peace and quietness. I had update doctor appointment, since been out of hospital. It went good, blood count went up tremendously:) I just wanted fill you in what’s been going on since I been quiet. As of right now I’m not feeling my best and don’t know what’s going on. I’m trying to see how long I can stay out of hospital. Please do keep me in your prayers. Many Blessing:)

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Good Morning, Welcome to my world, I know its been awhile. I have been in pain for over two weeks. I have made time to go ER, lets just say one didnt go so well. I got bless with rude nurse who threaten me and told lies. I thought to myself im not in mood for stupidity when im sick. Yes, did check her once, she got mad slam door. She thought calling my mom make her look better, if you all wonder my age I just said goodbye to my twentys, and dont live with my parents. If you follow me on twitter, you may think im lying about my age. Oh well thats on you. Anyways she been reported, if you dont love your job for whatever reason, get a new one. My other visit was okay, but since hemoglobin was ib 7″s and retic wasn’t to high, rhey gave me fluids, meds. Hmm both times oh and not so favorite oxygen. Im at the point im just tired.  Sighs…. I do have doctor appointment tomorrow, trying hold out. Waiting see blood doctor next week.

Posted in 2014, AWARENESS, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

thumbnailSCDHello and Welcome to my World. I done had two different check ups since I been home. I have one more towards the end of the month. I’m still working on changing primary doctors. I can’t say I’m surprise that the hospital I been going to don’t do business with some doctors here. I must say I met a lot of nurses that work with the hospital I used to go to and know my doctor very well. Like I told him since you wouldn’t admit me the first time, I had to go to another hospital. I refuse to be in pain, and you suppose to be my primary doctor. I’m still waiting  on my labs from last week and to see how my chest x-ray looks. Umm I did all this last Thursday, and still haven’t heard crap. I haven’t had my steroids since I got out of hospital last week. You would think he would let me know something. I done call office a few times. I saw my blood doctor today, and got good report. My blood count is good, still holding its on. I couldn’t be more happy. I’m dealing with headaches once again, seems like there getting worse every since I got sick last time. I’m praying I don’t see inside hospital for nothing, but I know that’s not going to happen. I went last week to get xray and stuck. I believe nurses hate to see me coming. I give them one chance to stick me, hello I have port, put it to use. But the last two different people from both check ups, did good.

Posted in 2014, God, My Journey, Sickle Cell Anemia, Update

Day 4-6,Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hello and Welcome back to my world! I’m still in hospital, but today is my lucky day! I’m going home 🙂 Feeling much better, so bless to not receive blood on dis visit! I would’ve stand strong and not accept it! My God had me in his hands! What a mighty God we serve. Going home with blood count still holding its own! I’m praying I wont see inside a hospital no time soon. My birthday month coming up, as well as Lil lady,she graduates! I want be healthy to enjoy it. I have engagement party next week! I’m doing everything to not get sick , so idk whats going on! Besides my body in a fight of its life. Thank for all the prayers, comments, mean so much to me. I never thought I would share my journey and it would touch so many lives. It took a kind hearted nurse to plant the seed and I’m still here sharing

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

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Hey Welcome to my world! I’m home and doing good! I have little doubt and fear in back of my head since I wasn’t supposed get transfusion, but then again I wouldn’t be among the living! Will praying for the best! I know my God got me! My blood count was a 9, after I got blood, it drop to 7.2, before I came home it went back up 7.9! God is good 🙂 I’m still on my steroids, I maybe on them longer, since I received blood against all odds! I’m looking into new primary doctor, I made my mind up on new hospital from now on! I’m touch by all your love and prayers, comments 🙂  it has been 6 months 4 days since my hip surgery 🙂