Havent bn feeling my best, but haven’t forgot about you all. Just spending time with the family. I still have update on how the doctor visit went with the speacialist so hoping to have it up tomorrow. I do hope everyone is having a lovely weekend. God Bless Each & Everyone Of You 🙂
Category: Update
Living With Sickle Cell Anemia (Update)
I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6. My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES! I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂
P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂
Living With Sickle Cell Anemia
The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know! My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.
I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!
Doctor Appoitnment (Update)
Good Morning,
I know I was supposed to do this a few days ago, I have been busy trying to get the last-minute studying in, and have to be honest I had my head in a good novel, that I couldn’t put down! 🙂 So I’m a book-worm, feels good to be able to read some more like I use 2. It actually went well, it was basically a check up since I got out the hospital. I really havent been feeling my best, so that was another reason to go as well. My blood count is still in the 7’s, I must admit it’s not the best but I’m so thankful it’s not a 6. I probably would be back in the hospital, which I must say it feels like my home away from home lately. Thats sad to say, I know. But if you new on my JOURNEY, YOu don’t know I have been in the hospital every month since September, I believe I have had a transfusion, ever since then as well. I have to say trying not to worry since I haven’t been feeling my best. I have to put it all on GOD hand. Oh yea I do have new primary doctor, I know I mention that back awhile. If you wondering if my old doctor gave the okay and sent my referral heck no, he even call me while I was in the hospital to ask if it was true that I wanted to change primary doctor. I said yes. It was actually his wife and she had the nerves to have attitude. Even the doctor I have now, even call him to get it and still nothing, or you surprise? You know it took a long time to get him to fax the information over to see the sickle-cell specialist. But last month I took the time to call my insurance to change the doctor, so it kicks in next month.
Day 8, Living With Sickle Cell Anemia
I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything. I don’t want to make this post long. I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love. You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂
GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY
I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!
Day 4-7, Living With Sickle Cell Disease
I do hope everyone had a good weekend and Easter. JESUS IS THE REASON. I’m still in the hospital, I haven’t got the okay to go home, so hoping to get it in the morning. Thank You all for the prayers and kind words of encouragement. The last time I posted about the hospital I receive 1 unit of blood, it was touch and go for a while because my count didnt wont to go up. I was so happy to hear it went up, but still low. I’m hoping it be 8 by the morning. I guess when they come around in the morning and wake me out my sleep I shall find out. Everything still not top-notch, but I’m alive and that all that matter. I was really shock that I got sick so soon and had to get transfusion when I just got one a few weeks ago. I was at the point of throwing in the towel, because I was just tired of hearing my blood count was low and like it wasn’t going to go anywhere. I must say I actually enjoying all the rest I’m getting, gave me time to catch up on homework when I had the strength to go there. 🙂 I have had some good nurses while I’m here so that always a plus. Have met some new one’s as well, and met some ole one’s I met long time ago. I’m not in much pain as I was when I came in, just a little every now and then. I hope I didn’t leave anything out. I must say Im so thankful to have my port, because I know I wouldnt be able to handle getting poke and stuck when it came to getting blood work done! God Bless Each & Everyone Of You 🙂
Living With Sickle Cell Anemia(Update)
I don’t plan on making this long post, since I’m still not feeling my best. I know while I was in hospital I left off at Day 4. Lets just say things weren’t looking good for a while, but I was BLESS with a good doctor while I was int here. I know I had left off with telling you all I had bronchitis, but he was worry about me getting acute chest syndrome, which I got back in 06 and lets just say it wasn’t looking good for me back then. It’s safe to say I didn’t get it. 🙂 My blood count went up to to 10 but it actually was 9.6 since for some odd reason I was dehydrated so it gave a false reading the first time. I can honestly say it still is 9.5. I actually got 2 units of blood my hospital stay.
Oh yea, they actually did fax my paperwork over to sickle-cell clinic finally but only prove me for 3 visits. Hmm, what can they find out in only 3 visits? So I’m just waiting for call from the sickle-cell clinic so we can get that rolling. Wow, took long enough right? I actually have change my primary doctor since I been home as well. I need one that can actually come see me when I’m actually in the hospital. Once again I’m so thankful, touch, for the prayers you all been sending my way. Your kind comments kept my spirits uplifted. I Pray All Is Well! God Bless 🙂
Quiet
Today hasn’t been good day! I’m avoiding going to E.R, because I’m tired of them thinking nothing wrong because my blood work looks good! Feels like a few years ago back in 06. I almost died because they wouldn’t keep me! So if I’m quiet and you don’t hear much from me that’s why! I do hope everyone is having a good weekend! It done got cold once again which I’m not happy about! Sighs! Thank you all for the prayers and kind words truly means a lot! I’m praying I start feeling better soon! God Bless & Good Night 🙂
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My Story
Has taking me places I never thought it would be going.
Only honesty can get me out of this right now
So to my kind followers
Lately I have been losing
courage to share my JOURNEY
with you all.
It seem like I’m ready to throw
in the towel and ready to give up
All I want to do is cry,scream,yell
and hide under the covers in
the dark!
This is My story
2/22/12
PoeticJourney
I was going to put it in a poem, but I decided to just make it in a post to put all my thoughts in it! I hope you all brought your cup o joe and something to snack on as I share a little or should I say a lot with you. As of lately I have been in pain every single day since las Thursday! I enjoyed the few days of no pain. Seems my blood count is looking good so they wont keep me. Sighs! I done read stories of other sickle-cell patients that in pain every day of they lives, but honestly that have never been me. My heart always went out to them, and broke. Yesterday I had one of my weak moments and just broke down and cried out and just wanted to be out of my misery. I know GOD got a purpose for me, I know he’ll take me out this WORLD when his ready! I’m just glad my blood count is looking good, but not happy about the pain I’m having and wish and praying that it will all go away. My doctor appointment didn’t go well if you all is wondering. His worry and I’m worry, his really want to get me into seen a sickle-cell doctor ASAP! So we can see what’s really going on with me. I feel like his giving up, and I know I wanted to give up. I just don’t want to since no one giving up on me or I get that vibe of them doing that. But I do understand if he can’t do anything for me I should see a doctor that can see whats really going on with me. I have good and bad moments. I have to tell you, I’m actually taking my time with this post. My classes have started again today, I thought I had another week but I do need something to take my mind off my pain. I even started playing Farmville on Facebook again, to pass time. I should read one of my novels I recently bought. I have done a lot of catching up on different blogs. Okay back to the point of my blog. I don’t want you all thinking I want pity, because that not what I’m about. I never imagine MY JOURNEY would be rollercoaster, but GOD knew, so I’m going along with it! Some days I might not have much to share and some days I might have a lot to share. I actually have a class I have to retake because of being so sick last semester. Sucks, but for some odd reason I rather take it over then just make up the stuff I haven’t done. After this semester I’ll be off to the FALL. Hopefully I have my illness in check and you all wont hear about me been in the hospital so much. I seem to be everywhere in this post once again. Lastnight I got so upset with the nurse, but she explain herself to me afterwards. I just want people to understand I HATE HOSPITAL/DOCTOR OFFICE/. I had a few good nurses last night, that took real good care of me. The nurse explain to me that I have so much going for me and she wants to know whats going on with me because she is use to take care of sickle-cell patients and she know I never use to come in as much as I have been coming in. I don’t blame her for thinking like that, but its a way to show someone you care so they can see where you coming from. I hope that made sense. Now I see what many sickle-cell patients go through when people think that addicted because they come to the hospital so often, hell if that was the case I would just go drop off all my prescription I have in my room and get them fill. I’m allerged to pretty much everything, so only can take one thing. Hmmm, and they keep giving me darn prescription for stuff I don’t like. Yes, I’m serious. Anyways away from that nonsense. I’m so thankful for the encouragement and prayers, truly mean so much to me. You all just don’t know how much it keeps me going at times. 🙂 I know I’m not alone on this JOURNEY! I will not give up the fight, I’m trying to be more of ADVOCATE, something I truly always wanted to be. I know I keep tell myself I’ll do post explain what my illness is, do bare with me. I haven’t forgotten.
I haven’t lost my FAITH, not letting the devil get the best of me either. I know we all go through different things in life. I see my illness has been one of them as of right now. No limits to what GOD can do for me and any of us! God Bless 🙂
Living With Sickle Cell Anemia
Hello and Welcome to my place, if you new to my JOURNEY, you may not know I just recently got out of the hospital for been in there for about a week! sighs! If you been on my JOURNEY, you all know the routine and thank you all for staying with me for the long ride. I never imagine it would be so bumpy. I have never seen the inside of hospital as much as I have this year. I suppose it’s the first time for everything. Well not just this year, since the year just came in. lol. I have never seen the inside of hospital every month. Usually just once or twice and sometimes none. I truly miss the times I didn’t see inside the hospital. I’m glad I finally got my port, on my last stay, so I don’t have to worry about getting stuck so much when I do have to visit doctor office as well as the hospital. I’m hard person to stick. Every since I been out the hospital I haven’t been feeling my best. I have been in pain ever since. I find out yesterday I’m actually in the process of having a crisis, but were trying to do everything to prevent it before it get out of hand. I’m happy to let you all know, my blood count is looking good. YAY! I hope it still looks good,when it comes to check up or if I have to return to hospital because for some odd reason I can’t get my pain under control. I must admit did have nice looking doctor yesterday with the prettiest darkest blue eye’s. I’m a sucker for them. Okay you getting to know me a little bit more 🙂 On side note, my little lady has been sick as well with ear infection, she is starting to feel a little bit better. THANK GOD! If it was anything besides ear ache, I couldn’t be around her. She been saying, but I love you. 🙂 Okay back to the point of my post. I haven’t been feeling my best, right now I’m still not feeling the best that I should be feeling. I’m actually in the process of watching a movie with my little lady. I just hope my blood count stay the same, since it was looking good, but long as I’m hurting that means it got plenty time to betray me. 😦 I’m praying it stay up and going strong. I’m so thankful for the one’s who or still praying for me and holding me in their thoughts. It means a lot to me! I must admit, the day I came home from hospital I did tell the doctor I wanted to come home even if I was in pain, but to be honest, I had started to feel better. The weather has been a little crazy here.
Poets Afterthought 