Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

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Good Evening, another Bless day. As I mention in last post, I ended up coming to er, and yep stuck here. Feeling much better then I was. I’m praying for a test to come back with good news, so I can stay off my steroids. Its bad enough I have to take meds every day. Must admit, I have had some good nurses. Can’t say nothing negative about them. Makes me wonder if they got there act together since I haven’t been here in awhile. I must admit I prefer to have male nurses. They so sweet, and cute as well. I’m hoping to make did short visit. Got me on oxygen, fluids, and of course pain meds. Guess what I saw my doctor. Hmm is all I can say. Got some x-rays done to see what’s going on. I have been in pain for three weeks, praying and hoping it go away on its own. Soon as I get information , I’ll share with you, when I get time and feeling strong enough to share. Thank you for the prayers, comments, as well as like, truly means a lot. God bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Good Morning, Welcome to my world, I know its been awhile. I have been in pain for over two weeks. I have made time to go ER, lets just say one didnt go so well. I got bless with rude nurse who threaten me and told lies. I thought to myself im not in mood for stupidity when im sick. Yes, did check her once, she got mad slam door. She thought calling my mom make her look better, if you all wonder my age I just said goodbye to my twentys, and dont live with my parents. If you follow me on twitter, you may think im lying about my age. Oh well thats on you. Anyways she been reported, if you dont love your job for whatever reason, get a new one. My other visit was okay, but since hemoglobin was ib 7″s and retic wasn’t to high, rhey gave me fluids, meds. Hmm both times oh and not so favorite oxygen. Im at the point im just tired.  Sighs…. I do have doctor appointment tomorrow, trying hold out. Waiting see blood doctor next week.

Posted in 2014, AWARENESS, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDHello and Welcome to my World. I done had two different check ups since I been home. I have one more towards the end of the month. I’m still working on changing primary doctors. I can’t say I’m surprise that the hospital I been going to don’t do business with some doctors here. I must say I met a lot of nurses that work with the hospital I used to go to and know my doctor very well. Like I told him since you wouldn’t admit me the first time, I had to go to another hospital. I refuse to be in pain, and you suppose to be my primary doctor. I’m still waitingย  on my labs from last week and to see how my chest x-ray looks. Umm I did all this last Thursday, and still haven’t heard crap. I haven’t had my steroids since I got out of hospital last week. You would think he would let me know something. I done call office a few times. I saw my blood doctor today, and got good report. My blood count is good, still holding its on. I couldn’t be more happy. I’m dealing with headaches once again, seems like there getting worse every since I got sick last time. I’m praying I don’t see inside hospital for nothing, but I know that’s not going to happen. I went last week to get xray and stuck. I believe nurses hate to see me coming. I give them one chance to stick me, hello I have port, put it to use. But the last two different people from both check ups, did good.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

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Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better ๐Ÿ™‚ Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all ๐Ÿ™‚

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 6-7, Living With Sickle Cell Anemia

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Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived.ย  I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening.ย I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2!  So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later ๐Ÿ™‚ All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in 2014, AWARENESS, heart, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

thumbnailSCDToday wasn’t a good day! My pain has got worse since last post. I went to primary doctor, honestly didn’t do me no good! He treated me either kidney problems or either I got ulcer. I can’t sleep at night as it is. My sickle cell nurse told me if it get worse to go to hospital and get admitted! My primary wasn’t getting my sickle cell problem, I wasn’t worry about the problems he talking about! If I stress it kick my illness in worse 10 time worser! I can’t move or use both my arms to extent! My left side still bugging me. My second week of new term started today. So as you all know that been with me. This isn’t looking to good with stress. I have appointment with blood doctor tomorrow and I’m not even feeling him right now cause of all the pain I’m in. You can’t stick me! Nor check my blood pressure at this point in time. Now if they can get blood from my port that’s what’s up! But I ain’t having the abuse right now. To the next post. God Bless ๐Ÿ™‚

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Posted in AWARENESS, God, Health, My Journey, Update

Surgery Update

Hello Everyone,

So thankful for all the prayers and comments truly touch my heart! I’m home, actually came home yesterday! It wasn’t as bad as I thought, my God knew I could handle it all! I read the comments but couldn’t respond and.still can’t!ย  Everyone saying I’m doing good on the walking! It maybe with walker for now! But to hear nurses say how good I am when other people are struggling that been using them longer then me. I had a good team working with me. I had a little rough time! Fever after surgery, they couldn’t find out where it was coming from. My blood count held its own before and after surgery! Then well it fell and came back up and did it all over again. I had a great group of nurses on my team as well! Some I felt probably in wrong career because she just forgot a lot of stuff! Lol Talk about that another time! Time for me to crash, hope.share more soon.God Bless

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