Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Day 1-3, Living With Sickle Cell Anemia

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Hey  and Welcome to my World! Im in hospital once again, idk whats going on with me! My fight is getting the best of me! So many times I thought to give up! I know God has a purpose for me! I woke up Friday with terrible chest and back pain. I couldn’t hardly talk are breathe. My main concern was I hope im not having heart attack. I did get scare with my port, and I was praying it was okay. The nurse had put the tape to tightly on my port! It was on fire, for the one’s that know im hard person to stick! They had unhook me from fluids, and thought about accessing it again. Good news, they didnt. Even better news its feeling much better 🙂 Blood Count is holding its on, which is extremely good! I don’t plan on receiving blood! The pain is getting much better , which is good since im tired of hospitals! Bless with good nurses and doctors once again. Until next time! I pray all is well with each and everyone of you all 🙂

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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Hey Welcome to my world! I’m home and doing good! I have little doubt and fear in back of my head since I wasn’t supposed get transfusion, but then again I wouldn’t be among the living! Will praying for the best! I know my God got me! My blood count was a 9, after I got blood, it drop to 7.2, before I came home it went back up 7.9! God is good 🙂 I’m still on my steroids, I maybe on them longer, since I received blood against all odds! I’m looking into new primary doctor, I made my mind up on new hospital from now on! I’m touch by all your love and prayers, comments 🙂  it has been 6 months 4 days since my hip surgery 🙂

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Day 6-7, Living With Sickle Cell Anemia

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Hello and Welcome to my World! I’m hoping to be set free tomorrow! I’m feeling much better then I was last Monday when I arrived.  I pretty much got update on everything, I wanted to know what the problem was that put me in here. I actually went two different hospitals. The first one wouldn’t admitted me because of how my count was looking the same as when I was in hospital the first time. But umm lets be honest if that was the case I wouldn’t been put in hospital later that evening. I’m at the point I may need to find new primary doctor,cause I even made call to office before I went to hospital number 2!  So with that been said, ill be getting retested in morning on my labs. Right now with the two units of blood, I’m at 9 :-), which is good in my book! I’m still little worry cause I made decision against all odds! I know God got me! I have met a lot of amazing nurses/doctors. Thank for all the prayers, comments, likes. Truly meant a lot! God Bless

Posted in 2014, AWARENESS, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

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It have been awhile since I mention my illness,to it surprise me last week and broke my spirit at same time. But I know God is all I need.It started with me getting nasty cold, which turn out be bronchitis with lil pneumonia! Im like serious on bronchitis, just went through it the month before.I couldn’t hardly move,so that was my notice to make my way to evil place! God Bless me with some good nurses and doctor while in ER!  I did have a long wait, which my poor body hated, and germs spread! You would think peep would cover mouth,but nope! As you all know, im finally home since MondAy afternoon! Lets just say,my body is in for a fight of my life again. I rather not go into detail. If I refuse to take my meds, im killing myself!But come on, all meds have bad sides of them! I almost went back to hospital Tuesday, I was in so much pain! Hurt move,talk, think, cry! God gave me strength to fight without the hospital! Im still in some pain, but not as bad as early in the week! Good weather, and I cant enjoy it:( I have update doctor appointment next week, plus to get recheck on labs and xray really? Labs understabdable, but umm u sent me home saying things look better! No smart comment at the moment! Turn out I needed antiobodies, which wasn’t mention to me before you discharge me! Thinking I need a new primary doctor! Im lil lazy to do the searching right now, but dont feed me bs and then have to eat your words later 🙂 All the prayers,comments touch my heart in so many ways. I cant have transfusions, to everything is cleared. I left hospital at 7.2! Another rough journey, im praying ill make it through once again. Makes you wonder how some people become doctors when you educationing them. I did have two big idiots as doctors.

Posted in 2014, AWARENESS, God, Health, My Journey, Sickle Cell Anemia

Day 4-6, Living With Sickle Cell Anemia

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Hello World, thank you for prayers and comments. Meant so much to me. I had rough weekend, idiot doctor who didnt know crap. Bless with many wonderful nurses, who showed me so much compassion. My count came up and then drop. I did come home, but I shouldn’t have as today im in more pain today then before. Im trying stay strong and not move around much, it makes me hurt even more. I cant have transfusions, im back on steroids!   Told my doctor I wasn’t going take them, but im doom even more if I dont. Ooo lucky me stuck with more poison to take. Idk how to deal, when my body wants best of me and im getting discouraged! I know God have last say so!  Idk how much fight I have in me. I pray all is well with each and everyone of you! God Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

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Hey and welcome to my world. I have been in pain for a few days. Im In hospital, and hoping to go home soon. I know it won’t be with good news. Its been awhile since I been In hospital, and transfusions.  Right now my test came back to hurt my heart. I have a good doctor and some good nurses, had a problem with her lastnight. I have port for a reason and I don’t like when people try and bs me, talking about they can’t draw from it. So I gave the tech one chance and she didn’t want to do it, cause she knew the nurse was lying. Blood count has drop, its in the 7s, but still good for men but would love to be in the 8s. I hope everyone is well. I do have a feeling I’m forgetting so something, but I do update when it comes to me. God Bless

Posted in AWARENESS, God, Health, My Journey, Update

Surgery Update

Hello Everyone,

So thankful for all the prayers and comments truly touch my heart! I’m home, actually came home yesterday! It wasn’t as bad as I thought, my God knew I could handle it all! I read the comments but couldn’t respond and.still can’t!  Everyone saying I’m doing good on the walking! It maybe with walker for now! But to hear nurses say how good I am when other people are struggling that been using them longer then me. I had a good team working with me. I had a little rough time! Fever after surgery, they couldn’t find out where it was coming from. My blood count held its own before and after surgery! Then well it fell and came back up and did it all over again. I had a great group of nurses on my team as well! Some I felt probably in wrong career because she just forgot a lot of stuff! Lol Talk about that another time! Time for me to crash, hope.share more soon.God Bless

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Posted in Health, My Journey, Sickle Cell Anemia, Update

What A Week…..

What a week I had! I was surposed to be having surgery the upcoming Monday, but unfortunately it got push back without my acknowledge. I actually had minor surgery Thursday! I had to have exchange to bring my blood count up so I’ve good to go pretty much! I believe 7.7 was good enough for me! A person who hasn’t had transfusion since April, but last two times I was hospitalized and got low as 5, couldn’t have transfusion no matter what do to having to many! Oh yea I was disappointed I couldn’t use my port to have the exchange! You all know how much I love and thankful to have it!  Had take a class to prepare me for the outcome on the 14! I’m hoping to get my term done this week and much needed rest. If I’m quiet you all know why! So do bare with me, and hope all is well with each and everyone of you! God Bless

Oh yea I got 5 units of blood, which brought my count 10! Hmm that special IV in my groin just bring my count upto 10! Yes, I’m feeling a little sarcastic about the matter! I did.have a good surgeon! So yeah

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Posted in Faith, God, Health, My Journey, Sickle Cell Anemia

Update ( doctor appointment)

I’m still not feeling my best, but as of right now waiting on my blood work, so we can get things moving. My doctor appointment with primary doctor went very well to extent, I was glad to get off some medicine. And also got new poison to help me as we’ll. My headaches are getting worse, so we had to do something to help the process. I have been putting off doing update post for awhile, but with my hectic school schedule and days I’m not at my best, I wanted to share what I can. I know last year was worse then this year, the last two sickle cell episode took me back when I was younger and wouldn’t go to hospital. I haven’t had pain like that in long time, bring tears to my eyes, and no matter what they medicate me with me it wouldn’t work. I know I shared a post awhile back, I’m not been able to get transfuse, cause of warm antibiotics. I pray if it got lower then 5, they would transfuse even if it didn’t do much. Yes, I really had no reason to share post last time i was hospitalize since I know its a give or take, but I know God got me even when the doctors wanting to give me blood and I kept denied it. My blood count came up fast this time in the 8″s. I’m praying when I see my blood doctor next week it still be decent enough. I’m not going give up, I do get discourage at times, but im Bless with so many loving souls. God truly knew what he was doing when he created me , and when he place me here on WordPress to share my story. Thank you all for joining me and praying. I hope to have more share next week. God Bless 😉

No matter what you going through, never give up! Continue to fight and hold on to God hands!

Posted in Health, My Journey, Sickle Cell Anemia, Update

Day 4-5 Living With Sickle Cell Anemia

thumbnailSCDHey and Welcome to my World, I’m still in hospital and hopefully I get to come home tomorrow. I should know something in due time. I still can’t have transfusions, but it seem the meds they have me on is finally working and that makes me happy! I have been on some new meds since May, and ready to get off it. I’m actually on a lot of new meds, but this meds I really ready to get off because it’s interfering with some of my other meds, that I need on everything basic. Sighs. It feels good to finally get some sleep, I believe I’m still tired, but I’m actually on my last week of studies, and I need to try to catch up before the week is over with. So much to do in so little time. I have had some great nurses, had one rude nurse name Mary. Makes me wonder how she got a job to be Nurse Assistant, if all she does is complain, I would hate for her to be nurse, and she says she going back to school for it. Well, I hope peeps run the other way and don’t look back, I’m just saying. My bestie mom finally came home from the hospital the other day, and she is doing much better, but got heartbroken phone call, that she is not her self, she lost some of her memory. I spoke with her a few days ago, she knows who I am. It breaks my heart when strong woman a God is struggling the way she is. It’s truly breaking her daughter heart, because she want to take care of her mom and not rehab place. Doctor just told me not to long ago that my retic count has come up, I’m hoping to hear my blood count has come up as well. I’m praying for some good news. Looks like my head is everywhere with this post, please do forgive me. I have a lot going on with me at this time. Thank you all for the prayers, truly means a lot to me. I pray all is well with each and every one of you. God Bless 🙂