Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Hey Everyone and welcome go my world!  I have been in hospital since Monday. I actually got sick Sunday night around 11, and knew I was in for rough night! My blood count was.7.9 when I arrived, now it 6.9! I know I mention in one of my post I had a cold, idk if that help kick in my sickle cell. Sounds like I I’m coughing up my lungs. Sighs! I have, some awesome nurses so that’s a plus in my book.  Be sweet if I could get some sleep! But my pain is making it difficult for me right now! Actually spoke to my doctor before he went on vocation, he was the E.R when I came in, so he fill the doctor in that’s stepping in for him about my situation. I still can’t receive transfusions right now. Another story for another time. If anything else comes up, ill make sure keep y’all updated! God Bless 🙂

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Posted in AWARENESS, family, Friends, God, My Journey, Sickle Cell Anemia, Thankful, Update

Living With Sickle Cell Anemia

thumbnailSCDHello Everyone,  I’m finally home, been home for a few days now, spending time with my love one’s. Getting much rest as possible. I must admit I’m so glad to be home, so can’t wait to be feeling my best. I usually would have this post up already, but still not 100 percent. I’m hoping sometime this week to know if my blood count has went up some more. Before I left it was still in the 5’s and we all know that’s not good. I must be honest with you all. Only Lauren knows whats going on with me. Right now I’m not doing good. I was supposed to have surgery on my birthday to have hip replacement, due to my illness. But that’s when I find out I had warm antibodies in me, because I done had so many transfusions, that’s why I can’t have anymore right now. I have been on the meds for over a month,and there not doing anything for me. I’m getting a lil discouraged, I must admit that to you all. I have been at my lowest last week and wanted to throw in the towel. I don’t know if it’s because I was just tired because of my health, and everything just wasn’t going my way or just cause the devil was just trying to get the bet of me. I believe it was a little of both. I’m not thinking that anymore. I know God isn’t finish with me yet, I’m here for a reason, so I need to continue to hold on and continue to fight to he calls me home to be with him. I’m so touch and feel so much love by all of your comments and prayers, it truly meant so much to me. I got to many visits from family and love one’s and calls from my best friend and TN, y’all thank you for praying for her mom her who had a stroke, she is doing so good. She has been there for me and so has her brother. They  have been keeping me laughing and if I couldn’t sleep staying up with me, and just praying for me. I couldn’t ask for two great group of lovely souls than them two. God knew what he was doing, he knew I couldn’t have that surgery for a reason on 5.21.13, I had to overcome this obstacle last week, and I can’t wait to im fully over it. I can’t wait to I can share more with you all. I need my rest and to stay on top of my studies, you all know how much I hate to be behind on my studies. God is truly good. I want to say thank you again. Thank you for joining my JOURNEY, and been part of my blogging family. I pray all is well with each and every one of you. God Bless. Sending love and hugs to each and every one of you. God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 5-8, Living With Sickle Cell Anemia

thumbnailSCDHello Everyone, This has been one long week. I don’t believe I have been this sick in a long time. I havent been in the mood to blog are do much of anything. I actually started back with my studies Wednesday and havent even tempted to do any of it. I’m hoping to do some of it. I actually made calls yesterday to let them know whats going on, with me. I don’t want to be drop from my classes. I didn’t get transfusion because it’s not in my best interest, but part of me wish I had got it. I’m so weak. My blood count is still low but still holding its low. I’m 5.8 so it’s coming up a lil. So that good 🙂 I got off the fluids yesterday, which im very happy about, I got tired of going to the bathroom so much. I still have my port hook up since I still have to get pain meds, since Im still hurting. Yesterday they actually lost someone on my floor she was 100yrs ole. She was blessed to live to see such a bless age. My nurse took it hard, and I can truly understand where she was coming from. Thank you all for the prayers and comments, and do bare with me. I havent had the chance to approve comments. Even the likes means a lot to me 🙂 Im hoping to go home today are tomorrow. It maybe tomorrow because im not feeling my  best today, and I want to be at my best when I head home. I did get a chance to talk to my lil lady and she ready for me to come home to her. And im ready to come home to her as well. I told her to be good, so I hope she does, but that easy said then done.   I have had some great group of nurses, doctor. Cant really say doctors, because I only been seen one doctor. I have to make a post about that another time, right now I feel like laying back down and getting some more rest. I pray everyone is having a Bless Friday.

Posted in AWARENESS, family, Health, Lord, My Journey, Sickle Cell Anemia

Day 1-4 Living With Sickle Cell Anemia

thumbnailSCDHello Everyone,  I have been in hospital since Friday! I know its been awhile since I posted on my illness. Thursday Night, I got slap with pain in my right leg, but was hoping it would go away on its own. But early Friday Morning, and ended up getting worse and led me to ER and later on getting put in hospital. I havent had this kind of pain since I was in my teens, and I must say my early teens, broughts tears to my eyes. I couldnt walk, I can walk better today then I could a few days ago. Thank you Lord! When I posted a poem on my birthday, Fighting 2 Leave, I cant have tranfusion, so Im praying that my blood count comes back up. They was in process of looking for my blood type, but like I told them I cant have transfusion. it would do more harm to me then good.I have had some great nurses and of course doctors as well. I have a lil nut of nurse right now. Just something abou that woman. I may have to get to know her lil more. Shes the only new nurse  I done had so far, the others I done seen once before. I got a beautiful surprise for Fathers Day. I thought I wasnt going to see my dad, and he surprise me when he walk through the door with the lil ones and my brother and mom. I call him early yesterday morning to tell him I love him and Happy Fathers Day. First time been away from my ole man on Fathers Day. I pray all the fathers had a lovely day, and all the mothers who stepping in to do both the jobs as well. God Bless 🙂

Posted in AWARENESS, family, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Happy Holidays

I came home just in time for Christmas! Christmas Eve was my release date to spend with the love ones. The babies open there gifts lastnight and I’m so thankful for all the prayers and comments as we’ll.  I would have posted more but I was doing a lot of resting and making sure not to stress.  My blood is good! 🙂 I have doctor appointment in two weeks basically check up! I’m not happy about my Sickle Cell doctor appointment which has been puss back to March! Actually had call them before I went to ER! I do another post little later! Merry Christmas and God Bless:)

Posted in My Journey, School, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Hello Everyone, I bn trying to post from my cell for awhile and bn having problems. Glad to see I can finally post from it today. I end’d up had to get a transfusion today, but I was out-patient this time around. I havent bn feeling my best, so he didn’t like that my blood count was in the 7’s, this coming from my blood doctor. I have so many doctors to keep up with. I’m on a break from my studies to Wednesday, with new classes, which of course I’m so glad about. I was so tired of the math it was kicking my butt.  I’m glad it’s not hot anymore, and thankful for the cooler weather, just not the cold weather. I do hope everyone else is doing good. I pray everyone is recovering from Sandy, and my heart goes out to you all. I hope and pray you all make it through the other storm which is a cold one coming your way. I hope to make it back to blogging soon, right now I’m taking a break to im fully 100%, I do miss blogging and reading your posts. Well I do read, I just don’t get to comment or like. I haven’t forgotten you all. I’m thankful for all the likes and prayers and comments and followers, thank you very much. Hope you enjoy my journey. God Bless Each & Everyone Of You:)

 

Forgot to really mention how the transfusion went, I only had to get unit. That all I got for now.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Will be short post, haven’t bn feeling my best for three weeks now! Trying to stay on top of my studies, and praying not to get sick. I truly hate this time of the year, not good for my body. Actually made doctor appointment today for my headaches, they have got worse making it hard to focus. I’m in crisis as of now, but blood count is holding its own. Honestly if I tend to be in pain I may have to do some hospital time. Its taking a lot out if me to do the post, so ill end it here and pray all is well! God Bless:)

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Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia (Update)

I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6.  My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES!  I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂

 

 

P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Day 3-5,Living With Sickle Cell Anemia

Hello and Welcome to my World, at this point of time. I’m still in the hospital, the last time I posted I ended up getting my transfusion Friday night. It actually took to about 5 or 6 the next morning. A long night. I was glad to hear they find my blood. I was so out of it by the time my doctor made it around to see me and talk to me before I got the transfusion, he was like I was hoping to make it over to see you before you got the meds. All I could do was laugh at him. I got some good sleep that night, believe that’s the first night I actually got some good sleep since I been in the hospital. I’m still hurting but not as much as I was hurting when I first came here. The same morning after the transfusion I was surprise to with x-rays at 7 in the morning, can you believe that?? I can’t! I was cold and still sleepy. They could’ve waited to I had some coffee in me before they got me in my bed, but they tech who came to get me was cool. I had her once before. We talked about school and whatnot. Today is Father’s day, I call me dad and told him Happy Father’s Day early this morning, he have been calling me all morning to check up on me and to see when I was coming home. As of right now I don’t know when I’m coming home. Maybe tomorrow. I havent seen the doctor yet, I’m pretty sure his spending time with his son and father today. I believe I don’t bored you all enough. Oh yea my blood count is looking oh so good right now, its 9.9. I hope and pray it stay that way. Seems my calcium is little low so I have to take pills for that and of course iron pills and I’m not feeling that if you know like I know. This morning when I woke up for them to take my bp, it wasn’t looking so good. they was low, she even double-check them to see if it would be differently. No can do. Ty for all the prayers and kind words you all bn leaving me. God Bless 🙂

Posted in AWARENESS, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

I know I mention to you all I wasn’t feeling my best Tuesday.  I woke up Wednesday morning in terrieble pain and ended up going to er later that day. My blood count drop so I’m in need of transfusion. I’m thankful to have some wonderful nurses taking care of me while bn here. Can’t say the same about my doctor, naw I’m playing his a cool guy. Wouldn’t trade him, I’m so ready for the 28 to get here so  I can see the Sickle Cell Specialist. I’m thankful for all the prayers from each and everyone of you, it truly means a lot to me. I’m still not feeling my best, but will do my best to keep you all inform on whats going on with me. Hopefully next time I have more to share with you all! God Bless 🙂