Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived. I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening. I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2! So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless
Tag: health
FIGHTER
Standing Strong
hit with cancer
didn’t let it get the
best of her
Staying strong for
her husband, kids, grand-kids.
I love how GOD works.
What a strong woman standing
strong.
7/25/12
~PJ~
The poem is dedicated to my cousin and her family. Her mother was diagnosed with cancer some months ago when I was going through some rough time with my illness. Now she is going through chemo. So I decided to dedicate this poem to my cousin and her family.
Living With Sickle Cell Anemia
The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know! My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.
I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!
Day 8, Living With Sickle Cell Anemia
I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything. I don’t want to make this post long. I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love. You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂
GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY
I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!
Day 4-7, Living With Sickle Cell Disease
I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then. I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂
Living With Sickle Cell Anemia(Update)
I don’t plan on making this long post, since I’m still not feeling my best. I know while I was in hospital I left off at Day 4. Lets just say things weren’t looking good for a while, but I was BLESS with a good doctor while I was int here. I know I had left off with telling you all I had bronchitis, but he was worry about me getting acute chest syndrome, which I got back in 06 and lets just say it wasn’t looking good for me back then. It’s safe to say I didn’t get it. 🙂 My blood count went up to to 10 but it actually was 9.6 since for some odd reason I was dehydrated so it gave a false reading the first time. I can honestly say it still is 9.5. I actually got 2 units of blood my hospital stay.
Oh yea, they actually did fax my paperwork over to sickle-cell clinic finally but only prove me for 3 visits. Hmm, what can they find out in only 3 visits? So I’m just waiting for call from the sickle-cell clinic so we can get that rolling. Wow, took long enough right? I actually have change my primary doctor since I been home as well. I need one that can actually come see me when I’m actually in the hospital. Once again I’m so thankful, touch, for the prayers you all been sending my way. Your kind comments kept my spirits uplifted. I Pray All Is Well! God Bless 🙂
Day 4,Living With Sickle Cell Anemia
Hello, and welcome to day 4. I’m still in the hospital, yesterday was actually a long day. I ended up gettng my tranfusion lastnight and didnt get finish to about two somethng this morning. As of right now my blood count is looking good, but its showing I’m dehydrated still so thats probably why I’m still hurting some. Had to get some x-rays this morning, seem I have touch of bronchitis, I don’t know how I got it. The doctor believe its the reason why I’m in the hospital because of it. I don’t know why its so hard for people to cover up there mouth when they cough. I’m so thankful for all the prayers, kind words you all have left me. God has truly BLESS me with some kind nurses and doctors. I’m not much with words tonight. I shall keep you all updated and make the next post longer. Till next time.. God Bless 🙂
Ups & Downs
Up & Down
Down & Up
My body can’t make up its mind
to stay on the up and up
Telling myself not to stress
and make it worse
Transfusion was pointless
blood pressure
playing with me
All I want to do is scream
That wouldn’t help me any
Up & Down
Down & Up
What’s really going on
Is my body betraying me
running through my mind
Up & Down
Down & Up
2/12/12
PoeticJourney
So much was going through my head at the time I wrote this poem, actually did it while I was in hospital. I Thank God he didn’t leave my side, through all this. I’m truly Bless, I don’t know how much I can say that. Do Enjoy! God Bless 🙂
Not sure if I like the title, just yet. Still working process, do let me know what you all think!
Update(Doctor Appointment)
I receive some good news, so I don’t have lupus and that’s real good to know. I’m not happy about how long t took my primary doctor to fax some information over that I needed to see the doctor. Last time I saw him was before Christmas I was back there and now have made it back to the waiting room, while waiting for them to get with it. Lets just say I wasn’t happy about how everything was going. Have you ever wonder why doctor office are always cold? Well I have, I would think it be warm since its hella cold outside. Sound like they trying to send me back to E.R, but hey that’s just me over thinking the situations. What do ya’ll think? I finally left, so hopefully I wont get a bill talking about my insurance wont cover it and I have to pay whatever crazy amount. I know for a fact I have to act a fool. Another plus side of the situation is that the doctor was nice looking man. 🙂 I had to share that little info! He gave me pamphlet about Lupus, I’m just glad I don’t have it. THANK GOD FOR AMAZING GOD WE SERVE. GOD IS TRULY GOOD ALL THE TIME. THANK EVERYONE WHO HAVE BEEN PRAYING FOR ME! I never imagine my JOURNEY taking me through this, but I must say I’m so glad to have ya’ll as a support system. I don’t know what I would do without ya’ll!
OAN: I’m feeling much better today, then yesterday. Thank God! Please do give me time to catch up on approving comments, and visiting blogs. God Bless 🙂
Dear God Letter
No news is good news so I have been told growing up
I’m waiting on phone call from my doctor nurses about my blood count. Trying to stay positive, I done already had my weak moment & broke down. I’m feeling okay, can’t say I’m at my best. I’m hoping for good news, normally I would have heard back in same day, but never went in on Friday or when it was so busy. And it’s holidays around the corner, not helping the stress. I’m praying for good news. Long as it’s not 6 or low 7 I’m good. Okay you probably thinking that’s not good, normally it’s not but if you new on my journey I have Sickle Cell Disease. I just want some good news. No news is good news Right? I was always told that growing up but its doesn’t help me feel better.
Dear God
I need you
I know I been coming to you
A lot lately & have so many
Wonderful peoples praying for me.
I’m coming to you for myself.
I’m struggling
I’m scared & and letting it all get
The best of me
GOD
I truly need you
I know we seem to have this talk
A lot lately.
I’m struggling
So many times I though
You abandon me (us)
I thought I was a mistake (illness)
Sometimes I still wish you left him & took
Me.
I know you did the right thing,
GOD
I’m asking for a lot
I really want good news about my
Health
I’m struggling on my JOURNEY
If I have to crawl I will
My pride may let me ask for help
Be the last thing I do
I’m working on changing completely
I’m struggling with Forgiving,
It’s holding me down
GOD
I’m so sorry!
Why is it so hard to let go all the angry
It’s eating me up so unhealthy for me.
DEAR GOD
It’s me PJ
I’m standing here, ready
To fall down at your feet
Sometimes feels like the weight of the
World is on my shoulders.
Master,
I need you
I’m walking holding my arms out
To be closer to you.
I know with you everything going
To be alright.
You’re Loving Child,
PJ
Fighting to make it to the rightful place.
11/21/11
PoeticJourney
I still haven’t heard anything and I had talk with GOD, brought me at ease. So many people’s praying for me I knew it was my time to go come to him with everything. I know he knows my heart, but It feel so much better to have it off my chest. As I said so many times before, I’m not perfect. I’m having a battle, but not giving up. I have been through too much to give up now. That’s with my health and getting where I need to be with GOD!
