Posted in 2017, God, Health, My Journey, My Life, Prayers, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

thumbnailSCD

Today isn’t a good day, I have been hurting since Tuesday.  I haven’t seen inside hospital e.r since the beginning of the year. Some days are better than the others.  I may be going to the hospital later today, but let me tell you, that’s the last thing I want to do be honest. But the meds aren’t working, I haven’t had pain meds that hospital give it a long time.  I have been taking nerve meds to relax, but it’s not working. So I know what  I need to do… It’s the idea of ignorant doctor knowing more about my illness that’s turns me off on going to be treated. I truly believe some doctors are out to kill a lot of us with this illness.. Oh, your blood count looks fine, so we not going to do anything. The last time I went. My retic was high, did the idiot check my counts nope just retic. Did he give me any meds that I was suppose to get. Nope, he gave me something I never had before and it made me feel worse. Did he give a damn, nope.   They truly believe giving us fluids should help without proper care. I just hope when I do go to the hospital I don’t have to deal with idiot doctor.  My whole body is betraying me in the worse way. sighs…Do keep me in your prayers, I’ll be cutting these post short, because hurting too bad to focus properly. I pray all is well with each and every one of you. God is truly good all the time,

no matter what we go through. He got us.

Posted in 2016, Health, My Life, Sickle Cell Anemia, Update

Day 1-2, Living With Sickle Cell Anemia

image

Hello World,

I wanted to update you all on my condition. I’m feeling better then when I came in. I’m not fully pain free, just thankful I can move a little bit more and on my own. My counts or 7.2 and retic is 10. Ill be getting labs early in morning and will let you all know what’s what. I have a good doc and wonderful nurses taking care of me. Hopefully tomorrow I can make post longer. Ty for kind words and prayers, truly means a lot. God Bless

Posted in Health, My Journey, My Life, Sickle Cell Anemia

Day 3, Living With Sickle Cell Anemia

image

Hello World,  I’m writing you from hospital bed. I bn sleeping off and on today because of my counts bn low. Yesterday was a rough day for me. I woke up with headache and it didn’t go away till the end of night. I wasn’t feeling nobody. My counts are at 7.1, not the best and not the worse. My right arm is still giving me trouble.  I can’t do much with it. The doctor mention blood transfusion yesterday,  honestly that’s my last result. The last transfusion was back in December when I get put in hospital on Christmas. I done had some great nurses. Thats always a plus when it comes to me. I’m praying counts don’t drop no more. Till next time. Thank you all for the prayers and comments, truly means  a lot to me.

Posted in AWARENESS, Children, Health, Heartbreaking Story, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Hey Welcome to my World!  I Had to make a trip to hospital. Monday I came and got fluids and meds,  find out I was dehydrated.  I take it Tuesday must got the best out of me. Rain isn’t good for me. I woke up Wednesday morning in pain from head to toe. You can only imagine how I was feeling at the time. I hate coming to E.R you always got to wait forever and a day. Doesn’t matter how early you come in. I had bad experience Monday when I came in. The guy half did his job, and four people that got here after I did. I’m wondering wdh going on.

My count is dropping slowly.I’m still in pain, but not as bad as it was when I came in Wednesday. Be a lovely thing if I had no pain whatsoever.  What dis cruel world coming to. 8 year ole find dead in ditch with nothing on. So many people trying come to terms with such heartbreaking news.  Praying for the family. Well believe I cut it short, pain and sleep. I pray all is well with you all. God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia

Living With Sickle Cell Anemia

image

Hey, welcome to my world! A very short post. I have been under weather lately. Blood count is good n praying doesn’t drop anymore. Had a follow up doctor appointment today.  Over weekend got so bad couldn’t walk r stand. My ankles had swollen up. If it’s not one thing it’s another. My arms and hand hurts, which make it hard to type. I do read when I get the chance,  hoping to have update with more information.  Please do keep me in your prayers. God is good all the time:) I pray all is well with you, you and YOU:)

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 4-5,Living With Sickle Cell Anemia

image

Hello welcome to my world! Im still in hospital, and lets just say what a hell of a way to start my morning! My count has dropped 5.2, seem I had to get threatened to even consider transfusions. My options were have heart attack or my kidney failure! Lastnight was rough on me, seem my knee got swollen on the leg just had surgery on. Cant move it much or put pressure on it. They mention trying pull fluid from it, lets just say your girl flipped out. That was big ole needle and it didnt sit well with me. Mri didn’t sit well with me!! Idk how my lil heart handle all that stress lastnight. Right now im in some pain, so I shall end it here and hopefully update tomorrow! Thank you all for comments and prayers! God Bless

Posted in Health, My Journey, Sickle Cell Anemia, Update

Day 4-5 Living With Sickle Cell Anemia

thumbnailSCDHey and Welcome to my World, I’m still in hospital and hopefully I get to come home tomorrow. I should know something in due time. I still can’t have transfusions, but it seem the meds they have me on is finally working and that makes me happy! I have been on some new meds since May, and ready to get off it. I’m actually on a lot of new meds, but this meds I really ready to get off because it’s interfering with some of my other meds, that I need on everything basic. Sighs. It feels good to finally get some sleep, I believe I’m still tired, but I’m actually on my last week of studies, and I need to try to catch up before the week is over with. So much to do in so little time. I have had some great nurses, had one rude nurse name Mary. Makes me wonder how she got a job to be Nurse Assistant, if all she does is complain, I would hate for her to be nurse, and she says she going back to school for it. Well, I hope peeps run the other way and don’t look back, I’m just saying. My bestie mom finally came home from the hospital the other day, and she is doing much better, but got heartbroken phone call, that she is not her self, she lost some of her memory. I spoke with her a few days ago, she knows who I am. It breaks my heart when strong woman a God is struggling the way she is. It’s truly breaking her daughter heart, because she want to take care of her mom and not rehab place. Doctor just told me not to long ago that my retic count has come up, I’m hoping to hear my blood count has come up as well. I’m praying for some good news. Looks like my head is everywhere with this post, please do forgive me. I have a lot going on with me at this time. Thank you all for the prayers, truly means a lot to me. I pray all is well with each and every one of you. God Bless 🙂