Posted in AWARENESS, Health, My Journey, School, Sickle Cell Anemia

Living With Sickle Cell Anemia…

thumbnailSCDI’m so thankful for all the prayers and comments and even the likes, truly touch my heart. I had been sick for over a month,and trying to stay strong while in school, but got to the point I just couldn’t take it anymore. Ended up at the E.R Monday afternoon,let me tell you, that was the longest time I ever had to wait to be seen. If I was in the mood to  write a story on E.R, that would be one of them, with so many lovely and not so lovely stories to share with you all around the world. Lets just say, I didn’t get seen to about 7:30 that night, yep you read correctly and yes I type correctly. I was not a happy person, let me tell you. I got admitted but didn’t get put on the floor to the next morning. I was blessed with kind doctor and lovely nurses, and some cute male nurses if I do say so myself 🙂 I had transfusion, only one unit, which I’m thankful for. My doctor is smart now, he starts ahead of time to look for my blood. Whew, because you know I be still in their waiting, so im home, with the love one’s. I really wasn’t in the mood to post from hospital. I basically just got some rest, because I havent been sleeping since I havent been feeling good. I was my first hospital stay since the new year, so that’s truly a Blessings. If you was with me last year, you know how much that means to me and where I’m coming from. Right now, I’m doing some catch up with my studies, so hopefully soon as I’m caught up or when the term is over I can give blogging some more of my attention. I have read all the comments, just haven’t had time to approve them. I can honestly say my hemoglobin was good before I got put in but my retic count wasn’t because I was in so much pain, it end up dropping and he though I would need 2 units of blood. I know I’m everywhere with this post, sorry about that. I try to do another one real soon to keep you all updated. I do have doctor appointed in a few days, to see how everything going on. I pray all is well with each and every one of you. God Bless 🙂

Posted in AWARENESS, family, God, Health, My Journey, Prayers, Sickle Cell Anemia, Update

Happy Holidays

I came home just in time for Christmas! Christmas Eve was my release date to spend with the love ones. The babies open there gifts lastnight and I’m so thankful for all the prayers and comments as we’ll.  I would have posted more but I was doing a lot of resting and making sure not to stress.  My blood is good! 🙂 I have doctor appointment in two weeks basically check up! I’m not happy about my Sickle Cell doctor appointment which has been puss back to March! Actually had call them before I went to ER! I do another post little later! Merry Christmas and God Bless:)

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Will be short post, haven’t bn feeling my best for three weeks now! Trying to stay on top of my studies, and praying not to get sick. I truly hate this time of the year, not good for my body. Actually made doctor appointment today for my headaches, they have got worse making it hard to focus. I’m in crisis as of now, but blood count is holding its own. Honestly if I tend to be in pain I may have to do some hospital time. Its taking a lot out if me to do the post, so ill end it here and pray all is well! God Bless:)

Posted from WordPress for Android

Posted in Cancer, God, Health

FIGHTER

Strong Woman

Standing Strong

hit with cancer

didn’t let it get the

best of her

Staying strong for

her husband, kids, grand-kids.

I love how GOD works.

What a strong woman standing

strong.

7/25/12

~PJ~

MyFreeCopyright.com Registered & Protected

The poem is dedicated to my cousin and her family. Her mother was diagnosed with cancer some months ago when I was going through some rough time with my illness. Now she is going through chemo. So I decided to dedicate this poem to my cousin and her family.

Posted in AWARENESS, Health, Sickle Cell Anemia

Living With Sickle Cell Anemia

Its been awhile since I have blog about my illness, I have actually being doing good since  last week, I was in pain and was trying to handle it so I could take my finals, but ended up going to the E.R Monday. Something told me I wasn’t going to be able to hold out that long, but I was planning on trying and almost made it. The trip to the E.R went good, everything came back good, so I didn’t have to get put in the hospital and that’s always good news to hear 🙂  I actually had made doctor appointment for thursday and had to cancel that appointment since my finals got reschedule for that date.  I ended up seen my doctor the next day and of course put on more meds, I must say I’m starting to hate taking pills. Pills to prevent me from getting sick, pills to help with the pain, so I don’t have to go in the hospital or doctor. I must say I have being to E.R since June so thats good, haven’t being put in the hospital since June as well. I’m praying this good year for me. I need a good year, when it comes to school and my health. I know a lot of you all have been with me through all this, so you all understand where I’m coming from. I have a few days off, I start my new classes next week, and I must say I think I’m ready!  This month is SICKLE CELL AWARENESS MONTH. I actually had good experience this time around, I wonder did I have a good experience with the nurses and doctors, because I haven’t being in for a while. It does makes me wonder. One of the nurses I’m use to was letting me know she’ll be leaving the hospital and taking on another career, something she be doing for over 20 years. She is pretty much the main nurses that know how to access my port, because some nurses just don’t know what they doing. All the good one’s have to leave. WHY? If you know someone, or you yourself have trait or the disease, go out and support the cause. ITS TIME TO GET MORE AWARENESS FOR SICKLE CELL DISEASE.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appointment (update)

I had doctor appointment on Wednesday since I got since I got some lab work done!  I must say that I’m thankful for the prayers because I receive some good news back! Only one thing was low,but so what long as it wasn’t a 21, that’s when they and I have to worry! I believe I do the most worrying! I actually did some Tuesday when the nurse took to long! Makes you wonder what I have port for if they move slow as tropical Issac that’s coming my way may be! I provably should had said coming to U. S right? I can’t tell you what’s more stressful doctor visits or math problems?  I hate math as much as the doctor office!  Lol! Oh yea back to the nurse taking her time, you would think hospitals have ton of them that know how to access port right?  NO! WELL enough on my update, be on the lookout in a few weeks! I so wish I had twin to step in my place, I hate needles, any takers? Just playing I’m just thankful for who all go out and give blood for me and so many others in need! God Bless & Goodnight!

Posted from WordPress for Android

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia (Update)

I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6.  My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES!  I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂

 

 

P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know!  My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.

 

I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!

Posted in God, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appoitnment (Update)

Good Morning,

 

 

I know I was supposed to do this a few days ago, I have been busy trying to get the last-minute studying in, and have to be honest I had my head in a good novel, that I couldn’t put down! 🙂 So I’m a book-worm, feels good to be able to read some more like I use 2. It actually went well, it was basically a check up since I got out the hospital. I really havent been feeling my best, so that was another reason to go as well. My blood count is still in the 7’s, I must admit it’s not the best but I’m so thankful it’s not a 6. I probably would be back in the hospital, which I must say it feels like my home away from home lately. Thats sad to say, I know. But if you new on my JOURNEY, YOu don’t know I have been in the hospital every month since September, I believe I have had a transfusion, ever since then as well. I have to say trying not to worry since I haven’t been feeling my best. I have to put it all on GOD hand.  Oh yea I do have new primary doctor, I know I mention that back awhile. If you wondering if my old doctor gave the okay and sent my referral heck no, he even call me while I was in the hospital to ask if it was true that I wanted to change primary doctor. I said yes.  It was actually his wife and she had the nerves to have attitude. Even the doctor I have now, even call him to get it and still nothing, or you surprise? You know it took a long time to get him to fax the information over to see the sickle-cell specialist. But last month I took the time to call my insurance to change the doctor, so it kicks in next month.

Posted in AWARENESS, God, Health, Love, My Journey, Sickle Cell Anemia, Update

Day 8, Living With Sickle Cell Anemia

I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything.  I don’t want to make this post long.  I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love.  You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂

 

GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY

 

I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!