Category: AWARENESS

Posted in AWARENESS, Death, prayer, Sickle Cell Anemia

Day 2, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello Everyone,

 

I actually got my transfusion late lastnight, I was surprise my blood pop up that fast to be honest. My doctor and nurses was surprise as well.  I haven’t heard from my doctor today, waiting to hear from him, so I can know when I get to go home. They move me to the second floor, and I’m so not happy about it. 😦 I like been on the bottom floor to be honest. The nurses don’t take as long to get to you. I had to get some x-rays done, was suppose to get them done lastnight before I got my transfusion, but lets just say I fell asleep twice and they was no show. So we move on to the blood and got it started. I have to get meds before I can get blood. I had some great nurses lastnight and this morning, and now I have new nurses and I don’t know how I feel about it all since Im not on the floor I have come use to. I have a feeling I be home before Christmas. I’m still in some pain, I hope to be feeling no pain, real soon. I hope to enjoy my little break from school while on it recovering. Thanks for all the prayers and comments, truly means a lot to me. I don’t know whats going on with my phone, I been trying to post from my phone and can’t do it. I actually receive some more heartbreaking news while in the hospital. My family have lost anther love one, its sad to hear someone lose another child, but I know they in a better place. Please do keep them in your prayers over the holidays. God Bless 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Day 1, Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello Everyone,

 

I’m in the hospital, I have been here since yesterday afternoon. I started feeling bad Tuesday. I felt my legs going out on me while I was out grocery shopping, but I just shook it off. SO yesterday, I started feeling bad and decided to come to E.R. Honestly  I didn’t think I would get put in the hospital, I was trying to hold out to January  to be honest. I’m in need of transfusion, I have to get 2 units as of right now. I never been in hospital over Christmas Holidays, so if I’m still here, this be the first time. I done had some great nurse, who I done had before. Well really don’t have much to say as of right now, hope to have more to say in next post. I hope everyone have a good Christmas, and Happy Holidays! God Bless 🙂

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

Will be short post, haven’t bn feeling my best for three weeks now! Trying to stay on top of my studies, and praying not to get sick. I truly hate this time of the year, not good for my body. Actually made doctor appointment today for my headaches, they have got worse making it hard to focus. I’m in crisis as of now, but blood count is holding its own. Honestly if I tend to be in pain I may have to do some hospital time. Its taking a lot out if me to do the post, so ill end it here and pray all is well! God Bless:)

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Posted in AWARENESS, Health, Sickle Cell Anemia

Living With Sickle Cell Anemia

Posted on by poeticjourney

Its been awhile since I have blog about my illness, I have actually being doing good since  last week, I was in pain and was trying to handle it so I could take my finals, but ended up going to the E.R Monday. Something told me I wasn’t going to be able to hold out that long, but I was planning on trying and almost made it. The trip to the E.R went good, everything came back good, so I didn’t have to get put in the hospital and that’s always good news to hear 🙂  I actually had made doctor appointment for thursday and had to cancel that appointment since my finals got reschedule for that date.  I ended up seen my doctor the next day and of course put on more meds, I must say I’m starting to hate taking pills. Pills to prevent me from getting sick, pills to help with the pain, so I don’t have to go in the hospital or doctor. I must say I have being to E.R since June so thats good, haven’t being put in the hospital since June as well. I’m praying this good year for me. I need a good year, when it comes to school and my health. I know a lot of you all have been with me through all this, so you all understand where I’m coming from. I have a few days off, I start my new classes next week, and I must say I think I’m ready!  This month is SICKLE CELL AWARENESS MONTH. I actually had good experience this time around, I wonder did I have a good experience with the nurses and doctors, because I haven’t being in for a while. It does makes me wonder. One of the nurses I’m use to was letting me know she’ll be leaving the hospital and taking on another career, something she be doing for over 20 years. She is pretty much the main nurses that know how to access my port, because some nurses just don’t know what they doing. All the good one’s have to leave. WHY? If you know someone, or you yourself have trait or the disease, go out and support the cause. ITS TIME TO GET MORE AWARENESS FOR SICKLE CELL DISEASE.

Posted in AWARENESS, Health, My Journey, Sickle Cell Anemia, Update

Doctor Appointment (update)

Posted on by poeticjourney

I had doctor appointment on Wednesday since I got since I got some lab work done!  I must say that I’m thankful for the prayers because I receive some good news back! Only one thing was low,but so what long as it wasn’t a 21, that’s when they and I have to worry! I believe I do the most worrying! I actually did some Tuesday when the nurse took to long! Makes you wonder what I have port for if they move slow as tropical Issac that’s coming my way may be! I provably should had said coming to U. S right? I can’t tell you what’s more stressful doctor visits or math problems?  I hate math as much as the doctor office!  Lol! Oh yea back to the nurse taking her time, you would think hospitals have ton of them that know how to access port right?  NO! WELL enough on my update, be on the lookout in a few weeks! I so wish I had twin to step in my place, I hate needles, any takers? Just playing I’m just thankful for who all go out and give blood for me and so many others in need! God Bless & Goodnight!

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Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia (Update)

Posted on by poeticjourney

I have been home since Monday, and getting much rest 🙂 Usually I would’ve been shared a post with you all soon as I made it home, but still haven’t bn feeling 100 percent yet! June hasn’t been good month for me, I have had doctor appointments and a few E.R visits but kept getting the okay from E.R because my blood count looked okay but my retic count kept going up. If you have posted in one of my Word of the Wise , you have seen the conversation I had with Kim 🙂 My thing was, I knew something was wrong, even if the blood count looked normal to them. We all know when something is wrong with our body! I know I shared with you all I wasn’t feeling my best and I had spent the day with my mom. Turnt out later that night I ended up getting worse and well you all know where I ended up. I tried to make a doctor appointment, but the receptions didn’t know when he was coming in and I didn’t feel like waiting all day, turns out she didn’t know what she was talking about. I don’t like when people don’t know what they talking about. So I ended up waiting it out all day to around 3 before I made it to the E.R! Lets just say grr to my whole experience, I didn’t really get things moving to around 9 that night! Sad, I know! I was in the back around 4 and blood was already taking and all that good stuff, hadn’t seen the doctor or anything. Lets just say like I mention many times before nurses on the floor is way better than the nurses who work in the E.R. Well that’s just my thought on the matter. Once I was on the floor I saw a lot of familiar faces and met a lot of new faces. I know I don’t post much when I’m in the hospital now a days, some days I just don’t have the strength to share with you all anymore. I don’t want to bore you all. Some days to be honest I just don’t feel like posting how my day is going when I’m stuck in hospital room. So I’m trying to get everything all out that I didn’t get to share with you all while I was in the hospital. I was supposed to have blood work done last month on my birthday but took to long because they couldn’t get a nurse to draw it from my port, so came back a few days later and they act like they didn’t understand what the heck I was trying to say to them. I’m still BLESS that MAY was good month for me 🙂 God Is Truly Good! I must admit I had a problem with the doctor that step in for my blood doctor who came to see me, he was like I see your primary doctor order blood for transfusion, you not going to need it. I look at this man like I was crazy, thinking to myself it takes no time for my blood count to drop before I need it, and I rather have the blood before it drops then for them to look for it and it get lower than 6.  My blood doctor is only down my way on Wednesday, so I was stuck with someone who thought he knew what I needed. Hmmmm……….If you all wonder I have 3 doctors, that mean i have to go all over town when it comes to doctor appointments! lol! YIKES!  I have my sickle-cell specialist doctor appointment coming up this week! I hate going to doctors and hospitals and needles. Well I don’t hate needles anymore since I have port. but the doctors and hospitals I hate. I know thursday I’ll be sharing another post with you all and letting you all know how it went. I do pray you all having a good weekend! God Bless 🙂

 

 

P.S I’m so thankful for all your prayers and kind comments and even likes when I’m in the hospital, it truly means a lot to me 🙂

Posted in AWARENESS, My Journey, Sickle Cell Anemia

Day 3-5,Living With Sickle Cell Anemia

Posted on by poeticjourney

Hello and Welcome to my World, at this point of time. I’m still in the hospital, the last time I posted I ended up getting my transfusion Friday night. It actually took to about 5 or 6 the next morning. A long night. I was glad to hear they find my blood. I was so out of it by the time my doctor made it around to see me and talk to me before I got the transfusion, he was like I was hoping to make it over to see you before you got the meds. All I could do was laugh at him. I got some good sleep that night, believe that’s the first night I actually got some good sleep since I been in the hospital. I’m still hurting but not as much as I was hurting when I first came here. The same morning after the transfusion I was surprise to with x-rays at 7 in the morning, can you believe that?? I can’t! I was cold and still sleepy. They could’ve waited to I had some coffee in me before they got me in my bed, but they tech who came to get me was cool. I had her once before. We talked about school and whatnot. Today is Father’s day, I call me dad and told him Happy Father’s Day early this morning, he have been calling me all morning to check up on me and to see when I was coming home. As of right now I don’t know when I’m coming home. Maybe tomorrow. I havent seen the doctor yet, I’m pretty sure his spending time with his son and father today. I believe I don’t bored you all enough. Oh yea my blood count is looking oh so good right now, its 9.9. I hope and pray it stay that way. Seems my calcium is little low so I have to take pills for that and of course iron pills and I’m not feeling that if you know like I know. This morning when I woke up for them to take my bp, it wasn’t looking so good. they was low, she even double-check them to see if it would be differently. No can do. Ty for all the prayers and kind words you all bn leaving me. God Bless 🙂

Posted in AWARENESS, Sickle Cell Anemia

Day 1-3, Living With Sickle Cell Anemia

Posted on by poeticjourney

I know I mention to you all I wasn’t feeling my best Tuesday.  I woke up Wednesday morning in terrieble pain and ended up going to er later that day. My blood count drop so I’m in need of transfusion. I’m thankful to have some wonderful nurses taking care of me while bn here. Can’t say the same about my doctor, naw I’m playing his a cool guy. Wouldn’t trade him, I’m so ready for the 28 to get here so  I can see the Sickle Cell Specialist. I’m thankful for all the prayers from each and everyone of you, it truly means a lot to me. I’m still not feeling my best, but will do my best to keep you all inform on whats going on with me. Hopefully next time I have more to share with you all! God Bless 🙂

 

 

Posted in AWARENESS, Health, Sickle Cell Anemia, Update

Living With Sickle Cell Anemia

Posted on by poeticjourney

The month almost over and I must admit I’m excited. If you have been on my JOURNEY since the year came in! I have been in hospital every month since September! God has heard my prayer for the month of MAY to be good for me! 🙂 I haven’t been feeling my best, but hey I’m not in hospital bed hook up to machine. I actually had doctor appointment today, it went good. I have to go out and get some blood work done, so I can see how good it really went 🙂 I was supposed to get some lab done on my birthday, but it seem they thought they was finna stick me instead of using my port! I don’t think so. Last time I got stuck to get blood lets just say I didn’t enjoy the pain of getting stuck! The nurse had the nerve to move the needle around in me, because well the blood had mind of its own! lol! Back to monday they nurse never came and it started raining hail and whatnot. I was like I’ll come back because I wanted to get home. Once I get my labs back, I’ll let you all know how it went. I know I have been quiet a little this month, havent been feeling my best but just praying that it didn’t send me to evil place (hospital). I had a few visit before the month came in, lets just say my patience with ignorant doctors, have run dry. Seem the ER keep getting more ignorant one’s than intelligent one’s. I don’t know!  My blood count has been holding its on like around 7.5 or 7.6. I would love for anything higher if you know like I know, but always please it’s not 6.

 

I have some good news, I finally start seen the Sickle Cell specialist next month. I will keep you all updated about how it goes. I’m so thankful for all the prayers you all have rolling in for me, it truly means a lot to me. Go truly Bless me with some good friends! I do hope all is well with each and every one of you!

Posted in AWARENESS, God, Health, Love, My Journey, Sickle Cell Anemia, Update

Day 8, Living With Sickle Cell Anemia

Posted on by poeticjourney

I believe I start this post with some good news before I start it with negative news for my dear followers. I got the good news to come home today. I find out just how sick I truly was. I knew I was sick when I find out about my blood count was 6.9 then drop to 6 the same night. I find out had fluid in my lungs and that I had touch of pneumonia. I’m still not happy about my blood count, not as high as I would like it to be, but I’m praying it be just fine before my check ups in a few weeks. I think its in a few weeks. So much on my mind. Everythingelse look good, so it was good for me to go home. Blood count was going up, it was 7.8, and I was praying and hoping it would be 8. something, but it ended up dropping to 7.6. My doctor had the weekend off, but find out Monday that he was looking over my chart and x-ray from home. Now that a man that’s dedicated to his job and patients. I wasn’t crazy about the doctor that step in for him over the weekend, he didn’t say much like my doctor does. He explains everything.  I don’t want to make this post long.  I wonder since I got so sick so soon, that much mean the month of MAY is going to be good month. I say good month because its my BIRTHDAY! A few years I be tapping 30! WOW! Is all I can say.I’m so touch and thankful for all my followers that have been with me for the long run and the new one’s I have met on the way. I haven’t forgotten about you all, it’s just my health and school has been keeping me busy and haven’t got the chance to visit and comment like I would love.  You all have been a BLESSING to me on MY JOURNEY! I do hope all is well with each and every one of you! Sending many BLESSINGS TO EACH AND EVERYONE OF YOU! God Bless 🙂

 

GOD HAS TRULY BEEN GOOD TO ME, HE NEVER LEFT MY SIDE, EVEN WHEN I WANTED TO THROW IN THE TOWEL! THANK GOD FOR HIS LOVE & MERCY

 

I have slip on been more of ADVOCATE for my illness, I hope soon as I get done with this semester I be better at bringing more awareness to Sickle Cell Anemia!