Posted in 2019, AWARENESS, chronic illness, Health, Heart, Mini Update, My Journey, My Life, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

Hello, and Welcome back to my world. What a day I had. What I hate about doctor offices is to wait. I did mention had an appointment both days. Let’s just say Monday was a waste of time and gas. They went prepared for my arrival and didn’t want to see me because they didn’t have paperwork from the hospital, which I didn’t understand. You knew about for over two weeks. Always away from that. I arrive on time for both appointments. They did apologize but still, I was not happy. You are my primary doctor so it wouldn’t kill you to finally see me in person. Nope, I see my other doctors more then I see primary. Haven’t even met her yet. Yea something wrong with that pic big time. My sickle cell doctor was the most important for me to see. I had called in the week before explaining to them what had happened when I was in the hospital. I wanted blood work and wanted my results. She set everything up for me. Soon as the appointment was over went next door to the hospital to get labs drawn from my port. So back to my appointment, hadn’t been seen since Feb. She was like you good. I know I haven’t mentioned here before. I have changed my diet. I went keto and it has helped me a lot. Kept me out of the hospital. Lost over 60lbs. When on chemo meds for my sickle cell I had gained weight and couldn’t lose it. Then the new meds for sickle cell. It was making my head and back hurt. And I couldn’t deal so I stopped it. I had to first help myself and I have done just that. I honestly did my research for about 4/5 months before I went for it. I don’t have a gallbladder. Anywho back to my appointment.she check my heart and says sounds good. She asks me about meds she wanted me to start last time for my kidney. Told her I hadn’t started it yet. Since my body is doing overtime then a person without sickle cell. So she changes the mg since I’m smaller and started it last night. Never happy about trying a new medicine. So next visit we will see how everything looking. I’m putting it in God’s hand that everything is good and I won’t have to take it forever. I was glad I didn’t have a long wait for a tech come do my port. She was a nice woman and we talk while she did it. I always like to get to know whoever is dealing with me. I hate for my port get infected. I finally got my result around 5 and no new antibodies praise God. White counts were good. Retic little high but it’s be expected since my counts 7.6. It’s the best but it for sure not the worse. Praise God. Also, find out my bones in my back are deteriorating. It explains a lot when I’m going into crisis. Just a few days ago, I couldn’t move because I was hurting so bad. I read other sickle cell patients having the same problem. But so wasn’t expecting I had it. With so many people dying from my illness. I want to share my illness with y’all. Until next time pray everyone doing good. Stay Bless

Posted in 2014, AWARENESS, Health, My Journey, Sickle Cell Anemia, Sickle Cell Awareness, Update

Living With Sickle Cell Anemia

image

Hey and welcome to my world, I have had a rough weekend. I don’t even know where to start. I’m so ready to throw in towel, seem some doctors don’t take us meaning people with sickle cell serious. Everything seem come back fine with my sc. Soon as I got home guess who couldn’t walk, hurt breathe. When I move I cried, yep if you said me you so darn smart. God Bless You! I even tried go back to er, let me tell you I didn’t want go. I just wanted to well we ain’t going go there.  By end of night I was worse then night before. Went to another hospital,  the first test they did was flu test,  since fever was 101.3. Came back positive for h1n1. I was shock as he’ll to be honest. Nope don’t get shot, haven’t had it since I was teen got shot n was bless with flu. When I’m out,  I carry Sanitizer n other stuff to help not catch nasty germs. That hospital said they didn’t keep flu patients, I was throwed by that. I had be tough n get shots,  so wasn’t please.  I was bless with port for a reason. I been in bed all weekend,  at doctor office. I start classes again, last year. When will it end, must say not happy See my doctor since didn’t catch it. Sighs. I hope to come back with another update soon, pain taking over,  hope I made sense. I pray you all is well n Ty for joining my journey. God Bless

Today mark my surgery anniversary. GOD IS TRULY GOOD. 😄

Posted in My Journey, Physical Therapy, Update

Surgery Update Pt.3

Hey Everyone, I’m a few days late with the post, been trying finish term out. Sad that I have retake one of my classes, and I’m glad I have to do it. Because that class was so over my head.lol my doctor appointment went good. No damage was done from a few weeks ago, which I’m happy about 🙂 I did get approve for more physical therapy. It has been two months since my surgery, that was actually on Saturday on my dad birthday. Tuesday I was a little worry because I woke up with my hip hurting me, it was because of the weather. It was the first time since the surgery since I had pain like that. Im just glad everything is going good with my healing process,still having problems sleeping at night. I don’t go back to him to August, which is good in my book. Thank you all for all the prayers thru my hard times and good times.

Posted in God, Health, My Journey, Physical Therapy, Sickle Cell Anemia, Update

Surgery Update Pt.2

Today l had my first doctor appointment since my surgery. It went good and was so glad to get the staples out and didn’t hurt.I was worry for nothing. Had a lot of people telling me everything would be okay. I need physical therapy for awhile. Can’t wait to see how everything goes when I return in six weeks. I’m praying for a smooth rest of the year with my health! The X-ray came out good, and showed everything going smoothly 🙂 God is Good!

Posted from WordPress for Android

Posted in My Journey, Physical Therapy, Update

Physical Therapy

Today I had my first appointment at the rehab place. I must say she work me today, I didn’t feel it, to I got home and tried to get comfortable. I did the basic physical therapy while in hospital, but hell the work I did today has nothing on it. I’m hoping by next week, I’ll be back to posting my regular post especially updating ya’ll on the healing process. I believe that’s all I have to share with y’all for now. Like thank each and everyone of y’all for the prayers, comments, and likes. Truly means a lot to me. Do bare with me on approving and commenting. I do read them all. I pray all is well with each and everyone of you all. God Bless