Am I wrong for wanting more Awareness for Sickle Cell Disease? I was recently talking to someone about my illness and she was like I didn’t know you had it and that she didn’t know much about it but wanted to know more about it. How can I spread the word about it and not get to emotional about not having much Awareness for my disease? I want to be Advocate, to be one that mean I would have to open up more about who I Am, and How I am living and dealing with it for over 20years? I didn’t know about we had a month of Awareness, to have a month but not really hear much about it bothers me. But someone had told me they heard about it and saw a few things as well.
To live everyday and to be in pain a majority of your life sometimes getting to the point and just being unbearable. I smile on days I wanted to cry and just wish I wasn’t here anymore, but I knew it wasn’t my time to go yet. I know I haven’t blog much about my illness. I have been doing research on it for my English paper, so I have been learning new stuff each and every day. When I decide to spread more word on the issue I don’t want people thinking I don’t know what I’m talking about. I know I haven’t made it back to explaining what it is yet.
You’ll see more on these topic of Awareness, it’s time for a change and I’m on my way of making it happen in due time. Right now days have been hard due to my headaches getting the best of me at times.
GOD BLESS,
POETIC
Poets Afterthought 
I have had a lot of mental issues in my life. I write about them not so that i can prove that i am indeed knowledgeable of them but i relay more my state of mind, emotions and make all that is gravitating around it into a story. Then people can know my experience with what is happening. I will connect with you if you give me your emotions, your thoughts, state of mind and build a world in which i can see you and what you are going through. Always worked for me 🙂
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Ty for your kind words! Some days you will see me at my worse and other dats you see me at my best! I would like the help!
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we walk in parts, you hand to my shoulder, my leg to your hip because none of us can hold it together by ourselves on this path called life. Stumble not for my hand will not let you go, cast not your faith because together we shall see brighter days.
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We seem to forget were never alone! Ty!
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Poeticjourney, don’t be afraid to be open. From what I’ve read so far, I envision you to be a wonderful and spirited person. I did not know that your beautiful words were created while being afflicted by SC. It tells me that you live life in a way that doesn’t take each moment for granted. God is your strength and comfort. You are right, you a never alone! Stay blessed and I’ll keep you in prayer.
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Ty for your kind words and encouragement! Can never have enough prayers! May God Contine to Bless U! 🙂
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It is very hard to talk about living with Sickle Cell disease at first, but the more you talk about it the more comfortable you get doing it. During my early teens I didn’t want anyone to know I had Sickle Cell and I denied it- even to myself. But a serious crisis that put me in the hospital for 2 weeks made me come to terms with my disease and realize it is apart of me. I let people know upfront about my disease because it has shaped and made me who I am today. You don’t have to know all the answers, you just have to be willing to share what you do know- how Sickle Cell affects you.
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You so right on that! Only my fam and close friends knew. Its like now that im older and realizing I could be dead in my grave and see less awareness for SCD! Im more determine to spread the word, because so many or not educated on disease! To the awful treatment I experience in diff hospitals and bruises from bn stuck so many times!
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