Posted in AWARENESS, family, Health, Lord, My Journey, Sickle Cell Anemia

Day 1-4 Living With Sickle Cell Anemia

thumbnailSCDHello Everyone,  I have been in hospital since Friday! I know its been awhile since I posted on my illness. Thursday Night, I got slap with pain in my right leg, but was hoping it would go away on its own. But early Friday Morning, and ended up getting worse and led me to ER and later on getting put in hospital. I havent had this kind of pain since I was in my teens, and I must say my early teens, broughts tears to my eyes. I couldnt walk, I can walk better today then I could a few days ago. Thank you Lord! When I posted a poem on my birthday, Fighting 2 Leave, I cant have tranfusion, so Im praying that my blood count comes back up. They was in process of looking for my blood type, but like I told them I cant have transfusion. it would do more harm to me then good.I have had some great nurses and of course doctors as well. I have a lil nut of nurse right now. Just something abou that woman. I may have to get to know her lil more. Shes the only new nurse  I done had so far, the others I done seen once before. I got a beautiful surprise for Fathers Day. I thought I wasnt going to see my dad, and he surprise me when he walk through the door with the lil ones and my brother and mom. I call him early yesterday morning to tell him I love him and Happy Fathers Day. First time been away from my ole man on Fathers Day. I pray all the fathers had a lovely day, and all the mothers who stepping in to do both the jobs as well. God Bless 🙂

Posted in AWARENESS, Health, My Journey, School, Sickle Cell Anemia

Living With Sickle Cell Anemia…

thumbnailSCDI’m so thankful for all the prayers and comments and even the likes, truly touch my heart. I had been sick for over a month,and trying to stay strong while in school, but got to the point I just couldn’t take it anymore. Ended up at the E.R Monday afternoon,let me tell you, that was the longest time I ever had to wait to be seen. If I was in the mood to  write a story on E.R, that would be one of them, with so many lovely and not so lovely stories to share with you all around the world. Lets just say, I didn’t get seen to about 7:30 that night, yep you read correctly and yes I type correctly. I was not a happy person, let me tell you. I got admitted but didn’t get put on the floor to the next morning. I was blessed with kind doctor and lovely nurses, and some cute male nurses if I do say so myself 🙂 I had transfusion, only one unit, which I’m thankful for. My doctor is smart now, he starts ahead of time to look for my blood. Whew, because you know I be still in their waiting, so im home, with the love one’s. I really wasn’t in the mood to post from hospital. I basically just got some rest, because I havent been sleeping since I havent been feeling good. I was my first hospital stay since the new year, so that’s truly a Blessings. If you was with me last year, you know how much that means to me and where I’m coming from. Right now, I’m doing some catch up with my studies, so hopefully soon as I’m caught up or when the term is over I can give blogging some more of my attention. I have read all the comments, just haven’t had time to approve them. I can honestly say my hemoglobin was good before I got put in but my retic count wasn’t because I was in so much pain, it end up dropping and he though I would need 2 units of blood. I know I’m everywhere with this post, sorry about that. I try to do another one real soon to keep you all updated. I do have doctor appointed in a few days, to see how everything going on. I pray all is well with each and every one of you. God Bless 🙂

Posted in AWARENESS, Death, prayer, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Hello Everyone,

 

I actually got my transfusion late lastnight, I was surprise my blood pop up that fast to be honest. My doctor and nurses was surprise as well.  I haven’t heard from my doctor today, waiting to hear from him, so I can know when I get to go home. They move me to the second floor, and I’m so not happy about it. 😦 I like been on the bottom floor to be honest. The nurses don’t take as long to get to you. I had to get some x-rays done, was suppose to get them done lastnight before I got my transfusion, but lets just say I fell asleep twice and they was no show. So we move on to the blood and got it started. I have to get meds before I can get blood. I had some great nurses lastnight and this morning, and now I have new nurses and I don’t know how I feel about it all since Im not on the floor I have come use to. I have a feeling I be home before Christmas. I’m still in some pain, I hope to be feeling no pain, real soon. I hope to enjoy my little break from school while on it recovering. Thanks for all the prayers and comments, truly means a lot to me. I don’t know whats going on with my phone, I been trying to post from my phone and can’t do it. I actually receive some more heartbreaking news while in the hospital. My family have lost anther love one, its sad to hear someone lose another child, but I know they in a better place. Please do keep them in your prayers over the holidays. God Bless 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Hello Everyone,

 

I’m in the hospital, I have been here since yesterday afternoon. I started feeling bad Tuesday. I felt my legs going out on me while I was out grocery shopping, but I just shook it off. SO yesterday, I started feeling bad and decided to come to E.R. Honestly  I didn’t think I would get put in the hospital, I was trying to hold out to January  to be honest. I’m in need of transfusion, I have to get 2 units as of right now. I never been in hospital over Christmas Holidays, so if I’m still here, this be the first time. I done had some great nurse, who I done had before. Well really don’t have much to say as of right now, hope to have more to say in next post. I hope everyone have a good Christmas, and Happy Holidays! God Bless 🙂

Posted in My Journey, School, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Hello Everyone, I bn trying to post from my cell for awhile and bn having problems. Glad to see I can finally post from it today. I end’d up had to get a transfusion today, but I was out-patient this time around. I havent bn feeling my best, so he didn’t like that my blood count was in the 7’s, this coming from my blood doctor. I have so many doctors to keep up with. I’m on a break from my studies to Wednesday, with new classes, which of course I’m so glad about. I was so tired of the math it was kicking my butt.  I’m glad it’s not hot anymore, and thankful for the cooler weather, just not the cold weather. I do hope everyone else is doing good. I pray everyone is recovering from Sandy, and my heart goes out to you all. I hope and pray you all make it through the other storm which is a cold one coming your way. I hope to make it back to blogging soon, right now I’m taking a break to im fully 100%, I do miss blogging and reading your posts. Well I do read, I just don’t get to comment or like. I haven’t forgotten you all. I’m thankful for all the likes and prayers and comments and followers, thank you very much. Hope you enjoy my journey. God Bless Each & Everyone Of You:)

 

Forgot to really mention how the transfusion went, I only had to get unit. That all I got for now.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Will be short post, haven’t bn feeling my best for three weeks now! Trying to stay on top of my studies, and praying not to get sick. I truly hate this time of the year, not good for my body. Actually made doctor appointment today for my headaches, they have got worse making it hard to focus. I’m in crisis as of now, but blood count is holding its own. Honestly if I tend to be in pain I may have to do some hospital time. Its taking a lot out if me to do the post, so ill end it here and pray all is well! God Bless:)

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Posted in AWARENESS, Health, Sickle Cell Anemia

Living With Sickle Cell Anemia

Its been awhile since I have blog about my illness, I have actually being doing good since  last week, I was in pain and was trying to handle it so I could take my finals, but ended up going to the E.R Monday. Something told me I wasn’t going to be able to hold out that long, but I was planning on trying and almost made it. The trip to the E.R went good, everything came back good, so I didn’t have to get put in the hospital and that’s always good news to hear 🙂  I actually had made doctor appointment for thursday and had to cancel that appointment since my finals got reschedule for that date.  I ended up seen my doctor the next day and of course put on more meds, I must say I’m starting to hate taking pills. Pills to prevent me from getting sick, pills to help with the pain, so I don’t have to go in the hospital or doctor. I must say I have being to E.R since June so thats good, haven’t being put in the hospital since June as well. I’m praying this good year for me. I need a good year, when it comes to school and my health. I know a lot of you all have been with me through all this, so you all understand where I’m coming from. I have a few days off, I start my new classes next week, and I must say I think I’m ready!  This month is SICKLE CELL AWARENESS MONTH. I actually had good experience this time around, I wonder did I have a good experience with the nurses and doctors, because I haven’t being in for a while. It does makes me wonder. One of the nurses I’m use to was letting me know she’ll be leaving the hospital and taking on another career, something she be doing for over 20 years. She is pretty much the main nurses that know how to access my port, because some nurses just don’t know what they doing. All the good one’s have to leave. WHY? If you know someone, or you yourself have trait or the disease, go out and support the cause. ITS TIME TO GET MORE AWARENESS FOR SICKLE CELL DISEASE.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appointment (update)

I had doctor appointment on Wednesday since I got since I got some lab work done!  I must say that I’m thankful for the prayers because I receive some good news back! Only one thing was low,but so what long as it wasn’t a 21, that’s when they and I have to worry! I believe I do the most worrying! I actually did some Tuesday when the nurse took to long! Makes you wonder what I have port for if they move slow as tropical Issac that’s coming my way may be! I provably should had said coming to U. S right? I can’t tell you what’s more stressful doctor visits or math problems?  I hate math as much as the doctor office!  Lol! Oh yea back to the nurse taking her time, you would think hospitals have ton of them that know how to access port right?  NO! WELL enough on my update, be on the lookout in a few weeks! I so wish I had twin to step in my place, I hate needles, any takers? Just playing I’m just thankful for who all go out and give blood for me and so many others in need! God Bless & Goodnight!

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Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia (Update)

I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6.  My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES!  I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂

 

 

P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Day 3-5,Living With Sickle Cell Anemia

Hello and Welcome to my World, at this point of time. I’m still in the hospital, the last time I posted I ended up getting my transfusion Friday night. It actually took to about 5 or 6 the next morning. A long night. I was glad to hear they find my blood. I was so out of it by the time my doctor made it around to see me and talk to me before I got the transfusion, he was like I was hoping to make it over to see you before you got the meds. All I could do was laugh at him. I got some good sleep that night, believe that’s the first night I actually got some good sleep since I been in the hospital. I’m still hurting but not as much as I was hurting when I first came here. The same morning after the transfusion I was surprise to with x-rays at 7 in the morning, can you believe that?? I can’t! I was cold and still sleepy. They could’ve waited to I had some coffee in me before they got me in my bed, but they tech who came to get me was cool. I had her once before. We talked about school and whatnot. Today is Father’s day, I call me dad and told him Happy Father’s Day early this morning, he have been calling me all morning to check up on me and to see when I was coming home. As of right now I don’t know when I’m coming home. Maybe tomorrow. I havent seen the doctor yet, I’m pretty sure his spending time with his son and father today. I believe I don’t bored you all enough. Oh yea my blood count is looking oh so good right now, its 9.9. I hope and pray it stay that way. Seems my calcium is little low so I have to take pills for that and of course iron pills and I’m not feeling that if you know like I know. This morning when I woke up for them to take my bp, it wasn’t looking so good. they was low, she even double-check them to see if it would be differently. No can do. Ty for all the prayers and kind words you all bn leaving me. God Bless 🙂